ANA Discussion Forum
Post-Treatment => Post-Treatment => Topic started by: MNTim on September 17, 2011, 08:17:52 pm
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I have seen the phrase "Wonky head" used quite often in the forum. I think I may experience it periodically but am not sure. Please share your definitions of this phrase.
Tim
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Probably many definitions will show up here .....
Mine: that feeling of disorientation when I cannot distinguish where I am in space.
Clarice
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How long does Wonky Head usually last? Minutes, hours? Thanks.
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Like usual around here, varies with each person. Can be worse right after treatment and get better slowly but hang around for days, weeks or months. Mine is with activity and not every time. Mostly outside and with sunny ,windy days and walking alot. Some in a mall. Those stores with the super shiny floors drive me nuts! Mine is just an odd head feeling, you're not dizzy but just not quite right as you walk. I can walk and have it and my walking looks great or I be weaving all over and have very little. This is with no balance nerves, back in the day of just missing one can say it had went away over time. Cheryl R
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It lasted on and off for about I year. The word "wonky" is the perfect word for it. To me it felt like a side to side funny like motion, or when I turned my head to quick--It still happens, but rarely. It has to do with the loss of the balance nerve.
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Thanks for all of your responses. My symptoms are periodic feelings of disorientation. Nothing severe just a sudden feeling of being disconnected from the moment. I have the episodes of weaving (while walking, not driving) and difficulty with visual focus.
More descriptions are welcome.
Tim
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I also have this feeling from time to time.. disoriented, I do weave when walking and just don't feel "with it" sometimes..hard to describe but if you feel it, you know it! I was boating over labor day and I guess between the wind and waves, ,I was terribly sick feeling when back at dock and had to lay down for several hours. My head just feels full, or off balance and I just want to steady it by lying down or holding it in my hands. Bad feeling but not all the time thankfully..sometimes I believe it may be worse when overly tired or emotionally exhausted,, imagine that ,, who would think we could be emotionally exhausted dealing with these tumors and decisions to be made!! Hope this helps some and that you get to feeling better....
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I felt like a bobblehead doll; my head would not balance on my body. This got progressively better but lasted for nearly a year.
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I read all the various descriptions of "wonky head" and thought, yup! They are pretty accurate descriptions of this feeling that can't quite be described to family members/friends, but you'll know it when you feel it. The other symptom I have is when I'm in bed or on the couch relaxing and want to shift, move, or get up and I feel... I guess a good word is heavy... like those dreams where you want to run or move but your body doesn't quite cooperate. it's not that I can't move I just feel like I'm moving me and some invisible extra weight.
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Hi
There is a long-time user here, CaptDeb, who "coined" the term "wonky head" that I have explained to my dr's (and vet since my dog also has it!) that they all now understand. Typically defined (in line with what others here have noted) as "head disconnect, such as being on cold meds, with a hint of dizziness to it".
I think Deb needs to cash in on the term! :)
Phyl
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Wonky head hmmm...
Definitely disorientation can be one characterization.
I say, it's like the next day when you had no sleep, you are also suffering from jet lag and you are
standing on the deck of a cruise ship in a bad storm. That's my wonky, and it's worse in rainy humid days, along with the barometric pressure.
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I found that the best way to describe this to non-ANers is to say that it feels as if you have had a glass (or two depending on the person) of wine. When the head feels a bit "disconnencted", but other than that you can function normally.
Marianna
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Does it feel like your in a dream....but wide awake?