ANA Discussion Forum

Pre-Treatment Options => Pre-Treatment Options => Topic started by: GattoMarte on July 14, 2016, 11:44:33 am

Title: Wife just diagnosed with 5x10x5mm AN yesterday
Post by: GattoMarte on July 14, 2016, 11:44:33 am
Greetings All. Just found this Site today after my wife yesterday was found to have a 5x10x5mm AN affecting her left ear hearing due to AN covering nerve. It is not touching her brain at this time. We are in the process of setting up appointment with Keck Medicine of USC and I will try to update you all with my wife's progress. AN specialist will determine if we 'watch and wait' or Gamma Knife. Wish Good Health and Happiness to all Good Folks here :-)
Title: Re: Wife just diagnosed with 5x10x5mm AN yesterday
Post by: researcher on July 14, 2016, 01:11:10 pm
Sorry your wife had to join this club. I wish her well on her AN journey. Take care.
Title: Re: Wife just diagnosed with 5x10x5mm AN yesterday
Post by: GattoMarte on July 14, 2016, 01:49:37 pm
Sorry your wife had to join this club. I wish her well on her AN journey. Take care.

Thank you. We are just glad that the AN was found sooner rather than later. Our family doctor who we have been seeing the last 40 years, has dragged this out for the last nine months saying it was fluid in the ear and kept assuring us it would go away. Very disappointed in his prognosis. We finally got fed up and found an ENT specialist who said he saw no fluid and said to get the MRI.

I've already read through a lot of useful threads here and would like to thank those responsible for this site. The information is extremely helpful.  :)

Personally, I had triple bypass heart surgery back in early 2013 so we are no strangers to medical journey's.  ;)
Title: Re: Wife just diagnosed with 5x10x5mm AN yesterday
Post by: GattoMarte on July 19, 2016, 05:22:13 pm
Heard from Keck today. After their review of the MRI images they advise to W&W. We will make an appointment to go and talk with them as soon as we can, but this is not an emergency situation. They want a second MRI in January 2017. So, I will keep this post updated as best as I can. My wife needs to see about getting a hearing aid (aids?).
Title: Re: Wife just diagnosed with 5x10x5mm AN yesterday
Post by: Kathleen_Mc on September 29, 2016, 04:07:04 am
GattoMarte
If you wife goes for hearing aids be sure they know for what purpose (that she has A.N.)......the nerve isn't functioning properly in that ear and the aid(s) required aren't likely just the usual ones
Kathleen
Title: Re: Wife just diagnosed with 5x10x5mm AN yesterday
Post by: mandihester on September 29, 2016, 09:39:15 am
Gattomarte-
I was also treated for fluid on the ears but my PCP did make the ENT referral when my symptoms didn't get any better.  My tumor is 1.5cm and I have just elected to have surgery.  It isn't scheduled yet, but I will hopefully get the call soon. 
Good luck to your wife!
Title: Re: Wife just diagnosed with 5x10x5mm AN yesterday
Post by: Director on September 29, 2016, 01:16:32 pm
Hi Gatto Marte,

You and your wife might be interested in these Questions for the Doctors- you can print them out and take them to her next appointment. There is also a Questions for Yourself list. https://www.anausa.org/pretreatment/questions-for-your-physician
Best wishes
Allison Feldman, CEO, ANA
Title: Re: Wife just diagnosed with 5x10x5mm AN yesterday
Post by: GattoMarte on October 11, 2016, 02:27:07 pm
Thank You All Very Much for the helpful information. My job requires me to travel a bit this time of year so it's hard to find the time to check back here.

We are going to Keck tomorrow morning for our first sit down talk with them.
Title: Re: Wife just diagnosed with 5x10x5mm AN yesterday
Post by: GattoMarte on October 14, 2016, 02:52:30 pm
Update: We talked with two wonderful Keck doctors last Wednesday. My wife has not developed any other symptoms other than the original partial hearing loss per testing and interview results. So, we now wait for her next MRI results in January to best determine the next step.
Title: Re: Wife just diagnosed with 5x10x5mm AN yesterday
Post by: GattoMarte on February 08, 2017, 10:14:50 pm
UPDATE: February 8, 2017

Today my wife and I went to Keck Medical Center of USC to be advised of the results my my wife's second MRI, the first being done six months ago. We were told the AN has remained the same and not grown, so, the next step is to schedule yearly MRI's to keep an eye on it. If any dizziness, numbness or facial tics appear we are to immediately contact Keck to take the necessary steps.

So, we are thanking God and all Good People at this time. I will keep this thread updated as time moves along.
Title: Re: Wife just diagnosed with 5x10x5mm AN yesterday
Post by: ANSydney on February 08, 2017, 11:00:35 pm
Congratulations to you and your wife. That's a great result.
Title: Re: Wife just diagnosed with 5x10x5mm AN yesterday
Post by: GattoMarte on February 12, 2017, 08:28:01 pm
Congratulations to you and your wife. That's a great result.

Thank You very much. Best Wishes to you and all here.
Title: Re: Wife just diagnosed with 5x10x5mm AN yesterday
Post by: GattoMarte on June 26, 2017, 10:01:35 am
UPDATE:

I last posted back in February, 2017, so I thought I'd keep this thread going with an update.

As of today, June 26, 2017 my wife's AN condition has been stable. There have been a few occasional consecutive days of ringing in her AN ear but that's about it. Her hearing aid has been a huge help in making her and my life easier.

Wish all the best to all you good folks here.
Title: Re: Wife just diagnosed with 5x10x5mm AN yesterday
Post by: Cityview on June 26, 2017, 05:10:02 pm
Congratulations to your wife on one year of watch and wait.
You're working with a great team over there.
Title: Re: Wife just diagnosed with 5x10x5mm AN yesterday
Post by: GattoMarte on June 27, 2017, 10:14:46 am
Congratulations to your wife on one year of watch and wait.
You're working with a great team over there.

Thank You. Yes, Keck/USC physicians and staff are awesome.
Title: Re: Wife just diagnosed with 5x10x5mm AN yesterday
Post by: Geminigirl529 on July 29, 2017, 09:23:39 am
Hi,

I am a 78 year old female, diagnosed in March with a AN . Had an MRI, the size on my heathtrak result was 10x4x4mm
I  am in watch and wait.  My second MRI is scheduled for Aug. 3rd..  My doctor is Barry Hirsh.  I dont know where to go from here. I got the impression that age has a lot to do with the treatment.  As he said old brains dont like to be lifted.  Depending on the results and his suggestion for the future i may need to seek a second opinion. I saw a Dr. lunsford on an AN site. He is also part of UPMC. I would appreciate any advice. Thank you.

PS. MY symptoms were and still are, tintinis, fullness and hearing loss.  I thought I might have wax in my ear when I made the appt. to see Dr. Hirsh.  totally not prepare for that diagnosis.
Title: Re: Wife just diagnosed with 5x10x5mm AN yesterday
Post by: ANSydney on July 30, 2017, 04:24:06 am
Welcome to the club that nobody wants to be a member of, but everyone is friendly. At age 78 years with a 1.0x0.4x0.4 cm tumor and only hearing loss, tinnitus and fullness, you're best bet is to get an MRI every 6 months and see if it growing. How long have you had the symptoms?
Title: Re: Wife just diagnosed with 5x10x5mm AN yesterday
Post by: Geminigirl529 on July 31, 2017, 06:18:53 am
Second MRI on thursday, August 3rd..  My symptoms started last winter tintinis in left ear and fullness, like water and cant get it out. tThought it might be wax build up.  Had my first MRI on Feb. 28th.  Diagnosed on march 5th. On wait and watch.I have a hearing loss sometimes I feel a little strange.  Very nervous about the upcoming MRI. 
Title: Re: Wife just diagnosed with 5x10x5mm AN yesterday
Post by: ANSydney on July 31, 2017, 06:02:55 pm
Best wishes with your MRI on August 3. We'd be all interested in next MRI result. Remember the majority of acoustic neuromas don't grow (and even less need treatment).
Title: Re: Wife just diagnosed with 5x10x5mm AN yesterday
Post by: GattoMarte on August 01, 2017, 09:16:57 am
Hi Geminigirl. Best wishes from me as well on your MRI on August 3.
Title: Re: Wife just diagnosed with 5x10x5mm AN yesterday
Post by: ANSydney on November 02, 2017, 05:10:19 pm
Geminigirl, how did your MRI in August go?
Title: Re: Wife just diagnosed with 5x10x5mm AN yesterday
Post by: GattoMarte on January 12, 2018, 10:42:46 am
**** UPDATE **** January 12, 2018 ****

Wifey had her third MRI on January 2. We sent the Image CD to Keck and heard from them yesterday. The doctor said that the Acoustic Neuroma was basically "stable" having grown about 1 millimeter (1/32") in one dimension only since July 2016.

We will be seeing the doctor in the office end of February, so, I'll update here after that.

Hope you all are doing OK and getting through these things well.
Title: Re: Wife just diagnosed with 5x10x5mm AN yesterday
Post by: Joan Mingo on January 13, 2018, 07:15:33 pm
Hi GattoMarte
Glad no further growth. I was just diagnosed Dec 2016. Have had 2 MRIs and no growth. Have very little hearing in left ear and only 12% word recognition. Also have tinnitus in AN ear. Glad good news for your wife. I amon Watch and Wait also.
Just wondering what type of hearing aid she has. I am going to try one out next week but clinic suggested one for unaffected ear as there is slight hearing loss in that ear and they thought extra hesring would help overall. May possibly try out the receiver in left, going to right to help "hearing" from that side. Will see if helps at all. If didn't have AN, right ear wouldn't bebad enough to waarant a hearing aid.

Any thoughts or advice re hearing aids. Anyone?

Thank you for any response receivex.

Nova Scotia, Canada - Watch and Wait
Title: Re: Wife just diagnosed with 5x10x5mm AN yesterday
Post by: GattoMarte on January 29, 2018, 10:38:30 am
Hi GattoMarte
Glad no further growth. I was just diagnosed Dec 2016. Have had 2 MRIs and no growth. Have very little hearing in left ear and only 12% word recognition. Also have tinnitus in AN ear. Glad good news for your wife. I amon Watch and Wait also.
Just wondering what type of hearing aid she has. I am going to try one out next week but clinic suggested one for unaffected ear as there is slight hearing loss in that ear and they thought extra hesring would help overall. May possibly try out the receiver in left, going to right to help "hearing" from that side. Will see if helps at all. If didn't have AN, right ear wouldn't bebad enough to waarant a hearing aid.

Any thoughts or advice re hearing aids. Anyone?

Thank you for any response receivex.

Nova Scotia, Canada - Watch and Wait

Hi Joan. Glad the AN is showing no growth. As far as her hearing aid, we went to a local Hearing Aid Center for assistance. This Center did the original hearing test back in 2015 at the hospital.

Her single hearing aid was $1400.00US. This includes lifetime service and adjustment at the center. She is wearing in her good ear and it has been a very big help in improving her hearing. The hearing aid itself has a little round battery and a clear plastic dome to cover the speaker. Honestly, a cheaper aid might work just as well, I really don't know, since we had a little extra money we opted for one that is a bit higher priced but includes good service benefits.

If I remember correctly she has about 50% hearing loss in her good ear and 70% loss in the AN ear. A second hearing aid for the AN ear is an option that we may use in the future if necessary. So far the single aid in her good ear seems to be doing a good enough job.

Title: Re: Wife just diagnosed with 5x10x5mm AN yesterday
Post by: GattoMarte on March 06, 2018, 11:06:31 am
****UPDATE****March 6, 2018****

We went to Keck/USC here in Los Angeles for a sit down with our doctor and all looks to be good at this time. A hearing test will be done next December for latest results.

So, unless my wife starts having bouts of dizziness, tinnitis or anything else out of the ordinary, we will have her fourth MRI done next January.

Good Luck all!!!!
Title: Re: Wife just diagnosed with 5x10x5mm AN yesterday
Post by: notaclone13 on March 06, 2018, 04:12:51 pm
Thanks so much for the updates. They are greatly appreciated by others in AN limbo,  also known as Watch and Wait. Glad your wife has not had significant growth and has  minimal symptoms. Hope she continues to have this kind of result. It gives the rest of us hope.
Title: Re: Wife just diagnosed with 5x10x5mm AN yesterday
Post by: GattoMarte on March 06, 2018, 05:52:38 pm
Thanks so much for the updates. They are greatly appreciated by others in AN limbo,  also known as Watch and Wait. Glad your wife has not had significant growth and has  minimal symptoms. Hope she continues to have this kind of result. It gives the rest of us hope.

Glad to be of help. Best Wishes to All of Us.
Title: Re: Wife just diagnosed with 5x10x5mm AN yesterday
Post by: PurrfectHappiness on June 28, 2018, 10:11:36 am
Hi, GattoMarte:

I am a Newbie (3 mos now diagnosed with 9x5x5mm left ear).

After numerous Dr consultations and tests, I have also decided to “W&W”. 

I wanted to share these two very enlightening and informative articles that you and your wife may find very educational.

I have decided to take daily baby aspirin (after discussing with my dr) while in “W&W” mode.

We are so fortunate to have the ANA for moral support and information.  It has helped me tremendously.

I wish you and your wife the very best on your AN journey.   

~Kind Regards to all

https://www.tinnitusformula.com/library/aspirin-slows-acoustic-neuroma-growth/

https://www.dizziness-and-balance.com/disorders/tumors/acoustic_neuroma/treatment.html






Title: Re: Wife just diagnosed with 5x10x5mm AN yesterday
Post by: GattoMarte on June 28, 2018, 05:44:13 pm
Hi, GattoMarte:

I am a Newbie (3 mos now diagnosed with 9x5x5mm left ear).

After numerous Dr consultations and tests, I have also decided to “W&W”. 

I wanted to share these two very enlightening and informative articles that you and your wife may find very educational.

I have decided to take daily baby aspirin (after discussing with my dr) while in “W&W” mode.

We are so fortunate to have the ANA for moral support and information.  It has helped me tremendously.

I wish you and your wife the very best on your AN journey.   

~Kind Regards to all

https://www.tinnitusformula.com/library/aspirin-slows-acoustic-neuroma-growth/

https://www.dizziness-and-balance.com/disorders/tumors/acoustic_neuroma/treatment.html

Thank You. Best Wishes to All of Us here at ANA.
Title: Re: Wife just diagnosed with 5x10x5mm AN yesterday
Post by: GattoMarte on February 25, 2019, 10:46:02 am
***UPDATE - February 25, 2019***

Wifey had 4th MRI about a month ago. Our surgeon at Keck USC reviewed last Friday. Slight growth of about 1mm of all three dimensions but surgeon's review with us said this is normal and not to be concerned at this time. So, 5th MRI will be done end of this year unless, of course, she develops ringing in ear, loss of balance, further loss of hearing.

So, hope this information helps. Best wishes to all you good people.