ANA Discussion Forum

General Category => NF2 => Topic started by: v357139 on March 04, 2017, 07:39:05 pm

Title: Tumor on each side but blood test negative
Post by: v357139 on March 04, 2017, 07:39:05 pm

Friend of mine has tumor on each side but blood test negative.  How can he find out for sure if he has NF2 or not?  Are there doctors who specialize in NF2?

Title: Re: Tumor on each side but blood test negative
Post by: v357139 on March 06, 2017, 02:31:06 pm

Thanks I!!

Title: Re: Tumor on each side but blood test negative
Post by: Willbur on March 16, 2017, 10:06:20 am

Quote from: v357139 on March 04, 2017, 07:39:05 pm

Friend of mine has tumor on each side but blood test negative.  How can he find out for sure if he has NF2 or not?  Are there doctors who specialize in NF2?

Automatic NF2. It's called mosaic NF2.

Title: Re: Tumor on each side but blood test negative
Post by: Susan A on April 26, 2017, 06:48:02 pm

Yes, what Wilbur said - it's an automatic diagnosis of NF2.