ANA Discussion Forum

Post-Treatment => Eye Issues => Topic started by: Jill Marie on September 19, 2013, 11:09:45 pm

Title: Very, Very, Very Happy that I have the Scleral Lens!
Post by: Jill Marie on September 19, 2013, 11:09:45 pm
Hi fellow Scleral Lens users and those struggling with eye issues!  Just want to let you know that the lens is working great for me, so well in fact that I haven't had time to post.  Went camping Labor Day weekend and again last weekend and head out again in the morning.  We're camping in a place that has lots of poplar trees to block the wind, in the past I wouldn't have camped there because the wind would be to hard on my eye, now I don't care!  We have been hiking quite a bit and it is so wonderful not to have to stop and put eye ointment in my eye all the time, I get to just keep on hiking and enjoying the view!  I've been spending more money lately on things I want to buy because I don't have to spend so much money buying eye ointment. 

This is our last camping trip for the year so soon I will sit down and reply to others posts about the lens.  I'm hoping that those of us that have the scleral lens can help those that need the lens get one.  The lens can help anyone with a dry eye get comfort, it takes a bit of getting use to but it's worth it.  My lens only cost me $250 others cost more, our doctors are working with us to get the Insurance companies to pay for them.  It will take a bit for the Insurance companies to recognize the lens as a medical necessary not just a contact lens you want because you don't like glasses.  We get to be a part of history by paving the way for future ANer's that need dry eye relief.  Hopefully soon it will be common practice for Insurance companies to cover the lens and for AN doctors and eye doctors to steer dry eye patients towards the lens instead of making them suffer through the pain. 

Please feel free to ask questions about the lens!  Jill Marie 8)
Title: Re: Very, Very, Very Happy that I have the Scleral Lens!
Post by: nancyann on September 28, 2013, 05:54:41 am
The first thing I told my doc is that I LOVE the wind in my face!  My insurance company finally agreed the lens is medically necessary - they paid their 'maximum amount allowed for lens' - approx. $350.00  Not much but I'll take it.
Now the bad news: I have a crack in my lens :( !!  I accidentally dropped it while taking it out (& I'm leaving for Italy Oct. 5th!).  I just emailed my doc to see if I can get another lens by Oct. 4th without the Rx since I still wear glasses.  Lesson to me:  always have a towel on the surface in case the lens drops!  I am still wearing it - the saline only stays about 1/2 full in the lens...
Title: Re: Very, Very, Very Happy that I have the Scleral Lens!
Post by: Jill Marie on September 29, 2013, 10:46:18 pm
Hi Nancyann,

So sorry to hear that you cracked your lens, the timing couldn't be worse could it!  Hopefully the doctor can get you another lens before your trip to Italy.  I know what a difference the lens will make so you can really enjoy yourself, you deserve it!  If he can't get another scleral lens for you I suggest that you try and get a lens like I have.  Yes, I call my lens a scleral lens but it really isn't.  It's a gas permeable lens and they come in different sizes, mine is smaller than your scleral lens but it works great and would only cost you about $250.  My eye doctor gave me a loaner lens the first day I walked into her office so hopefully your eye doctor could do the same for you.  It would make a good back up lens for the future as well.  I plan on getting a back up lens myself.  I have dropped my lens a couple of times but luckily it didn't break. 

As for the Insurance, glad they covered it, wish they had paid more but at least it's a start.  I still haven't paid for my lens I got back in January.  The insurance company covered it but put it under my deductible because the Optical Department isn't on the preferred provider list.  There aren't any Optical companies on the preferred list because the Insurance doesn't cover glasses or contact lenses.  My eye doctor is trying to get the lens billed through her office but the process is slow. 

Please let me know how it goes with trying to get a new lens and please try to get a different lens if they can't get you the one you need you will be surprised at how well it works and how easy it is to work with. 

Good luck, Jill  :)
Title: Re: Very, Very, Very Happy that I have the Scleral Lens!
Post by: nancyann on October 01, 2013, 06:33:53 pm
Hi Jill: thanks for the pm - I just wrote back.  Thank God I can still wear the lens - it fills about 1/2 up w/ saline, so I'm good to go.
Will ask my doc about your scleral lens when I get back from vacation.
Just the thought of possibly going back to lubricant sent chills up my spine!  I can't imagine life without the lens!
Always good thoughts, Nancy
Title: Re: Very, Very, Very Happy that I have the Scleral Lens!
Post by: saralynn143 on October 01, 2013, 07:13:19 pm
Yikes. I am so sorry about your lens, Nancy. I have dropped mine in the sink before, but fortunately without damage. I think my eye doctor would let me have the looser lens for a backup if it became necessary, though.

Is the crack in the middle or along the edge of your lens? I am having a hard time figuring out why it would only fill halfway.

This also reminds me that I need to contact my insurance company to ensure that my eye doctor has submitted my medical record for my appeal.

Take care, guys.
Sara
Title: Re: Very, Very, Very Happy that I have the Scleral Lens!
Post by: nancyann on October 02, 2013, 05:43:50 pm
I can't see the crack, but depending on how I hold it, it fills only 1/2 way, or all the way, so it must be somewhere along the upper edge.  Must be like a hairline since I can't see it when I hold it up to a light.  Thank God I can still wear it.  Good luck w/ the insurance, keep at it.  I only got back a total of a little over $500. - $200. of which was deductible for out of network doc.
Always good thoughts, Nancy
Title: Re: Very, Very, Very Happy that I have the Scleral Lens!
Post by: ginsue on October 09, 2013, 12:34:12 pm
I just got mine yesterday. Wow! I have a RX in mine. Not only am I trying to get used to the lens  but I am also getting used to actually seeing out of my right eye.  I haven't seen out of that eye clearly in almost 22 years.  See I have worn glasses that both sides are made with the lenses for my left eye vision.  Since the tumor removal my right eye changed shape and now requires a very very thick lens and my left eye has a thin lens. I never got used to the vision change so my brain ignored that vision.  So now I have a double whammy.  I will keep you update.
Oh, my insurance covered mine under my medical but had to go before the board.  The eye doctor didn't submit it at first telling me that insurance wouldn't cover. After I cleared up that I had pre-approved it then it took them three times to get their codes right.  They just aren't used to filing medical claim since there is separate eye insurance or no coverage at all.
Title: Re: Very, Very, Very Happy that I have the Scleral Lens!
Post by: Jill Marie on October 13, 2013, 11:23:03 pm
I'm really glad to hear that you got your lens.  It's amazing how different we all are in what has happened to us.  I sometimes wonder if I'm doing something wrong as others don't have the issues I have then I find that I don't have the same issues you and others have.  Yes, it takes some getting use to but in the end I'm hoping you find it to be worth the effort.  I still use some ointment so my vision isn't clear. 

Please let us know how you are doing, ask us questions and hopefully we can answer them or at least give you some assistance.  We are here for moral support as well.  Still can't believe how lucky I am to have the lens!  Looking forward to hearing how it's going!  Jill :)
Title: Re: Very, Very, Very Happy that I have the Scleral Lens!
Post by: ginsue on October 15, 2013, 11:03:21 pm
Hi Jill,
Things are going ok, not perfect.  I'm use to my vision with the corrective RX lens which is great. I still use ointment too at night when I take out the lens before bed. The insertion and removal are going better with fewer attempts . My problem is the mucus that forms on my lens, it doesn't clump but makes my lens 
 cloudy about two or three hours after putting it in.  The only thing that seems to work is taking it out and cleaning it then putting it back in. :-\  I went back to the eye doctor this Monday which made it one week wearing the lens and he told me this is a common problem wearers have.  I see him in another month to see how things are going.  I wish I could clean it without taking it out,  I've tried rinsing it with saline without results.  I'm still glad to have it though it will take getting used to.

Any input will be greatly appreciated,  Sue
Title: Re: Very, Very, Very Happy that I have the Scleral Lens!
Post by: saralynn143 on October 16, 2013, 01:10:11 pm
Sue, what kind of drops are you using to fill your lens? I have found that sterile saline marketed for nebulizer use, which has no lubricant or buffers, works best for me. The best price I have found is at amazon (http://www.amazon.com/5ml-Sterile-Saline-Solution-Quantity/dp/B0070P30EQ/ref=wl_it_dp_o_pC_nS_nC?ie=UTF8&colid=35ZHW3DI0OFU4&coliid=I16GKDK5A579MC).

When I was still using ointment at night the sceral clouded up and slipped around on my eye. I do better now that I have switched to gel drops at night in combination with a Quartz eye shield (http://www.dryeyeshop.com/quartz-p346.aspx).
Title: Re: Very, Very, Very Happy that I have the Scleral Lens!
Post by: ginsue on October 16, 2013, 08:18:32 pm
Hi Saralynn
I am using preservative free saline Unisol 4™  ingredients are sodium chloride, boric acid and sodium borate that's it.  It is hard to find.  I have only found it at Walgreen's.  It comes in a box with three 4 ounce bottles and sells for $11. I'm using sooth by Bausch & Lomb at night.  After my shower in the morning I wash my eye out with the p/f saline before putting my scleral lens in.  I will hold back the ointment tonight and just use my rewetting drops.  My gold weight works well in closing my eye at night so I'll give this a go and see if my cloudiness improves tomorrow.  If so I may need to invest in some goggles.

I'll try this for a couple days then keep posting until I get this figured out.  My SoundBite is more user friendly.  LOL One must keep up with technology to try to ease the side effects of the AN.
 

Thanks for the advise, Sue




Title: Re: Very, Very, Very Happy that I have the Scleral Lens!
Post by: ginsue on October 16, 2013, 08:30:41 pm
Decided to vaseline and saran wrap and make my own moisture chamber.  Let's see if it is on when I wake !?!
Title: Re: Very, Very, Very Happy that I have the Scleral Lens!
Post by: ginsue on October 21, 2013, 10:09:37 pm
I am doing great. Not using ointment makes a BIG difference.  I have been using Vaseline around my eye and putting Saran wrap on the eye to keep in moisture.  I will invest in a pair of goggles to save time.  I am looking for only one eye to be covered almost like a patch, wish me luck with that.  I have seen it but where !?!?
Title: Re: Very, Very, Very Happy that I have the Scleral Lens!
Post by: saralynn143 on October 22, 2013, 11:08:17 am
Sue - very last one on the page: http://www.suppleyes.net/EYE_PADS.html

Another option: https://www.good-lite.com/Results.cfm?keywords=moisture+chamber&Submit=Search
Title: Re: Very, Very, Very Happy that I have the Scleral Lens!
Post by: ginsue on October 22, 2013, 02:02:36 pm
Oh thank you Saralynn. This saved me sooooo much time.  :)
Title: Re: Very, Very, Very Happy that I have the Scleral Lens!
Post by: Lloyd-S on January 04, 2014, 12:09:17 pm
Thanks to all of you members who have posted about a Scleral lens option for dry eye. Jill Marie you are correct and thoughtful to help those of us who are considering a Scleral lens. A Special THANK YOU to Sara Lynn for all of her detailed info and guidance. The links to your web blogs of your personal experience are an incredibly valuable reference for people like me. Well done!!

A bit about my experience. In 1990, I had 5cm AN tumor surgically removed at age 24. All along, I have used B&L Duolube eye ointment 24/7. I tolerated the extreme blurred vision in my left eye for sake of getting on with my life with the least hassle. I'm fairly athletic. I wore a contac lens in my "good" right eye. But in my early 40's started to develop significant dryness in my "good" right eye, severely limiting my use of contact lens. Was diagnosed with incomplete eyelid closure of my "good" R eye and meibomian gland dysfunction. Having been using Restasis drops in R. eye for ~ 6 months. At night, now use ointment in both eyes. Also loss of my eye's natural ability to change focus in near field for reading/computer has complicated matters. Have tried progressive and bi-focal glasses but with single eye vision these have not worked well for me. Yesterday, I placed an order for the Quartz silicon eye goggles, for sleep use, recommended by Sara.

I have my first Scleral lens fitting/trial appointment, in a few days, on Jan 7, 2014.  I'm hopeful...
Title: Re: Very, Very, Very Happy that I have the Scleral Lens!
Post by: Jill Marie on January 06, 2014, 11:32:13 pm
Hi Lloyd

Welcome to the forum!  You have every reason to be hopeful at least for your left eye, not sure what the lens will do for you right eye.  Will of course help with the dryness but I don't know about the focus issues. 

I don't know what all you have read about the Scleral lens or about my eye & lens issues so I will recap a bit.  I had my surgery in 1992 at the age of 36, so have been at this a long time as well.  I was to the point where I wasn't sure if I could keep my job much longer because of the pain in my eye from the dryness, the bright computer screens and sunlight were getting really hard to cope with, not to mention the constant use of the eye ointment. 

I don't actually have a Scleral lens, my lens is a gas permeable lens which is like the Scleral but smaller.  My lens cost me $250 and I was fitted for it the first day I saw the eye doctor.  She tried a couple of other lens sizes on me just to see what worked best but I always ended up with the first one she tried on me.  I had a corneal ulcer a few months after I got the lens and couldn't use the lens for about a month while it healed.  I wanted the lens back so badly, it really made me appreciate the lens even more.  A couple of months after that my lens broke in half and I got another one, took a couple of days to get use to it but all is good.  I still use eye ointment during the day but very little compared to before I had the lens and even less then when I first started using the lens.  Perhaps one day I will do as Sara Lynn does and not use ointment during the day at all.  We are all different and have to find what works best for us. 

I could write paragraphs on how much this lens has changed my life, from saving me thousands of dollars a year to improving my attitude and out look for the future, it was really getting hard to be happy! 

Please feel free to ask questions and post about your progress with getting the lens.  It makes me sad to think there are so many people out there that could be helped by this lens and they like I was a year ago had no idea it existed.  We will keep posting things now and then about the lens so that new posters like you will hopefully run across the info. so they too can get a lens.   Also my eye doctor asked me to go back to my old eye doctor to let him see how great my eye is doing so he will help spread the word to his patients and other eye doctors. 

Good luck tomorrow, look forward to hearing about your appointment  Jill Marie :)
Title: Re: Very, Very, Very Happy that I have the Scleral Lens!
Post by: Karen on January 16, 2014, 03:26:05 pm
I don't have feeling in my left eye and also have prizims inmy glasses because of double vision.  Has anybody with thoses problems tried a new contact like that?
Title: Re: Very, Very, Very Happy that I have the Scleral Lens!
Post by: Lloyd-S on January 19, 2014, 06:33:43 pm
Jill Marie,
Thank you for your helpful overview of your situation. Trial of scleral lens for me has been delayed until May 2014, due to special circumstances with the Ottawa hospital clinic staff, where I am being seen. I will be fitted with Maxim scleral lens, made by Accu Lens, in both eyes. This is the only brand that my hospital carries. Cost will be $700 per lens ($1400 total). If after 6 months I'm not satisfied I can receive a $1000 refund. I'm looking forward to trying them and I will report back then.
- Lloyd
Title: Re: Very, Very, Very Happy that I have the Scleral Lens!
Post by: Cheryl C on April 16, 2014, 11:02:32 am
Karen,
I was just going to post as I am into my second week with the scleral lens and love it!  A BIG thank you to Saralynn for all her information that led me to the right doctor.  I have very limited feeling in my eye and that was a concern of mine.  The upside is I haven't felt the ill effects of a dry eye, but the downside is I can't feel the effects of a dry eye ???.  I've been able to do away with the drops except the times where I choose to not wear the lens.  As a precaution, I do still cover my eye at night (with Glad Cling Wrap).

The biggest challenge I've had with the scleral lens is positioning it for insertion and centering it in my eye.  Sometimes it goes in the first time, other times it takes many tries.  I'm getting more comfortable about doing it, though.  Even though I don't have feeling in the eye, it is an immediate relief when I have the lens in.  I can't really explain it.  My eye has been clearer than it ever has been, and my vision has been helped from 20/80 to 20/30 in that eye.  I do have haziness at times, but the vision is still sharper than it was, if that makes sense - sharper, not blurry, even through a haze.

I have a question myself to throw out:  You who have had a weight removed after having a scleral lens, how long does it take your eye to heal from the removal and where you are able to wear the lens again?  Hopefully, removal of the weight will be my next step.

Karen, hope this helped.

Cheryl
Title: Re: Very, Very, Very Happy that I have the Scleral Lens!
Post by: saralynn143 on April 16, 2014, 07:27:07 pm
Karen, I don't know about your exact condition, but scleral lenses help return vision to many people who can't get clear vision with other types of correction. I think it's worth a consult.

Cheryl C, about insertion. If you haven't already seen this video, please watch it: xhttp://www.youtube.com/watch?v=P0xO9bZsTnU - It does take practice, but the easiest way I have found to insert a scleral lens is to use an inserter (the hollow kind) and a hand mirror (placed on the bathroom countertop). I thoroughly rinse the lens, center it on the inserter and completely fill it with sterile saline. Here's where it gets a bit tricky: your face has to be parallel to the mirror. Once you think it is parallel, go ahead and tuck your chin in just a bit further. Hold your eyelids as wide apart as you can using hand on the same side. I use my thumb to hold the lower lid down and the index finger to hold the upper lid up. Pick up the lens inserter in your other hand. Rotate your elbow away from your body so that it is easier to see the inserter reflected in the mirror. Close the other eye and position the lens inserter until you can see the mirror through the hole in the center. Carefully bring the inserter toward your eye until the lens is in place. I find that when that happens, what is reflected in the mirror comes into extremely sharp focus. Blink hard a couple of times to center the lens and you're done!

I don't know about recovery time for removing an implant. I don't feel ready to do that yet, and hadn't even considered that there would be a period where I couldn't wear the lens.
Title: Re: Very, Very, Very Happy that I have the Scleral Lens!
Post by: Cheryl C on April 17, 2014, 08:23:46 am
Saralynn,
Thank you for those tips.  I had seen the video; also use the inserter and mirror, but the centering and method of doing it makes perfect sense.  I'm going to try that right now! (I mistakenly said earlier that I use Cling Wrap ... in case anyone wants to try it, it's the Glad Press N' Seal that I use.  It works wonderfully as a moisture chamber).
Blessed Easter to all.
Cheryl 
Title: Re: Very, Very, Very Happy that I have the Scleral Lens!
Post by: ginsue on May 01, 2014, 05:35:40 pm
Cheryl,   I wear a scleral lens and I have no intension of ever removing my gold weight from my eye.  If you did, how would your eye close at night?  It helps retain the moisture when you are lying down.  My eyes closes almost completely at night.   Sue
Title: Re: Very, Very, Very Happy that I have the Scleral Lens!
Post by: saralynn143 on May 01, 2014, 05:41:37 pm
Sue, I feel the same way. Unless my eyelid starts to sag during the day I'm keeping the weight.
Title: Re: Very, Very, Very Happy that I have the Scleral Lens!
Post by: Cheryl C on May 02, 2014, 08:37:20 am
Ginsue,
I have had increasing nerve regeneration.  Eighteen months ago my eye surgeon said he could remove the weight but would prefer I left it in, but that it was up to me - he would want to watch me very closely.  I had a good blink and closure, but not full closure at all times.  I chose to leave it in.  My eye has slowly continued to improve and with my excitement over the success of the scleral lens, I now thought I could consider getting the weight removed. Of course I would defer to my surgeon's opinion. I also look forward to the day of having normal periphal vision in that eye, especially when driving. 
- Cheryl
Title: Re: Very, Very, Very Happy that I have the Scleral Lens!
Post by: saralynn143 on May 02, 2014, 12:00:18 pm
What is wrong with your peripheral vision, Cheryl? I have never had a problem with mine. Strange how different our experiences can be.
Title: Re: Very, Very, Very Happy that I have the Scleral Lens!
Post by: Cheryl C on May 02, 2014, 03:56:43 pm
I guess I really didn't say, did I?  Sorry, it's from the partial tarsorrhaphy.  Even though my eye isn't stitched that much, it sure makes a difference visually.
Title: Re: Very, Very, Very Happy that I have the Scleral Lens!
Post by: ginsue on May 02, 2014, 11:28:44 pm
Cheryl,  I do not have a tarsorrhaphy any more.  It was undone when I had my weight put in.  I have 100% of facial paralysis on the right side and without the weight my eye would be wide open and appear much larger than the left eye.  Symmetry is what I am after, I just want to look as normal as I can. Before I had the lens I also had no peripheral vision.  My AN was so large that it changed the vision in my eye to +4.5 and my left eye remained  +1 so you can just imagine what glassed looked like, one thin lens and one coke bottle lens, so I opted not to have a corrective lens in my glasses since I couldn't see out of it anyway due to the ointment.  With my lens I can not even describe what I have been missing all these years, it has +4.5 correction in it and no sting of the dryness.  It's a win win for me.  I too would have never known about this until I visited this site.  Life is good.
Title: Re: Very, Very, Very Happy that I have the Scleral Lens!
Post by: Cheryl C on May 04, 2014, 02:43:00 pm
Sue, what greatness that your vision is so much better!  It just goes to show that we can always be hopeful for positive changes in our situations.  I think Saralynn had said she noticed she had more energy from not straining with the poor vision, and I'm about to think the same thing.  Don't think I realized how much concentration it was taking with the poor vision.  I seem to have more energy, too.  Life is good, indeed.

I had originally asked the doctor if he could just do away with the tarsorrhaphy and leave the weight, (for peripheral vision and - I now admit - for the facial symmetry, but he didn't think it would help unless the weight was removed, too.  I go later this month to see him, so I'm really curious to see what his take on things are now, especially with the moisture provided with the lens.

Title: Re: Very, Very, Very Happy that I have the Scleral Lens!
Post by: saralynn143 on May 04, 2014, 09:04:33 pm
Cheryl, it doesn't seem like it would do any harm to try reversing the tarsorrhaphy but leave the weight. I mean, the weight could always come out later or the stitches put back in place if need be.
Title: Re: Very, Very, Very Happy that I have the Scleral Lens!
Post by: Heresrose on May 05, 2014, 08:04:26 pm
Thank you all for bringing this information to light. I had my surgery in 2011 and reading about it for the first time. Today I spoke with my eye doctor to inquire about it and he said he'd look into it and get back to me.

My eye does not blink all the way but I can close my eye by winking: I have severe synkinesis.  My eye does close at night but during the day it is very dry and no amount eye drops help. Hoping this can work for me.

Rose
Title: Re: Very, Very, Very Happy that I have the Scleral Lens!
Post by: ginsue on May 06, 2014, 02:03:59 pm
Rose I am glad you found this.  I too heard about it here too.  Life would not be the same without my lens.  I've worn it since 19/2013.  Please seek out a complex contact specialist in your area.  I just wouldn't trust anybody since the fit is what makes it successful.  My doctor is a specialist in this field and once he measured me it fit like a glove, no tweaking what so ever.  Learn what you can before you go, you may know more that the doctor on the subject so be informed. Saralynn has done a lot of research so take advantage of her work.
Good Luck, Sue
Title: Re: Very, Very, Very Happy that I have the Scleral Lens!
Post by: Cheryl C on May 27, 2014, 09:16:07 am
Sara Lynn,
Had my appointment with the eye surgeon Thursday and he agreed to reverse the tarsorrhaphy while leaving the weight in.  I immediately felt "freed" after the reversal and very pleased with the result.  He was immediately impressed with the scleral lens and wanted all the info as he had several other patients in mind that could benefit from it.  Thanks again for all your wisdom and suggestions.   Reading the forum sure connects me where I don't feel so alone in all the issues I find myself dealing with.  Have a great day!

Cheryl
Title: Re: Very, Very, Very Happy that I have the Scleral Lens!
Post by: saralynn143 on May 27, 2014, 01:52:02 pm
That is fabulous news, Cheryl! I would like for everyone who can possibly be helped by a scleral lens to get one.
Title: Re: Very, Very, Very Happy that I have the Scleral Lens!
Post by: Heresrose on June 06, 2014, 06:41:31 pm
I need a recommendation for a doctor in Los Angeles who fits scleral lens.

Thanks,

Rose
Title: Re: Very, Very, Very Happy that I have the Scleral Lens!
Post by: lorigasper on June 07, 2014, 12:15:29 pm
Hello, all -

Thank you so much for the insight you've shared here.  I had my AN removed a year ago, with a tarsorrhaphy two weeks later.  I'm hoping to find a way to use my eye again over the next weeks.  The scleral lenses sound amazing!  You may be able to give me some thoughts regarding the following questions.....
1.  About opening my eye, what length of recuperation should I expect?
2.  Since my eye tears very little, I'm assuming a scleral lens will be indicated to keep it moist (especially if my blink is inefficient).  How long will I need to wait to schedule a fitting?  How long does it usually take to get the lens?  Will they give me a temporary lens to protect my eye while I'm waiting?
3.  Have you been successful with a weight AND a lens?  Might it be wiser to use Blinkeze until I see how my eye responds to the lens?  Do you think it would be best to put in the weight at the beginning of the process instead? 
4.  I see my doc in about a week.  Is there anything else you think I should consider/read before I see him?

Thanks in advance for any ideas you can share!
Lori
Title: Re: Very, Very, Very Happy that I have the Scleral Lens!
Post by: saralynn143 on June 08, 2014, 09:20:51 pm
Hi Lori. I'll answer the questions I am able to.
1. I did not have a tarsorrhaphy so I do not know about recovery.
2. Scleral lenses are great for keeping the eye moist. I imagine your eye doctor will let you know how long to wait. I would think just as soon as you have healed from the stitches being removed, since there is some manipulation of the eyelids during a scleral fitting. It took about a week for my lens to come in. I did not have a temporary lens but that may vary by doctor.
3. I have both an implanted eyelid weight and a scleral and get along great. I started out with a Blinkeze (long before my scleral) but was not very successful with it and in my opinion it would be difficult to work with. From my experience, I would recommend doing the eyelid implant right away, then get the scleral as soon as your surgeon gives you the go-ahead. I don't think you would be able to wear a scleral during recovery from the eyelid surgery and it's hard to go without once you are used to it.
4. I think you have a great start on your information gathering. I'm sure others will chime in soon as well.

Best wishes!
Sara
Title: Re: Very, Very, Very Happy that I have the Scleral Lens!
Post by: Cheryl C on June 09, 2014, 10:30:26 am
Hi, Lori!
Adding my 2-cents':
I just got a partial tarsorrhaphy reversal and the recovery time was almost nil. I was amazed that it was so easy and quick.  I used antibiotic drops for 7 days following and gently pulled the lid apart a couple of times a day for the next three days.  I was able to put the scleral lens in the next day.  I do have little to no feeling in my eye, so I don't know if others experienced tenderness after the reversal or not.  I have no tearing, and I have noticed since the reversal that I need to put drops and/or the lens in almost immediately after waking, where before I could wait an hour or so.

Like Saralynn, it took about a week for my lens to come in and I wasn't provided a temporary.

I had also tried a Blinkeze first, but not really successful; I later had the tarsorrhaphy and implanted weight. (Still have the weight and no problems with it and the lens.)  Maybe you could try the Blinkeze, since you have some tearing, but I would guess you would need to be watched closely to see that your cornea is not being damaged. 

Do you have to use any lubricating drops/ointment and do you cover your eye at night?  If you don't have to now because of your tarsorrhaphy, that is something you may have to implement if you get it reversed.

Good luck with everything! 
Cheryl
Title: Re: Very, Very, Very Happy that I have the Scleral Lens!
Post by: lorigasper on June 09, 2014, 04:34:56 pm
Cheryl and Sara -

Thanks so much for your prompt reply.  I so appreciate your information and encouragement.  I found out today that my current optometrist handles scleral lenses, so I won't likely have to add a new doctor to my list.  :)  His information about timing aligns with yours. 

After a year without using my eye, I'm excited to think I may get to use it again soon.  Thanks again!  I'll keep you posted.....

Lori
Title: Re: Very, Very, Very Happy that I have the Scleral Lens!
Post by: ginsue on June 11, 2014, 10:57:14 pm
I have a weight and wear a scleral lens, no problem. I have worn my lens for about 8 months. I had my tarsorrhaphy removed after 7 years when my weight was put in and had some facial reconstruction to my face.  Just FYI my eyelashes grew back in, yes I can still be a little vain can't I ?  Rose if you ever need plastic surgery to make symmetry go see my surgeon Dean Manus  www.drmanus.com  he is now in L.A. He is a very credited doctor, check his web site out.  He did my surgery in a suburb of Chicago and got my insurance to pay.  I wish he was still around here because I would have him do my eyes because of aging.  I won't let anybody else touch me.

Sue
Title: Re: Very, Very, Very Happy that I have the Scleral Lens!
Post by: Jill Marie on June 11, 2014, 11:41:35 pm
Hi Lori,

I didn't have a tarsorrhaphy or eyelid weight so I don't have any advice about them.  My lens isn't an actual scleral lens so I didn't have to go through all the measuring and waiting for a lens.  I went home with my gas permeable lens the same day I saw the eye doctor.  My eye doctor looked at my eye, did a quick measurement and said she thought a size 15 lens would work for me, it was hard to tell for me as my eye was so painful nothing felt ok.  She tried the 16 lens and I noticed it was more irritating.  We went back to the 15 and I took it home, wore it for 2 hours then increased the time I wore it by 2 hours tell I wore it from the time I got up tell I went to bed.  The actual scleral lens is bigger than my lens.  My eye doctor had never sized a lens before then let the patient leave with the lens.  She saw how bad my eye was and told me she didn't want me to wait another minute to feel the relief of the lens.  Over the next couple of months we tried different lenses but I always came back to the first lens she gave me.  I've had the lens since December of 2012, best Christmas present ever.  I had my surgery in 92 so I've been doing this for a long time, therefore my situation is different than yours. 

Please check with you eye doctor to see if the lens can be covered by your Insurance.  I really want to see the Insurance companies realize this is medically necessary so they will pay for the lenses.  I believe more people would try the lens if they knew it was covered by their insurance.  As I mentioned before I got my lens in Dec of 2012 and just paid for it today.  We got the Insurance company to agree that it was medically necessary but they put it on my deductible because the optical clinic was out of network as all optical clinics are because they don't cover contact lenses.  The optical clinic was working on re-billing the claim through my doctors office but the person that was suppose to be doing it quit and they got a new computer system so my claim fell threw the cracks.  They called me today and said they would only charge me $150 for the lens and would bill future lenses through the eye clinic I go to that is in my Insurance companies network.  I plan on getting a back up lens so I have one if this one breaks or is lost, will find out then if the Insurance company will cover it. 

Hope all goes well with your quest for the lens, feel free to ask more questions, we love to help!  Jill Marie
Title: Re: Very, Very, Very Happy that I have the Scleral Lens!
Post by: lorigasper on June 16, 2014, 03:35:53 pm
Thank you all, again, for this great information!

My tarsorrhaphy will be opened on 7/10!!  Woo hoo!  I'll talk with my eye doctor about a lens this afternoon so we can get going on it as soon as I'm healed enough from the weight surgery. 

I appreciate all your encouragement over these past few weeks.  What a learning curve it has been!  I'll keep you posted.....
Title: Re: Very, Very, Very Happy that I have the Scleral Lens!
Post by: lorigasper on July 11, 2014, 06:01:37 pm
Hi all -
I thought I'd let you know that I'm seeing the world with TWO eyes this week!  I'll pick up my lens on Monday and use it as soon as my swelling is down.  Until then, OTC moisture is working well enough.

Thanks again for the encouragement to open my eye and try this lens.  I'm thrilled personally, of course, but I'm also happy that my doctors will have another option to give other patients. You have been a great resource!
Title: Re: Very, Very, Very Happy that I have the Scleral Lens!
Post by: lorigasper on July 24, 2014, 03:34:47 pm
Hello, everyone!

I'm happy to report that I'm loving my lens and loving having my peripheral vision back!  This is a "first" for my doctors in treating AN patients and I know they'll be thrilled when I check in with them next week.  Thank you, again, for your words of wisdom and your willingness to share.  This had made a huge difference for me!  :)
Title: Re: Very, Very, Very Happy that I have the Scleral Lens!
Post by: Jill Marie on July 25, 2014, 12:22:13 am
Hi Lori,

Really glad to hear that you're loving your lens, it made a huge difference in my life as well!  Isn't it great to be a part of helping your doctors help others and you too of course.  The more we know, the more we tell other doctors and others on this board the more we help so many other people, not just AN members but others like us.  Now you have joined the club of people helping people! 

Thanks so much for keeping us posted on how you are doing, please continue to do so.  I know there are others on this board that could use this lens so the more we post the better the odds are that they read a post and will find out as you did that the lens can make a huge difference in their life!  Take Care, Jill :)