ANA Discussion Forum

General Category => NF2 => Topic started by: mwatto on March 29, 2021, 09:49:47 pm

Title: Bio 30 proplois (or Bio 100)
Post by: mwatto on March 29, 2021, 09:49:47 pm

Hi is anyone using this? Been a few years since this was discussed.

Title: Re: Bio 30 proplois (or Bio 100)
Post by: Clover131 on March 30, 2022, 06:35:11 am

Yes- I just started it 2 weeks ago.

Title: Re: Bio 30 proplois (or Bio 100)
Post by: donjehle on April 02, 2022, 06:30:53 pm

What is it, Michele?  I have never heard of it before.  And I'm not sure where the previous discussion thread is.

Title: Re: Bio 30 proplois (or Bio 100)
Post by: mwatto on April 05, 2022, 01:29:13 am

Hi Don it is propolis - it was used for trials in the past for vestibular schwannoma. Prof Maruto says it works on the PAK-1 pathway...however it was inconclusive re evidence it seems. I posted on Ivermectin also...

Title: Re: Bio 30 proplois (or Bio 100)
Post by: donjehle on April 05, 2022, 05:32:20 pm

Hi Michele!

I have taken propolis before, not for my vestibular schwannoma, but just for general health and well-being.

Thanks for clarifying that for me!
Don

Title: Re: Bio 30 proplois (or Bio 100)
Post by: PBFight4SB on May 02, 2022, 02:45:12 am

NF2 patient here. Can you please elaborate the benefits? Ready to take whatever risk to get back some hearing OR at least suppress the tumor from further growth.

Title: Re: Bio 30 proplois (or Bio 100)
Post by: mwatto on May 19, 2022, 08:12:46 pm

Actually today I was reading this on Losartan:

https://pubmed.ncbi.nlm.nih.gov/34261799/

https://www.medindia.net/news/losartan-helps-reduce-the-risk-of-hearing-loss-among-vestibular-schwannoma-patients-202273-1.htm?fbclid=IwAR2OLH3muV-djGQvxzEQwhZOfJ9F6avDQug0BcX5HfQ7Jzmnxata9qIZo-w

I think that propolis works on the PAK-1 pathway which might help us- however a better bet is suforapane. Bromelain also useful.