ANA Discussion Forum

Pre-Treatment Options => Pre-Treatment Options => Topic started by: CLB on February 05, 2013, 08:40:49 pm

Title: Proton Therapy - Your experience, thoughts.....
Post by: CLB on February 05, 2013, 08:40:49 pm

Hi All  :)
I was recently diagnosed with a 22 mm by 11 mm vistibular schwannoma, pressing on the brain stem.  I am researching types of treatment...one that is particularly appealing is "Proton Therapy" as it is non-invasive and supposed to cause minimal damage to surrounding tissue...am reaching out to see what others have to say and what thier experiences have been.

The main concern I have is that the research I've done so far indicates there may be swelling as long as 18 months or possibly longer after treatment...YIKES, swelling/brainstem...

Appreciate your feedback and you ALL are in my thoughts & prayers...

Carol

Title: Re: Proton Therapy - Your experience, thoughts.....
Post by: skipg on February 06, 2013, 04:02:25 pm

Read my Proton Journal under radiation. PM me if you like, I am available most anytime. The bottom line is I would do this again if I had too.
Skip

Title: Re: Proton Therapy - Your experience, thoughts.....
Post by: neetze1 on February 07, 2013, 03:10:53 am

Carol,
I too liked the Proton Therapy and was really hoping it would be an answer for me.  Unfortunately, I was told that my AN is too large  to just treat with Proton.  I have to have surgery.  It would have been my choice.  Skip was very helpful sharing his information with me!  I think this option should be considered and might be/should be used more often in the future.  Good luck to you!