ANA Discussion Forum
Watch and Wait => For those in the 'watch and wait' status => Topic started by: Leighannski on September 23, 2022, 03:35:11 pm
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Hello,
I have been taking 325mg of aspirin daily since my diagnosis August 2nd. Does that dosage sound right? And should I add turmeric? Or would that be too much?
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Hello LeighAnn and welcome.
Please note that we are not doctors and you should consult with your physician regarding any medication/supplements. Others here may be able to share their personal experiences and, yet, we are not qualified to answer medication dosage questions. I hope this helps. Wishing you well.
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Welcome to the ANA Forums, Leighannski!
I'm thrilled that you made your first post here. :)
ppearl214 is correct. I'm not a physician, and I cannot give any medical advice, nor should I. We do share our personal experiences which often vary from person to person. What often is beneficial for one person sometimes does not help others.
So, with that in mind, I will share my understanding with you. It could be wrong, and I will be the first to admit that I sometimes may misunderstand something. But what I read, Leighannski, is that there was a lot of initial excitement about the benefits of aspirin for acoustic neuromas. Unfortunately, with more research and studies, it seems like aspirin (with or without tumeric) proved to not have any significant beneficial effect. That is my understanding, and I thought I would share it with you.
However, if you want to try aspirin and see if it works for you, that's up to you. But I don't think even your physician could give you a recommended dosage since the research studies did not prove as effective as some of us had hoped.
Others on the forum could share their personal experience with aspirin and tumeric. They might also share other options which worked well for them.
Best wishes on your journey!
Don
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Hi Leigh Ann both turmeric and aspirin are blood thinners so not a good idea. The aspirin research did not show it helped significantly for AN though inflammation is a known cause of growth. Other things people have tried that seem to be backed by science and anecdotes of success here are: Suforaphane, fucoidan, bromelain, turmeric, resveratol, honokial...whatever works on the PAK-1 pathway (Prof Maruto told me this he did research on it). Stress and sleep are also factors. Melatonin is useful and some have had help with nerve pain with herbs, CBD, PEA. As far as I know though there is nothing that conclusively works to get rid of an AN except surgery.
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Thanks for sharing that, Michele! I was hoping that you would comment on the post. :)
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My pleasure donjehle! I still read up on AN - see my post on stress and this makes the most sense really- Ifrom what I have read AN's start off as a wound response- so that might be dental xrays to head and neck, or excessive noise, or a viral infection. But growth is driven by inflammation- and stress defintely causes that. I work on neuro inflamamation daily, keep stress down (not easy when this thing causes anxiety). I do think keeping blood on the thin side might reduce blood pressure...I do this with ginger shots in juice or tea. There are many herbal tinctures which are also blood thinners too that are safer than aspirin. Not against aspirin - I have taken low dose after my vax side effects which made my blood sluggish and it did help. But I have a sister admitted to ER after long term NSAIDs and gastric bleeding. There are clinical papers such as this on sulforaphane eg. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5090244/ and honokial (honopure) has shown promise. Prof Maruto who is something of an expert on NF2 said even sporadic its the PAK-1 pathway and advised me to take: fucoidan (I take Matakana brand), sulforaphane (Matakana), hibiscus tea and propolis (I am not convinced re the latter) for example. But If you google natural compounds there are so many that work on this pathway. Melatonin attentuates acoustic radiation damage so this makes sense to me too. https://onlinelibrary.wiley.com/doi/10.1002/lary.25376
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Thank you all! My doctor said I could take aspirin but didn't say how much and I didn't know about tumeric at the time so I didn't ask about that. I will look into some of the other suggestions.
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Hi Leighann! I understand your concern, but in spite of personal experiences with our brain guests, most of us here aren't doctors. We can tell you about steps we take to lessen symptoms, etc., but that shouldn't be medical advice to anyone else. Please, please, please consult your own physician for medical guidance!
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Hi Leighannski,
I just wanted to share with you what I was told by a few doctors. The first ENT/otolaryngologist I saw told me I should take 1 baby aspirin daily. I have been taking 1 baby aspirin(81 mg) daily for the past year and a half. A neurosurgeon from the Mayo Clinic said that it’s a good idea for everyone over 50 to take daily baby aspirin. . I also take turmeric occasionally but not on same days as aspirin. I’m only letting you know what I personally am doing, and I did do research on this site where I noticed several other people were also taking baby aspirin. I believe someone started an aspirin poll, if I remember who it was I’ll get back to you on that.
Best of luck!
CA Marti
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I believe ANSydney started an aspirin study awhile back. I don’t know if she is still on this forum, but I’d be interested in her results.
CA Marti
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One of the reasons we cannot recommend a treatment protocol is that what may work for a few fortunate individuals does not always work for most people. The only way we know if something actually works for the majority of people is to do a study. Here is a link to a study done a few years ago on aspirin and acoustic neuromas. It showed that while a few patients benefited, taking aspirin does not prevent growth of acoustic neuromas for most people.
https://pubmed.ncbi.nlm.nih.gov/29405309/ (https://pubmed.ncbi.nlm.nih.gov/29405309/)
And one more:
https://pubmed.ncbi.nlm.nih.gov/28692590/ (https://pubmed.ncbi.nlm.nih.gov/28692590/)
While there was some hope initially that aspirin might be helpful to prevent growth in acoustic neuroma patients, the most recent studies seem to show that it is not the case for most people.
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Hello,
I have been taking 325mg of aspirin daily since my diagnosis August 2nd. Does that dosage sound right? And should I add turmeric? Or would that be too much?
I've been taking 400 MG of ibuprofen, and a baby aspirin a day, i also take Turmeric, and sulforaphane, i use CBD/THC, and some melatonin and B6 L tryptophane.
i'm gonna add Shiitake, Aswagandha and omega 3 to it starting next week I basically stick to anti-inflammatories and anti-oxidant rich foods.
so far with the 1 ibuprofen a day (400MG), cbd, melatonin, magnesium/tryptophane and turmeric ive somehow got rid of almost all symptoms, my vs is 40mm in size i had dizziness, bad headaches a bit of balance problems. those have been gone for a oouple of weeks now. ive been taking the supplements for a month.
i've recently been diagnosed so iam very curious what the next MRI will show, i really think mine is shrinking for some reason but time will tell