ANA Discussion Forum
General Category => AN Issues => Topic started by: para1 on January 21, 2011, 07:48:11 pm
-
I just found out that I have an acoustic neuroma. It is 2.7 cm in size. I am currently trying to find a dr. that accepts my insurance. Needless to say I am very nervous and don't know what to expect from surgery. How is the recovery? How soon can you return to work? And this may seem like a vain and dumb question but can you color your hair soon after surgery. I'm thinking about dying prior to surgery so I don't have to worry about it.
-
Hi, Para ~ and welcome to the ANA website discussion forums. I'm sorry you've been diagnosed with an acoustic neuroma but I think you'll be glad you found this place and the good folks that make it what it is. It's chock full of information, support and, when appropriate, advice.
Your nervousness is perfectly normal and we've all been there, so we understand what you're feeling about now. Lots of folks will jump in to explain what to expect from AN surgery and the ANA offers free, informative booklets that can help answer some of your questions http://www.anausa.org/index.php?option=com_docman&Itemid=156 (http://www.anausa.org/index.php?option=com_docman&Itemid=156). Frankly, every AN patients surgery experience is a bit different and so is recovery. The 'average' recovery is 6 weeks but some are back to work in two weeks and others need months to recover. It's very unique to the individual. Your question about coloring your hair is perfectly reasonable and I'm sure some of our knowledgeable ladies will be along to answer it for you, soon. :)
Try not to allow your fears to overwhelm you and think positive. This is a benign tumor and very treatable. Most AN patients do pretty well. I did. I trust your insurance will be accepted at a doctor that you like and trust. Choosing an AN doctor is crucial to increasing the odds for a good surgical outcome so don't be hasty in deciding. I look forward to seeing more posts from you as the days and weeks unfold. :)
Jim
-
Hi para. Welcome to the world of Acoustic Neuromas.
It's normal to be nervous and not know what to expect. Everyone's AN Journey is somewhat unique, but the good news is there are worse things to be diagnosed with. Most (99.9%) of ANs are benign.
Post op recovery is usually the hardest the first couple of days and then progressively better from that point on.
Most docs will tell you that recovery generally takes 6 weeks, but some recover faster and some recover slower - and some "issues" take longer to resolve than others.
Returning to work depends on your recovery and what your work entails. I work a desk job (accountant) and I returned to work part-time 2 1/2 weeks post op and full-time 4 weeks post op. But that's just me - others had different experiences. You and your doctor will know when the time is right for you.
As for the hair color question, it's neither vain nor dumb. Lots of people have the same question. Usually you have to wait a while post op to color your hair until you head has "healed" - a somewhat subjective term. You should ask the doc who does your surgery - and don't worry he's heard this question before ;)
Good luck,
Jan
-
Thank you so much for your comments and advice. It's so nice to hear from people who have gone through this and I am glad that you are doing well. I am going to see a surgeon on Monday so hopefully I will have more information.
Thanks again!
-
Hi and welcome!
I'll address the most important question - because that's just how I am.... ::) I colored my hair right before my surgery. We must think alike! ;)
I didn't color it again for a few months, but only because I didn't have to go back to work or anything so I really didn't care that much. :-\ Once all the incisions are well healed you should be good to go. Ask your doctor when you go for your post op appointment though. I'm sure it's a question he's heard many, many times!
See? No question is silly around here!
Good luck to you!
Lori
-
I had surgery in November and have debated the coloring your hair question. My husband keeps asking me when I'm going to the beauty shop. lol My hair now has grey, darker roots and blond, although people tell me they don't notice. I did a search on this site and found pages of discussion on this. At my 3 week check-up my doctor said it was ok. But on this forum, I've read of a doctor saying wait 3 months. I'm waiting the 3 months because I don't want to take my chances. I started back to work mornings only last week, teaching kindergarten, and no one seemed to notice. Ask your doctor and go from there. Also stay here with us. There is so much good information and discussion on the forum.
-
I'm thinking about dying prior to surgery so I don't have to worry about it.
Hi and Welcome!
I couldn't help but chuckle when I read that last line! Don't die :o (oh yea, your hair).
I would imagine dying (your hair) before surgery would be a good idea, like Lori did!
I can't remember when I got my hair dyed post op. I would imagine once the incisions heal up, and no sign of any problem, then you are good to go (ok compromise at 2 months).
My recovery was 6-8 weeks. I lost a lot of blood (very unusual), so was weak and tired from that. I had minimal balance problems, because my other side had already completely compensated.
The sacrificial facial nerve thing is NOT normal, so don't fret. Most people do fine and if there is any damage, it is usually short lived.
Keep asking any questions as you find out more info :)
Maureen
-
I just had to laugh at the hair question....I am having surgery on March 1 and decided last Thursday to color my grey...myself! Didn't want to pay the $150+ at the salon if I was going to be laying around for a month or so, well...I did and when I was done, I had 2 purple patches on both sides of my face and a purple patch going down the middle of my head! Not a good look! So I then had to stripe it with a product called Color Oops! Needless to say I will never try that again and will go into surgery with my grey...which I am starting to like! LOL
Good Luck with your appointment!!
-
I was going to say that coloring your hair was THE MOST IMPORTANT THING to do before surgery!! On that note, *HIGHJACK*, but it IS relative since we are talking about dying hair...I didn't ever have to dye my hair until AGTER surgery...I paid a little too much in Austin to get it done and then we moved to Amarillo and my lady that had done my hair since 8th grade started doing it again. She used to do Miss Texas' hair so I figured she was ok, even though I only paid $12 for a wash, cut and style and $32 for all that PLUS color (she still pulled it thru a cap but it lasted longer - I made my BF promise to tell me if it started to ever look bad). Anyway, when Dave told me we had to move, I told him that he better put about $1000 extra dollars in the budget for my hair!! He hasn't complained at all and I found a salon that I "like" - I LOVE the girl that CUTS it and I like the girl that colors it but I don't LOVE the color...and let me tell you, for what I pay, I should be doing back-flips over the color!!! Anyone on here that "knows" me knows that I have very WalMart cost taste!! I need help! Is there something I can do myself (I don't want purple spots, though!)? It has always been highlighted (?) - cap or foil - but I just can't bring myself to pay that when I don't love it!! The ONLY reason that I have paid that is because I have realized that since my face has always not looked so great, I take great pride in my hair - VAIN, I know, but what can I say?
HELP!
K ;D
-
This Licensed Cometologist is hoping this stays a wee bit on track re: surgical recovery, return to work and not as much re: hair color.
BTW, hair coloring pre-treatment is fine, as it's what outside the scalp (ie: the hair shaft) that is affected by the color (ie: off-the-scalp highlight or even a single-process/all-over color).
As for recovery and return to work, hoping the folks here will help elaborate on that a little more.
(Geesh, ladies........ I saw that *Hijack*!)
Phyl
-
It is important to "feel good about yourself" and I think it really helps with your recovery. I remember looking in the mirror and thinking I had been in a street fight right after surgery. So, die your hair, wear a wig, dress up...what ever it takes. I was 60 when I had my surgery, have a head full of gray and white hair, but I am a weight lifter, and muscular, and rather youthful for my age. The surgical nurses all bet on my age during the surgery...missed it by 20 years...and the doctor told me about it. It made me feel great that day. Those little things will help you through this process.
Just ask your doctor about the insurance. They all want to get paid. You are fortunate to be insured, and the docs and hospital will help. Not a big deal.
Recovery is a big deal. Everyone is different and it depends on how large your tumor is, location, surgery or radiation, age, physical condition, and lots of other things. This is going to change your life, but you will find that most people here have had good outcomes, and a few have had problems. None of your questions are stupid or silly. Good luck to you.
James
-
Hi Para1,
I wanted to add my welcome wishes although I'm sorry you need to be here. Most of us ladies who have enough gray hair to worry about this question have asked it. In my opinion, it's not vain to want to look the same as you always have. Definitely color your hair before your surgery -- it will give you a boost and help you feel more normal in in control of something. My doc told me I could color my hair as close as two days before my surgery and I was glad. Most docs will allow you to color your hair 6 - 8 weeks after surgery but check with your own doc to make sure.
It would be unusual to not feel nervous about the surgery. If you would like physician recommendations, let us know where you live. Someone here on the forum may be able to recommend someone. As for recovery, as the others have said, recovery time is an individual experience. Some people recover very quickly and return to work as early as two weeks later. Most people find six weeks or longer is necessary.
Keep us posted.
Best wishes,
Wendy
-
Hello and welcome to our little club...sorry you had to join it but there is none better!! As far as how long it takes to get back into action it took me about 2 months. I used my short term disability benefit so I was taken care of financially. I could have used another month, because my job requires me to be fairly active. Of course, like everyone says, every person is different and unique so you'll just have to judge it for yourself when it comes time. One thing that IS important to know is that you don't want to overdo it until you are ready. This is brain surgery after all! Please feel free to ask more questions...like it was said there is no such thing as a dumb question here!! Good luck and keep us posted!
Jay
PS: Maureen...you know I didn't even take that "dying" in that context until you pointed it out...too funny! :)
-
Most docs will allow you to color your hair 6 - 8 weeks after surgery but check with your own doc to make sure.
While talking about grey roots etc. How about these kits that you can use for a touch up in-between colorings? I use them regularly between salon visits and they do a pretty decent job in covering up the roots. You can easily avoid the areas that you don't want to be touched, since the application is local. Just a thought.
Marianna
-
Welcome MK! ;D
-
Hi Para1,
I am in the Watch & Wait group, so i don't know about recovery from surgery...
But I wanted to say hello and hope you find the answers you are looking for.
Since ANs are benign and slow growing, you have time to do your research.
The folks here are a wealth of information!
Prayers all around as you travel along your AN journey.
Sue
-
I advise to somehow pull your hair back, mine got in a knot. :/ My AN was 3.5cm and im 14 years old. I have no facial paralysis. I dyed my hair like a week before surgery and it should be fine. Recovery time all depends on the person. I recovered very quick. I had surgery October 29th, 2010 and November 4th, 2010. And the doctor said i could run around by December, even though I had recvoered before then you always have to make sure.
-
Hi Para1,
I hope you are handling well the quest for information and knowledge that we on this forum have all taken and continue to take. The wonderful people on this site are truly a wealth of information and encouragement and empathy. Would you please bring us up to date on what is going on with you? If I missed a post, I am sorry! I am just wondering about you.
Amy
-
HI, Para,
My 14 year old had the same issue. We colored her hair before surgery. (She is naturally blonde but likes
to be brunette.)
She had her tumors removed Oct 29 & Nov 4. Her surgery was done through the ear so her incision was behind
and around the back of her ear. We colored her hair again in January- no problems. (The doctors said it was okay)
I am sorry to hear that you have tumors. It was a stressful time for us when we found out. However,
if you find a doctor you trust you will deal well with all the little things. My daughter was up and walking within
2 days of each surgery. She did have to remain in the hospital until they removed the lumbar drains (no headaches post-op).
Recovery: It took about two weeks after surgery for her to feel normal. She returned to school about 6 weeks
after the surgeries and is doing well.
She'll have a Baha implant this Friday. She is happy and is excited to be returning to her "new" normal.
Good luck with your surgeries!
-
Thank you everyone for all of the information and encouragement. I did find a surgeon that I liked very much. The tumor is larger than the ENT had originally told me. The surgeon said it has been there about 10 years. My surgery is scheduled for March 8th. I am very nervous and anxious. I wish I could get it done now. I was told that I will be in the hospital for 4 to 6 days and then I will be out of work for 8 weeks. He said that sometimes he sends people back to work at 5 weeks but since I work with young, disabled children he will keep me out for 8 weeks. He said the hardest part is going to be that it took 10 years for this tumor to move my brain over 2 inches and it is only going to take six hours of surgery to move it back. He said that my body will have to adjust to this and I may have dizziness, headache, nauseau for awhile. I was told that I will loose the rest of my hearing in the ear completely. The doctor said that I will learn to realize what direction sound is coming from. He did say though, that the first few days will be rough. He said that the second day I will question why I ever agreed to go ahead with this. He wanted to be honest and tell me that I will not be feeling good around day 2.
So, that's my update. Thank you so much to everyone for thier help. I hope that my recovery goes smoothly and wish everyone going through this as well positive thoughts!!!!!
-
Para ~
Thanks for the update! I like the way your doctor described the surgery and recovery process to you. Although I'm not a doctor, I would concur with his assessment and recovery time-frame. The surgery is arduous but only for the doctor and those waiting to hear how it went. You'll be asleep. The doctor's description of your first few days, post-op, are very accurate. However, I'm not so sure about learning which direction sound is coming from - I haven't, almost 5 years post-op and close to 10 being SSD. but you may do better. You do have a good, positive attitude and, although the initial recovery can be a bit rough, time usually finds the AN post-op patient improving so I think you'll do quite well.
Jim
-
I'm also impressed about how candid and open the doctor was. Some like to paint a rosy picture, with less detail.
He is accurate, and the 8 weeks off is a plus. Sounds like he KNOWS his patients!
The waiting is frustrating. Just stay busy, focused, pamper yourself, and exercise or walk as you can tolerate. That will help in the recovery!
Keep posting :)
Maureen