ANA Discussion Forum

General Category => Inquiries => Topic started by: buzneg on July 09, 2018, 07:42:03 am

Title: "but it's just a small neuroma" (how many times will I be told this)
Post by: buzneg on July 09, 2018, 07:42:03 am

Not in best mood today even though glad to have the GK behind me 10 days ago.

My AN was 13x7 mm when diagnosed March 2nd, probably a bit bigger by GK time recently... but...
How many times do I have to hear that it was a small tumor?  I still have 100% hearing loss on that side.  What consolation is there in being told it's "small" - ??
They act like I just won some sort of prize when they say it.  Obviously, this is not as bad as a huge cancerous tumor, I fully understand and appreciate that.  But for whatever reason, this "small" neuroma has been no walk in the park.  It might be relatively small by medical clinical standards, but I am still just as 100% deaf on my left side from it... and that is permanent.

Title: Re: "but it's just a small neuroma" (how many times will I be told this)
Post by: Jill Marie on July 09, 2018, 08:02:24 pm

Some people just don't get it!  I remember when a friend found out that I had a non-cancerous facial nerve neuroma, she said, "oh, thank goodness, I was told it was a brain tumor."  That was the last I heard from her about it.  It may be small but it's big in your world.  Hope tomorrow is a better day for you, post more either way, we get what you are going through better then most.

Jill