ANA Discussion Forum
Post-Treatment => Eye Issues => Topic started by: JLR on July 23, 2018, 06:39:10 pm
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I have been using ointment at bedtime for these past 20 months. Used mostly Refresh PM ointment but it apparently is off the market. Been everywhere. The CVS brand has the same balance of ingredients but I've noticed recently that my eye bothers me at night time so I thought I'd better switch brands. CVS now has Retaine Nighttime, it's preservative free, but I never heard of that brand, in fact neither did the pharmacist. Anyway, I purchased it. And just applied it. So my question is has anyone tried that brand. My dry eye is way better but my doctor recommends continuing with drops daytime and ointment at night. Thanks everyone. Joan
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Joan-I have been using eyedrops all day and night for 18 years! I'm not sure if it ever gets better. But just to give you a history, For the first 14 years I used an ointment in a green bottle (refresh i think), but the critical thing was it had to be 1% methylcellulose which is thicker. But then i was having frequent problems. My doctor said i had to switch to preservative free drops so now i buy Refresh Celluvisc. The nice thing is that it dries at night and glues my eyes shut so i don't need any greasy ointment (which does not keep my eye shut). It is a constant issue. Patti
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Sorry, I have never used the brand you mentioned, but have a general question for you. Over the 20 month period, have you regained better lid closure to any degree, or better eyelid movement in general? Even if not normal yet? Thanks
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actually my lid closure got better so i convinced the surgeon to remove the gold eye-lid weight maybe after 7 years? it still is good but not total.
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I'm now using CVS brand ointment preservative free as it's the closest to Refresh Pm which apparently has been discontinued. And yes I can easily close my eye. I had to tape my eye closed at night the first year or so but it does thank goodness close. But I have synkensis and still paralyzed on certain spots of face. For example my right eyebrow does not move. What a journey. Let's please stay in touch. Joan
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I use Systane eye ointment, closest I've found to Refresh pm.
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I use the WalMart brand of nighttime ointment - on the label it says "compares to Refresh PM"
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Hi does the Walmart brand say Preservative free? Also, I tried Systane ointment. It has a smaller amount of petroleum and mineral oil. And it irritated my eye. I'm really so sick and tired of having an eye that needs care all the time. I do it but I'm thinking this is lifelong. And my mouth appears more slanted. Anyway today is my follow up MRI. So far it's been uneventful let's hope it's aok. Have a good day. Joan
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Let us know how it goes!
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Yes, the WalMart brand is preservative free. That's all I use in eye care products.
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Hi all, Had follow up MRI. All ok. The remaining tumor is thankfully stable. I'll have another in November which will be my 2 year post op MRI. Had I had surgery when the AN was very very small I wouldn't be in this predicament. But, CK was recommended. Of course that only lasted 5 years, then my TN was very very bad. I had no choice but to do surgery. But it could be worse. Have a good day. Joan
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YAY!
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Joan
Congratulations on a stable MRI.
I hope it stays that way and the rest of your journey is easy as you have been through a lot.
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Thanks so much. I do have synkenisis. Had useless facial therapy. I just have to live with it. Have a great day. Joan
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Hi Joan
I just saw your post. I am using Retainer PM night and day because my eye is so dry. It was recommended at UC-San Diego. But it looks like it is not easy to find, at least at CVS. I just bought some online. Wish you the best.
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Hi I'll try the Retainer brand. I did see in CVS. Happy HEALTHY New Year to all my dry eye friends. Oh I've been using Thera Tears during the day. Seems to really refresh my eye.