ANA Discussion Forum

Pre-Treatment Options => Pre-Treatment Options => Topic started by: Leo L on February 23, 2023, 12:35:24 pm

Title: Ablation of Acoustic Neuroma
Post by: Leo L on February 23, 2023, 12:35:24 pm
Hello forum,
I'm a newby on the forum with a diagnosis of an acoustic neuroma on the right side since August 2021. I had Gamma Knife treatment Jan. 2022 and so far multiple MRI's have demonstrated no further growth. However, my symptoms have worsened since the treatment with debilitating imbalance, total hearing loss, loud tinnitus and the fullness feeling of the ear canals (the ENT doc calls it Eustashian Tube Dysfunction).
The ENT doc has recommended chemical ablation with an antibiotic as the next step.
Anyone have experience with chemical ablation?
 
Title: Re: Ablation of Acoustic Neuroma
Post by: mwatto on February 23, 2023, 07:00:35 pm
I havent had ablation but I continue to get stabbing pains in ear 4 years post CK (was also happening prior.) Please keep us posted I would like to know more also- have never seen this in the forum discussion.
Title: Re: Ablation of Acoustic Neuroma
Post by: donjehle on February 24, 2023, 10:29:39 am
Hi Leo L!

Thank you for posting on the Forums, and your question is a great one.  I have not heard of anyone having a chemical ablation for an acoustic neuroma.  My guess is that it is a treatment for your Eustachian Tube Dysfunction.  But I am not a physician, and I really have no clue.  I know my ENT injected a corticosteroid into my acoustic neuroma ear.  He said it had to be administered quickly after hearing loss or it would not be viable.  It did not help my hearing loss at all.  Like Michele, I would be curious to know more about this.  Please update us on this later!

Best wishes!
Don
Title: Re: Ablation of Acoustic Neuroma
Post by: gbly on May 01, 2023, 02:11:34 pm
Leo L.
You have my interest.  I was looking up chemical ablation and understand now the idea, but what actually would you be getting treated?  The Eustashian Tube?  What would the outcome be? 

This is something I have not seen or can't really find online, so I suspect you will have a lot of interest.
What is the expected result of the treatment?
Thank you
GB