ANA Discussion Forum

Watch and Wait => For those in the 'watch and wait' status => Topic started by: Brentwood on November 09, 2019, 01:22:18 pm

Title: Long term watch and wait
Post by: Brentwood on November 09, 2019, 01:22:18 pm
I was diagnosed with a hemangioma located in the Internal Auditory canal which has eroded my cochlear about 12 years ago. I had hearing loss , vertigo and facial weakness for about 5 years prior to diagnosis that was mis diagnosed as Ménière’s disease and bells Palsy. At my yearly check up last week with the otologist at Mass Eye and Ear I mentioned I thought have further weakness - when I puff out my cheeks the affected size wasn’t as puffed out as it usually was. The Dr also commented on my synkinesis . He sent me for CT , MRI and hearing test. The size of the tumor is stable , However there has been modeling of the bone in the canal which means there is virtually no free space. He thinks it is time to consider surgery - mid fossa approach . I am curiousl if others have had surgery recommended when the tumor size is stable but there decline in hearing and facial function?
Title: Re: Long term watch and wait
Post by: v357139 on February 08, 2020, 09:48:34 pm
I was not in your position.  But if you are feeling unsure, then another opinion could be a good idea.  When considering surgery, then at least two opinions is always a good idea.