ANA Discussion Forum
Post-Treatment => Eye Issues => Topic started by: PamJ on December 07, 2012, 01:47:53 pm
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I have been on this site for a few months now and read everything but haven't seen anyone with the same problem as me. I had my AN out 20 months ago and had double vision. Drs decided to inject with botox because of facial palsy I couldn't blink. After 3 months botox wore off and still double vision. The next step was to have my eye partially stitched down which I had for over a year, when eye opened still double vision and eye has dropped. Has anyone else had this problem for as long as me. I see the eye surgeon in January.
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i HAD ABOUT THE SAME THING with double vision. After they opened my eye i still had double vision. I ended up having 3eye muscle surgeries done to straighten my eye. Mine was off sideways and up and down. Now I have a small prizm in myglasses and no double vision.
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Hi Karen thanks for your reply. I've had different prisms (stick-on ones) on glasses to see if it would help before making glasses with prisms built in but didn't work. I notice when I'm looking at something say the TV I can see the double vision get worse as if my eye is slowly dropping down more. I've been told I'll have to have the muscles stitched. Was the op very gruesome I've had so many ops but still get nervous at the thought of more.
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The eye muscle surgery was nothing at all. I don't have any feeling in that cornea so that helped but it wasn't bad at all .I had 3 of them done!!! any other questions?
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Hi Karen I'm seeing the eye surgeon on 10th January and am counting the days to see him I have been told it will be another op but as long as it gets rid of the double vision I don't mind. It's good to hear the op wasn't that bad for you. Did you have it done under local or general and did they lift your eyelid and eyebrow at the same time. Sorry for all the questions. Did you have it done in the UK
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I had mine done in the united States. I was asleep when they did mine. I never ha my eyebrow lifted. Where do you live?
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Someone on the Forum had trouble with double vision for months. I searched but can't find her posts; it was about 4 or 5 years ago.
Jim Scott or any of the other "old-timers" remember who I'm talking about??
Jan
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Not the thread I was looking for, but this one might be helpful http://www.anausa.org/smf/index.php?topic=3754.msg40349#msg40349
Just found the Forumite I was looking for - calimama (aka Trish) from Canada. Trish had double vision problems for over a year - if I'm reading her posts correctly. You may find it helpful to look at her posts. Just search on calimama and you'll find them.
Jan
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Karen I'm in the UK but feel better now I've spoken to someone who's had it done, thanks.
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Jan thank you for the link I've just read it and there's someone on there also in the UK who had exactky the same as me, AN removed, double vision, botox and still double vision so after reading your link and Karen telling me about having her double vision sorted out i feel a lot more confident having it done. Pam
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Pam -
hope all goes well. Please keep us posted.
Jan
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Thanks Jan I'm counting the days till I see the surgeon I've had this double vision for 20 months and it's really getting me down
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Hang in there, Pam!
Jan
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Thanks Jan only 4 more days to go
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I had seven episodes of double vision ranging from three months to seven; I was diagnosed with a meningioma, and I was treated with radiation (32 sessions) in 2000. The second week of the treatment the double vision went away.
A month ago I started seeing double, but this time vertically. I had a brain MRI, I saw the neuro-ophthalmologist twice and she can't find what's wrong.
I get this vertical double vision in certain positions; I don't have it all the time, but it is very annoying.
I will see another doctor in an hour; let's see if someone can figure out what's going on.
At the same time, I am having terrible headaches, and the right side of my neck is hurting also.
Wish me luck, got to go.
Elizabeth
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Hi everyone, well I had botox injected into my eye last Wednesday and went back to see te surgeon on Monday. The botox has shown it's not nerve damage caused by having my tumour out so he can now operate and lift my eye but I have to wait until the botox wears off that's roughly 12 weeks. At the moment the botox his holding my eye level and it's so nice to be able to see one image instead of two but I have been told as the botox wears off my eye will drop again but Idon't mind that as I know he can correct it through surgery. And the icing on the cake is I can have the brow and eyelid lift after my eye op. Elizabeth my double vision is vertical but it doesn't come and go as you described yours mine was like it all the time I hope they can sort your eye for you. It will be so nice to drive again I haven't been able to drive since my op 2 years ago next month. I'm retired now and as soon as I can drive I'm going to look for some voluntary work as i feel i've been so lucky getting over the tumour and everything that went with it that I feel I want to put something back.
Pam ( from a very sunny and unusually warm UK)
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I had seven episodes of double vision lasting from three to seven months; I have a cavernous sinus meningioma. I didn't wear glasses, so my doctor put a prism on my sunglasses and I didn't see double. My double vision went away in 2000, when I received radiation for the meningioma.
A month ago I started seeing double vertically, and I noticed that at the same time the right side of my neck has been hurting.
I have seen several doctors and they don't know what's causing the vertical double vision this time. It worsens when I move my head and when I walk.
My tinnitus is worsening and I also feel my nose very heavy. My brain MRI is normal.
I wish I could wake up one day and be able to say: I am feeling great today.
I ask myself so many questions. I wonder if I have any illness that could give me all these symptoms.