ANA Discussion Forum

Treatment Options => Radiation / Radiosurgery => Topic started by: kends2020 on March 11, 2018, 09:12:10 pm

Title: Just Finished cyber knife.
Post by: kends2020 on March 11, 2018, 09:12:10 pm

I have posted a few times but thought I would outline my experience for others.

I was diagnosed last Nov. when I had an MRI for another reason and the AN was found. 27x22x16 mm located on the brain stem.

My only symptom was slight hearing loss and ear ringing.

I after meeting with my primary care, first saw a neuro surgeon who confirmed the AN and recommended cyberknife.  This surgeon does both Cyber and Gamma so I felt his decision was not guided by special interest.

Then saw the rad oncologist who went over the procedure pros and cons chances of success possible problems ect. For two months I worried about whether to watch and wait or go forward.  I finally got tired of thinking about it and decided to go forward.

Because of the AN location they decided to go with three sessions.  So last Monday, Tuesday and Wednesday I had the Cyber Knife.  I had a minor headache after day one and two.  They warned me about fatigue after the last session.  They were correct, but I managed to go to work everyday last week.

This Saturday I finally felt normal and with no side effects.

The procedure was done and Multicare in Tacoma Washington by Dr. Singh.  I would recommend both

Ken

Title: Re: Just Finished cyber knife.
Post by: SP on March 12, 2018, 01:50:27 pm

Hi Ken,

Well done on making the difficult decision and completing your treatment and thanks for sharing your story. I wish you a great outcome and an easy time healing.

Kindly

Stella

Title: Re: Just Finished cyber knife.
Post by: kends2020 on March 17, 2018, 10:01:13 am

Thanks Stella

Almost two weeks post cyber-knife and no side effects so far.  I would say I am the same as before the cyber-knife, which I guess is the best outcome.  The goal was to stop AN symptoms from getting worse.

Ken

Title: Re: Just Finished cyber knife.
Post by: gary.s on April 03, 2018, 09:06:19 am

Hi Ken,

Just wondering how you are feeling now that it is almost one month post cyber knife? Any new symptoms or issues?

I am scheduled for five sessions of cyber knife on April 16 for my AN measuring 2.07 cm x 1.7 cm. I was diagnosed with the AN after my MRI in January of 2017. I was in the Watch and Wait group for the past 15 months, but the tumor is growing and my symptoms are increasing. So it is time to take care of this. Any words of advice would certainly be appreciated. I hope you are doing okay.

Gary

Title: Re: Just Finished cyber knife.
Post by: notaclone13 on April 03, 2018, 11:07:52 am

Hi Gary,
Do you mind sharing where you will be having your procedure done? Thanks.

Title: Re: Just Finished cyber knife.
Post by: gary.s on April 03, 2018, 01:41:41 pm

The procedure will be done at Barrow Neurological Institute in Phoenix, Arizona.