ANA Discussion Forum

General Category => NF2 => Topic started by: santel on June 15, 2014, 01:03:49 am

Title: New tumour - not sure what
Post by: santel on June 15, 2014, 01:03:49 am

I'm returning after a few years of forgetting I had NF2 - my MRI this week shows tumour growth at a sight on the fat graft from translab surgery in 2006. 
New growth is from what was previously identified as 'plaque' and is 21mm x 6mm x 5mm, abutting the trigeminal nerve but doesn't seem to be attached to any nerve.
When my 1st AN was removed NF2 wasn't considered but histology showed I had it and a 2nd AN on the other side started soon after.  All steady until now.
2nd AN has increased in size from 2mm to 5mm.
Can anyone hazard a guess as to what type of tumour this would be that is growing on the 'margin of the fat graft'?

I've yet to talk with my Dr.

Title: Re: New tumour - not sure what
Post by: Susan A on September 09, 2014, 06:23:43 am

Santel,
did you ever get an answer from your doctor about this new tumor?