ANA Discussion Forum

Watch and Wait => For those in the 'watch and wait' status => Topic started by: ggc on April 05, 2019, 10:55:05 pm

Title: metallic taste
Post by: ggc on April 05, 2019, 10:55:05 pm
I am wondering if others with small intracanicular tumors (mine is 3mm) have had experience with a phantom sour taste. Mine started almost a year after the onset of the propulsive dizziness that spurred my dx. There was no change in tumor size before versus after onset.  My neurotologist said it's most likely due to irritation of cranial nerve 7. Have others had this problem? Any suggestions? Strong mint tea masks it somewhat, spicy foods seem to make it much worse for days. I would love to know if others have had this symptom go away on its own, or if, (as my neurotologist implied), it may predict other CR 7 symptoms yet to come.
Title: Re: metallic taste
Post by: ANSydney on April 07, 2019, 05:53:43 pm
I have altered taste. Sweet foods are the most affected. I don't think it's quietened down over the years, but I think I've gotten used to it to the extend that I don't notice it unless I think about it.

It only affects one side of the tongue. (I've adapted, without thinking, to eating sweet foods on one side of my mouth.)
Title: Re: metallic taste
Post by: jami on April 09, 2019, 06:57:22 pm
Altered taste as well. It was one of my early symptoms (esp numbness), had surgery in August, but it has returned as my remnant is poofing out a bit. Many thoughts of support for you!
Title: Re: metallic taste
Post by: chrisabbott on April 20, 2019, 09:14:43 am
Hello, I got my diagnosis a couple weeks ago, but have been experiencing strange tastes for over a year.  It was my first symptom (I already had impaired hearing so I didn't notice how bad my left side had got until after my tumor was found).  I also have numbness on the side of my face and tongue, and dry eyes & mouth which I believe are all related.

I could live with the taste thing not going away, but I'd like to not keep tasting extremely sweet, sometimes sour &/or metallic tastes if it can be fixed.  This is one of the reasons I joined and started looking around here.
Title: Re: metallic taste
Post by: musicmaker on April 20, 2019, 06:43:23 pm
I also have the metallic taste and some of the same symptoms that you have. I was diagnosed a few months ago. My metallic taste has gotten better or maybe I'm getting use to it. The only thing that taste the same is chocolate. 
Title: Re: metallic taste
Post by: Patti on April 21, 2019, 06:32:52 am
I don't have any taste or sensation in half of my mouth and throat and face and eyes. There are many cranial nerves that can be affected,
Title: Re: metallic taste
Post by: ANSydney on April 28, 2019, 05:05:43 pm
I think the altered taste consideration is for those that have not had treatment.
Title: Re: metallic taste
Post by: michellef08 on May 07, 2019, 07:47:57 am
Water tasted metallic to me sometimes before my diagnosis and surgery. I didn't even know it was a symptom until years after my surgery (in 2014) that a fellow support group member brought it up, and then I realized I had had it before! Not that my tumor is removed, it very rarely happens.
Title: Re: metallic taste
Post by: jami on May 09, 2019, 08:10:57 pm
I had altered taste before surgery, after surgery, and (bummer) after the tumor started to grow again. Post Cyber Knife a few weeks ago, it is weirder altered taste. Things taste super salty, and people tell me it wasnt salty at all. The other day, a piece of cheese tasted like peanut butter (weird!).

I think it, like everything, is a bit different for all.