ANA Discussion Forum
Treatment Options => Radiation / Radiosurgery => Topic started by: vb on April 22, 2021, 02:31:06 pm
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Hi Everyone,
It's been awhile. Hope all is well. I had my MRI following 10 years of gamma. Lots has happened in between but I am thankful and greatful to report that my tumor is stable.
I would love to hear from you the new ones here and the old ones here.
Vivian
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Nice to "meet" you Vivian!
Great news - stable is good! Hoping that remains the case for you and for me! 1 year post report for me was good, so another 9 years to go!
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Nice to meet you too abd glad to hear.
Where did you have yours done?
Vivian
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Vivian-
I had Gamma at the Mayo - MN Rochester campus. Dr. Link was in charge of my care, but really it was a great team that looked after me down there. I can recommend Mayo, and think they do a wonderful job of care.
Do you have anything that you continue to work on? Balance / dizziness is a daily thing, but more of a nuisance mostly. I do bounce off walls at the end of the day when I get tired. SSD in tumor side, before the Gamma. Hearing loss was the final thing that got me to diagnosis. Was hearing a cross system at work when I was going in, now that I WFH I only wear it occasionally (because I only go out occasionally ;).
I think each person figures out what will work for them after, just like they figured out what treatment to use, but I am always looking for what others have found that works.
I walk around 5 miles daily. Prior to covid was doing yoga and zumba once a week. Are you active? I have not tried to ride a bike, pretty afraid I would not be able to.
I use ginger root for nausea when dizzy. Take CoQ-10, fish oil and biotin daily but none of those are for symptoms, just general health.
I am in my later 50's and hoping to retire earlier than full retirement age!