ANA Discussion Forum
Pre-Treatment Options => Pre-Treatment Options => Topic started by: theshawn65 on August 05, 2013, 07:41:17 am
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OK so I received my ANA packet a couple days ago and the list of people willing to talk, their tumor size, treatment chosen etc. is awesome.
However, it would be awesomer if it also included who treated them (Dr. Name) and where they were treated. Is there anywhere those who already have been treated have posted this type info?
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I have volunteered to be on the WTT list, not sure if I am yet.
Your question was something I recommended to be included as they do ask this info when filling out WTT volunteer info. However, the list is a lot shorter than I expected, so all in all I found it helpful. As on this forum, I found a common choice in doctor/treatment selections. More so in radiation as people less likely to do cross country travel for major surgery, but if people did travel, they usually went to House. I didn't find anyone that traveled far from home for surgery.
Also, most of the people on it are not active on the discussion board, so its a whole new resource. Most said they just don't go on the forum anymore as don't have the time. I will continue to post updates, but I don't often respond to individual posts as I just don't have time to weed through all the chatter. Theres many that do that you can PM with.
I found everyone I called very forthcoming with their time and personal experience and maintained contact with a few of them after my procedure.
You could try searching for them on this forum to see if they posted their detailed treatment info as I did.
The other disappointment to the WTT list was the percentage that did surgery compared with radiation and not as many with more recent treatment. ANA said they just don't get that many volunteers.
Feel free to PM me or email/call directly if I am on the list.
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Thanks for the input Robin.
As some on the list were from Ohio it would have been nice to see if any were treated by the Dr. Samy I consulted with in Cincinnati without having to call or email each one. :)