ANA Discussion Forum

Post-Treatment => Post-Treatment => Topic started by: nancyann on December 16, 2006, 05:51:26 pm

Title: Give Me A Minute
Post by: nancyann on December 16, 2006, 05:51:26 pm

                                                                                      GIVE ME A MINUTE

                                               
                                                            Give me a minute
                                                              so I can hear
                                                               the words you say
                                                              over the tinnitus in my ear

                                                             Give me a minute
                                                               so I can see
                                                                the grace and balance
                                                               hiding inside of me

                                                              Give me a minute
                                                                so I can find
                                                                  the beautiful face
                                                                 I left behind.
                                                   

                                          Please.....
                                                        just.....
                                                               Give me a minute.....

Went to the bank, the mall, then the car repair I've been going to for 10 years... hadn't been there since before the surgery...No one recognized me....
                                           
Title: Re: Give Me A Minute
Post by: Patti UT on December 16, 2006, 06:14:29 pm
Nancy,

    :( so sorry. Made you feel bad I'm sure.  Your poem says it all. thanks for sharing


Patti UT
Title: Re: Give Me A Minute
Post by: Obita on December 16, 2006, 08:45:34 pm
Nancyann:

I am having coffee with an AN friend tomorrow.  She has facial paralysis.  She has made me realize something:

The most beautiful people in the world have crooked smiles.

Kathy
Title: Re: Give Me A Minute
Post by: nancyann on December 16, 2006, 08:52:48 pm
Hi Kathy,

 Can you ask her what she plans on doing about it ????   How long has she had facial paralysis >>

I'll have a repeat EMG in Jan., So , if more nerve fibers are firing... It'll be a 'watch & wait' ( kinda ass-backward as it's post op !!  lol)
I hear you Kathy,  it's just so hard sometimes girlfriend....

Nancy

PS   Thanks Patti, UT   also



Title: Re: Give Me A Minute
Post by: Lorenzo on December 17, 2006, 12:24:06 am
Hi Nancy,
Oh dear, not a nice thing to happen... Thanks for sharing the poem.  :'(  :)
Lorenzo
Title: Re: Give Me A Minute
Post by: daylilly on December 17, 2006, 06:34:12 am


          Hi Nancy,
          Tear in eye. Know how that feels.  Sue
Title: Re: Give Me A Minute
Post by: Obita on December 17, 2006, 07:16:24 am
My friend Nancy:

She had surgery in mid '05 (they had to sever her facial nerve to get the tumor out-her tumor was huge).  She had hypoglossal-facial nerve anastamosis done in July.  Her surgeon said it will take at least 6 months to know if the surgery worked.

Hang in there Nancy,  Kathy
Title: Re: Give Me A Minute
Post by: redgrl on December 17, 2006, 02:42:17 pm
I know how you feel. I have it on the left side. People are always looking at me. Especially kids. It makes me sad when people who i have known for years don't recognize me. I have put on alot of weight during this hole AN process to so that didn't help. Anywho keep your smilin its all good!  ;)
Title: Re: Give Me A Minute
Post by: nancyann on December 17, 2006, 02:51:00 pm
Hi all:


            I believe my best xmas gift is:



                                                                                 HAVING ALL OF YOU FOR SUPPORT  !!!!!



            My AN friends + music = HEALING

                                                                                  THANK - YOU !!!!!!!!!!
Title: Re: Give Me A Minute
Post by: matti on December 17, 2006, 05:44:12 pm
Nancy,

I understand your pain and wish I could be there to give you a hug.

cheryl
Title: Re: Give Me A Minute
Post by: Derek on December 17, 2006, 06:24:28 pm
Nancy

Your sad account has left me feeling very humble. You have an obvious inner beauty and strength of character that will eventually see you through this low period...and you will 'get by with a little help from your AN friends'!

Derek
Title: Re: Give Me A Minute
Post by: flier58 on December 17, 2006, 06:33:48 pm
Nancy,
What a poignant poem.  My heart goes out to you.   There is an inner beauty and strenght in you which transpires thru your words. Remember, you have a lot of friends here who think your smile is beautiful just like your soul.
Flier58
 
Title: Re: Give Me A Minute
Post by: Jim Scott on December 18, 2006, 01:12:30 pm
Nancy:

O.K.,  I'll admit it.  Your poem brought tears to my eyes.  Thank you for both the poem and for sharing your plucky attitude with us.

Folks like you are not only inspirational to those in similar AN post-op situations but you help those of us who had fewer post-op complications to really appreciate our blessings.  I wish you all the best in the weeks to come and I'll pray for your total recovery.

Merry Christmas to you.  :)


Jim
Title: Re: Give Me A Minute
Post by: nancyann on December 18, 2006, 01:53:02 pm
Thank-you everyone again, for all your support.

Well, today's a much better day...I was feeling so peaceful all day, even at work, till....
I keep forgetting to get discharge info, I spilt water & forgot to wipe it up.....so

While I  finally WAS wiping up the water, a coworker was copying, I said to her:
" My memory is so bad today, I keep forgetting things "
co-worker: "That's okay, you're entitled.."
I said "damn straight, I'm going to milk this TUNA for all it's worth !!!" (of course I meant 'tumor')

We laughed for about 5 minutes !!!!   .........

LIFE DOES GO ON !!!!!!!  (if only I can get my mouth to work right !!!!   lol)

Thank you all again    XOXOXOXO    Nancy
Title: Re: Give Me A Minute
Post by: nancyann on March 18, 2007, 01:48:51 pm

                                                                                      GIVE ME A MINUTE

                                               
                                                            Give me a minute
                                                              so I can hear
                                                               the words you say
                                                              over the tinnitus in my ear

                                                             Give me a minute
                                                               so I can see
                                                                the grace and balance
                                                               hiding inside of me

                                                              Give me a minute
                                                                so I can find
                                                                  the beautiful face
                                                                 I left behind.
                                                   

                                          Please.....
                                                        just.....
                                                               Give me a minute.....

Went to the bank, the mall, then the car repair I've been going to for 10 years... hadn't been there since before the surgery...No one recognized me....
                                           
  I feel I've come so far from this moment... the journey is far from over but I thank-you all for being here....
Title: Re: Give Me A Minute
Post by: ppearl214 on March 18, 2007, 01:53:00 pm
 :-*

what more can I say?

P


                                                                                      GIVE ME A MINUTE

                                               
                                                            Give me a minute
                                                              so I can hear
                                                               the words you say
                                                              over the tinnitus in my ear

                                                             Give me a minute
                                                               so I can see
                                                                the grace and balance
                                                               hiding inside of me

                                                              Give me a minute
                                                                so I can find
                                                                  the beautiful face
                                                                 I left behind.
                                                   

                                          Please.....
                                                        just.....
                                                               Give me a minute.....

Went to the bank, the mall, then the car repair I've been going to for 10 years... hadn't been there since before the surgery...No one recognized me....
                                           
  I feel I've come so far from this moment... the journey is far from over but I thank-you all for being here....
Title: Re: Give Me A Minute
Post by: Desilu on March 18, 2007, 05:31:33 pm
Hi Nancy,

  You always see the glass as half full and not half empty. Your positive attitude will get you through this. When life gives you lemons, you make lemonade. Although things are not how you would like them to be, you always make the best of it. I admire your strength! You will get better! Keep the faith!  You are in my prayers.  Ann
Title: Re: Give Me A Minute
Post by: nancyann on March 19, 2007, 04:37:28 am
Thanks guys;   Whew, it HAS been a long road for all of us, huh?
                     Thanks to all of you the bumps are less & less.....
Title: Re: Give Me A Minute
Post by: ppearl214 on March 19, 2007, 11:37:01 am
naw, we're just being our usual, twisted, off-the-wall selves :D

xo
P
Title: Re: Give Me A Minute
Post by: pearchica on March 20, 2007, 10:49:47 pm
NancyAnn: hang in there.  And as a former bank employee I can say this with certainty, we are trained not to give good customer service! (Which is why I eventually left banking! it was all about the bank, not about the customers who allow the bank to exist).

However, you are so brave, courageous and very funny. I always keep you in my thoughts and prayers.  You really are one of our leaders and one of my role models.

Yes, what a strange weird trip it's been...
BTW how was your trip with your old boss- did you have fun...? Annie
Title: Re: Give Me A Minute
Post by: Captain Deb on March 21, 2007, 03:54:23 am
Nancy Ann-
I have the a similar  problem-- I avoid people I know in the grocery store, the bank etc. I'm tired of talking about how I feel and the headaches. I only go out when it is absolutely necessary (no food in fridge, no money in bank)
I hate seeing anyone I know out in public because it is so hard to carry on a conversation in a public place and I just want to be out of there because my head is already throbbing.

That's why I like it here-no talking and it's on my time schedule--except for Phyllis calls me all the time, which I love. And I can lie down while I'm on the phone.

Capt Deb 8)
Title: Re: Give Me A Minute
Post by: ppearl214 on March 21, 2007, 05:48:44 am
That's why I like it here-no talking and it's on my time schedule--except for Phyllis calls me all the time, which I love. And I can lie down while I'm on the phone.

Capt Deb 8)

Yeppers, I get my 15 min phone time with the Capt'n to let her know all ship-board activities... anything more than 15 min, I have to run to the ship's doc and get her a good dose of Imitrex to help her out!

:)
Title: Re: Give Me A Minute
Post by: Omaschwannoma on March 21, 2007, 07:36:22 am
WOW your poem was very powerful.  After reading it I had the thought, "Take your 'minute' Nancy, here it is."  After reading through the "thread" I come across your most recent update and WOW you did take your minute.  Glad you had your eyes open during your forward motion down your path so as not to miss that which is given to those that ask. 

It is because you accepted yourself (you probably thought 'I had no choice.') this came through and projected it onto those you met.  You were tested by those that did not recognize you and your decision to move on (good choice) from that encounter gave me a lump in my throat.  I am so moved to read about courageous people holding their heads high through overwhelming situations.  I am glad you did not lose sight of who you truly are and glad you decided to project this forward.  Your responses of late are filled with optimism and beauty giving those who struggle the choice to know the "light" at the end of the tunnel does exist.  Thank you for being here! 

P.S.  Look up, I'm right above you!  Geographically speaking.  ;--)