ANA Discussion Forum

Watch and Wait => For those in the 'watch and wait' status => Topic started by: TOM101 on April 18, 2021, 07:48:46 pm

Title: Cyberknife
Post by: TOM101 on April 18, 2021, 07:48:46 pm

Its been 6 years now since I layed on the bed for 1 hour 3 days at Stanford for my Cyberknife treatment by Dr Chang's group. Easiest procedure ever and absolutely no after effects. Neuroma slowly disappearing. Thanks Dr Chang.  Would recommend for anyone who qualifies, can't imagine the pain of accepting the surgeries advised by others.

Title: Re: Cyberknife
Post by: bjhk on April 19, 2021, 11:11:51 am

thank you,  Good news!

I wasn't aware the neuroma disappeared, I thought CK just Stopped the growth

How often were MRIs were needed?

Title: Re: Cyberknife
Post by: mwatto on April 21, 2021, 02:41:33 am

Hey Tom thats great! I am two and a half years out also three sessions for mine. Had some shrinking and no side effects to mention. Hearing and balance ok - some dry eye and occasionally throat stabbing and ear neuralgia. Comes and goes as mine close to trigeminal. Your post gives me hope. What I often wonder is I was told that Cyberknife spares healthy tissue- so what causes long term radiation effects then if its conformed to the tumor? I dont understand. Are you taking anything supplement wise? I emailed Professor Maruto who has studied neurofibromatosis pathway for 30 years and taking Bio 30 propolis. This has def helped my nerve pain but tastes awful lol! I also take PEA, boswellia nd bromelain and melatonin.

Title: Re: Cyberknife
Post by: notaclone13 on May 02, 2021, 01:11:08 pm

Thanks for the information regarding Bio 30 propolis. I was not aware of Dr. Maruto’s work. What does PEA stand for?

Title: Re: Cyberknife
Post by: mwatto on May 04, 2021, 09:53:29 pm

Hi its stands for palmitoylthanamide. Here in Australia no script required.

Title: Re: Cyberknife
Post by: mwatto on July 31, 2021, 08:23:21 pm

Brilliant! I am almost three years out and similar story.