ANA Discussion Forum
Post-Treatment => Post-Treatment => Topic started by: Pbellovin on July 15, 2019, 06:27:00 pm
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I am 4 weeks post translab surgery. All is going well except for the awful taste in my mouth. Everything I eat tastes odd and has a metallic, Burning, sour taste. Had anyone experienced this and, if, so, does it ever subside?
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Sounds like your facial nerve has been compromised. Is the bad taste only on your AN side and only at the front of your tongue?
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Actually my facial nerve has not been compromised in any way. The burning, metallic taste is covering my entire tongue and roof of my mouth.
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That sounds strange.
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I had this as well with my retro. Everything tasted terrible. 10 months later, it has gotten a bit better, but my ability to taste correctly is not good. My neurologist says that it may improve up to 18 months after surgery. Whatever ability one has after that, it how it's going to stay.
Do you find tomato sauce and anything in tomato sauce absolutely disgusting? I sure do. At the point you're at, I also thought beef tasted horrible--I couldn't eat it. Now, I can taste and enjoy it. But add ketchup to a burger and it makes it taste gross. It's weird--I can taste simple foods pretty well now--vegetables, chicken, fruits. The problem occurs with complex tastes like spicy food, tomato sauce, things with lots of ingredients. Unfortunately, my pre-surgery love of chocolate has disappeared too. Chocolate takes yuck.
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I had a similar effect with my retro. In the beginning, it felt like everything tasted funny. I've noticed at some point that only on the left side (AN side) of my tongue was weird. It is as if I can't really taste, so everything is sour. I've learned to move food to my right side since then. It is not ideal but at least I can taste food properly. Changed my taste in general more to citric drinks. Used to love Coke zero. Can't stand it now. More of a Sprite guy now. :)
I believe it is getting better gradually but can't be 100 sure.
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I had this too. My Doc said it is very common. It is due to trauma to the facial nerve during surgery and tumor removal. He said it almost always corrects within 6 months. that was true for me (more like 3 months). Wish you the best. Its definitely annoying!
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I had the same problem post surgery. It lasted a few months and eventually returned to normal. I hope you experience complete wellness in time. Hang in there.
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I also had it, nothing tasted good. Had the metal taste, another hurdle to cross during recovery, mine came back to normal after 4 months or so as I remember. Stay strong and best of luck!!
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Thanks for all your replies. I guess I’ll just have to deal with this awful taste issue for some time since I’m only 6 weeks out from translab surgery
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I had CyberKnife surgery Jan. 31, 2019. I notice that sometimes on my AN side my lips taste "salty." I taste some foods much better than others....some foods are tasteless. I now LIKE to eat Marmite...something I always found icky....
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I'm approaching 5 years post-translab. I was fortunate to not have had any impact to my facial characteristics.
But I definitely experienced taste changes. Initially, all tastes were very subdued. Then, and all of the surgical inflammation went away, I had some taste inversion - sweet was salty for example. Now I no longer have the inversion, but my sense of taste is more easily overloaded by hot peppers. Took a while, but I'm fine with the minimal lingering change.
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For the first month I couldn't eat anything except Eggo waffles that didn't taste like sour lemon rinds. Mine is still there at times but it is definitely better at 3 months post op. I think mine has a lot to do with how tired or how much I push myself.
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Same here, 5 days post op now. Everything tastes like extra salt. CSF ruled out. Ugh!!! Hopefully it goes away in a few months.
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I am 3 months post surgery and my taste is off as well. everything tastes dull to me. I'm hoping it gets better. Hope you do too.
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Thought I’d report back. I am now 8 months post translab surgery in Dallas Texas. Most of the unbearable metallic taste in my mouth has dissipated, but certain foods like chocolate, red meat, canned tuna fish and a few other things I like are impossible to eat. They all leave a terrible taste in my mouth - kind of a metallic, sour taste that is so very unpleasant Has anyone experienced this so beautiful far out from surgery?