ANA Discussion Forum
Treatment Options => Radiation / Radiosurgery => Topic started by: jsanders1379 on January 23, 2013, 11:15:49 am
-
I found these articles very thought-provoking, as I'm in the watch & wait mode right now...I'm wondering how you find these articles? Just search the NIH website or what? thanks again...
-
A search of the NIH website brought up several results for Gamma Knife. What you are looking for might be in there.
http://search2.google.cit.nih.gov/search?site=NIH_Master&client=NIHNEW_frontend&proxystylesheet=NIHNEW_frontend&output=xml_no_dtd&filter=0&getfields=*&proxyreload=1&q=gamma+knife&btnG.x=0&btnG.y=0
And then I found the two articles posted by PaulW in another thread:
http://www.anausa.org/smf/index.php?topic=18262.0;topicseen
-
I posted this 1st in radiation choices then saw this "GK preserving hearing better than WW". In my case I would have to agree.
I am 2 mos post proton treatment and happy and satisfied with my choice. See my proton journal under radiation.....but....I do have one big regret. I did all the research and went to the symposium in Cincy. I also consulted with a CK doctor here along with a neurosurgeon and a neurotologist. A total of 6 doctors from radiation and surgery backgrounds. They all agreed that WW was good for me since I had good hearing and my AN had not grown in 6 mos. Then from June of 2011 to July of 2012 my AN doubled in size and I lost serviceable hearing in my AN ear. Many other symptoms came on and my tumor needed to be dealt with. It is easy to look back and 2nd guess, but I wish I would have gone with GK immediately instead of ww for 18 mos. But who would have thought. After all, I did my research and scoured this forum and had consensus from the experts. I rolled the dice and came up short. Life is a matter of choices and maybe my experience will help someone else. Still a good life and much to be thankful for.
-
Thanks for your story-seems whenever I throw the dice (medically),I always lose...which makes the decision that much harder...