ANA Discussion Forum

Pre-Treatment Options => Pre-Treatment Options => Topic started by: sempergumby on May 04, 2012, 10:47:26 am

Title: How small is too small to remove?
Post by: sempergumby on May 04, 2012, 10:47:26 am
HI...brand new newby...I have AN left side 3mmx4mmx4mm and tinnitus that is 24-7 smoke alarm in my head...pressure in left ear and a sense of vibration, like an electrical pulse.  How big does the AN have to be before I can expect surgical intervention?  I am 58 yrs young and heathy other than the tinnitus and AN....
Title: Re: How small is too small to remove?
Post by: pjb on May 06, 2012, 08:45:48 am
Mine was 1 cm and had it surgical removed but 3 mm was left behind and should not have. Now I would have left the 1 cm alone after reading many others as we get older they do not grow.  But with the 3 mm I am definitely doing nothing unless it grows and will make a decision but so far W &  W is a good option if it does not bother you that it is there but I believe that small they will not operated I'm not sure what size is their requirements but I do know with the 3 mm my neurologist suggested radiation.

Best Wishes and hoping it does not grow...
Title: Re: How small is too small to remove?
Post by: JWW on May 06, 2012, 09:59:40 am
"as we get older they do not grow".......do we know this for sure? Any documentation?

JW
Title: Re: How small is too small to remove?
Post by: chance1212 on May 06, 2012, 11:08:06 am
I have similar issues..the 24/7 loud tinnitus and the feeling of fullness. Just remember that odds are more likely from what I've been told and read that these will not go away with treatment. Mine is now 1 cm and is growing. When is your next mri?
Title: Re: How small is too small to remove?
Post by: chloes mema on May 06, 2012, 02:01:58 pm
"as we get older they do not grow".......do we know this for sure? Any documentation?

I'm here to tell you THIS AIN'T SO! 

I'm 66 years young and mine took a growing spurt just since it was discovered last October 2011.  Mine grew 3mm in 5 months.  All the doctors I talked to said because of my age it won't / shouldn't grow etc.  but it did. 

Karen   

Title: Re: How small is too small to remove?
Post by: sempergumby on May 06, 2012, 03:23:59 pm
I am hoping my tinnitus and AN are related...both on same side and noise has a very ELECTRIC feel about it.  have doctor wanting me to do neoromincs for the tinnitus and I hate to spend the money if surgery is a possible fix or improvement.  My last MRI was April 25 this year.
Title: Re: How small is too small to remove?
Post by: Mickey on May 06, 2012, 07:52:14 pm
Most likely your tinnitus and AN are related. I was diognosed around 5 years ago but have had tinnitus symptoms for around 30 years.  I`ve done neuromonics around 4 years ago which has helped. I`m W+W and hope to continue that way as long as my AN which has since been stable cooperates. I actually feel alot better since I`ve been diognosed but followed a regimen of good health which can be found in "tips for W+W section". (63, 1cm) Best Wishes, Mickey
Title: Re: How small is too small to remove?
Post by: PaulW on May 07, 2012, 02:12:08 am
Most internal auditory canals are 4-6mm wide.
Once the AN puts pressure on the nerves and blood vessels the fun often starts.
If its troublesome its big enough to get rid of.
You may want to look at radiosurgery also, the result may not be instant, but it avoids the inherant risks of surgery.
You can also go for watch and wait, but the symptoms may drive you crazy in the mean time.
I chose Cyberknife for my relatively small AN and have been very happy with the results so far.

 
Title: Re: How small is too small to remove?
Post by: Kathleen_Mc on May 07, 2012, 02:17:48 am
sempergumby:
Do not rush into having surgery if the only reason is to get rid of the Tinnitus, there is no proof having the surgery will remove this symptom and sometimes (depending on outcome in to OR) you will develop tinnitus in the other ear ( I originally did not have this but developed it  almost 20 years post-op).
Think about it from the stand point of all the others things that could happen from the surgery, imagine if you had the surgery, the tinnitus didn't go away AND now you're ssd/have facial issues/eye issues/swallowing issues/balance issues.
What about considering gamma knife etc? Have you looked into this?
When is the tinnitus the worst? Maybe find a better coping mechanism for it, for example: if it's worst when you lie down to sleep play music when you settle to bed, keeping the music on in the house during the day etc.
In terms of how big it has to be before removal the size is not the only consideration, also needing to be considered is location and symptoms of the person.
Of course none of us here are doctor's, you need to discuss this all with your doctor.
Take care, Kathleen
Title: Re: How small is too small to remove?
Post by: chloes mema on May 07, 2012, 08:38:29 am
Also, Widex has a hearing aid that plays ZEN chimes etc to help distract you from the tinnitus.  I tried a pair on and didn't want to give them back, for me I really noticed a difference.

Karen  
Title: Re: How small is too small to remove?
Post by: Chances3 on May 07, 2012, 11:18:36 am
Hi Sempergrumby,

Welcome to ANA, I'm sorry you're struggling.  My AN was small, but I was suffering with severe vertigo attacks.  I chose surgery at the age of 54.  I also suffer from tinnitus and it has gotten worse after surgery, but I am trying to find ways to control it.  I'm on a diuretic, I stay away from Nitrites, Sulphides MSG etc.  I stay away from caffeine and alcohol.  I try to get quality sleep.  All of this has helped, not everyday, I still have bad days and better days.  My brother in law is a retired fireman.  Many of them have severe tinnitus due to their exposure to sirens.  He was given a prescription that he claims really helps him.  I am going to find out what it is, see if my doctor will prescribe it, and I will post my results here.
In reference to growth, I think the best person to ask is your doctor.  What I have been told is these tumors do not grow linear.  Meaning, they don't just grow a certain amount each year, but can grow in spurts or even stay dormant.  Again this is not an official medical piece of information, but it is something you will need to check with your doctors.  As far as choosing surgery or CK, or watch and wait, my advice is learn as much as you can and make the very best decision that works for you.  Stay connect to this site, it's filled with great people who understand, and who have a wealth of knowledge as well as first hand experiences.
Title: Re: How small is too small to remove?
Post by: james e on May 07, 2012, 02:15:00 pm
Your doctor is the only person that can answer your question about how large the tumor has to be for treatment. The answer might vary between surgery or radiation treatment. There have been posters here with small tumors, but they have had very exaggerated symptoms, and they required immediate attention. Others are fine with W&W. Talk to your doctor.

Tinnitus is a big problem for many, even people that do not have ANs. It is a brain problem and not an ear problem. I am SSD from translab surgery and still have tinnitus 24/7. You hear the noise in your brain, not in your ear.

James
Title: Re: How small is too small to remove?
Post by: Ned on May 08, 2012, 06:53:30 am
I would suggest that you  interview other surgeons and radiologists.  You might still stay with your original plan, but there are varying opinions from doctor to doctor.  My experience showed surgeons most always suggested surgery and radiologists most always recommended radiation.  Good luck.
Title: Re: How small is too small to remove?
Post by: leapyrtwins on May 09, 2012, 06:56:48 pm
Depends on the symptoms you are having - and how debilitating they are.

I'd look into radiation before I'd opt for surgery - but that's your personal choice.  Just my two cents worth.

Also, AN surgery won't stop your tinnitus; I don't think radiation will either.

Lots of people without ANs have tinnitus - and lots of people with ANs don't have tinnitus (I am one).  In other words, ANs and tinnitus aren't necessarily related.

Jan
Title: Re: How small is too small to remove?
Post by: sempergumby on May 26, 2012, 05:29:49 pm
Found out it is location, location, location.  Although mine is small it is in an ATYPICAL location and surgery is being scheduled.  Should have date next week.
Title: Re: How small is too small to remove?
Post by: LizAN on May 27, 2012, 08:31:53 am
Sempergumby,

Where is your AN located?

Mine is deep in the IAC.  Even though it is still small, at 1.2 cm, I am having lots of symptoms.

My surgery is scheduled at House for July 3rd.  I'm hoping my tinnitus doesn't get worse, as it has become very LOUD in the last few weeks.  I can now hear it over road noise, with the radio on.  Whatever will be, will be, and I'm praying for the strength and courage to deal with it.

Liz
Title: Re: How small is too small to remove?
Post by: Trish G on May 28, 2012, 01:29:47 am
Hi Semperguumby

I, too has a small AN.    I was having. Total ear fullness, horrible headaches, eye twitching, and. Above all a  severe hearing lass in that ear.   I teach and it was really a problem.   I chose not to W&W.  And went for FSR in 26tx. 5 days a week for 5 weeks.    Not bad at all. Just the /MRI that freaks me out.  don't.  Need the MRI during The tx    Just before


The radiation oncologist said I could wake up one morning with no hearing at all in that ear be Cause the canal was so small.

Trish