ANA Discussion Forum

General Category => NF2 => Topic started by: hgtvqueen on February 18, 2010, 01:34:32 pm

Title: Cyber or Gamma knife for NF-2 tumors
Post by: hgtvqueen on February 18, 2010, 01:34:32 pm

Has anyone used Cyber or Gammaknife to treat any of their NF-2 tumors?  Our physican recommends against it due to young age and the fact that "no one knows the long term effects."  What what your outcome?   

Title: Re: Cyber or Gamma knife for NF-2 tumors
Post by: ppearl214 on February 18, 2010, 01:39:40 pm

Hi

I cannot answer to the NF2 portion of the question... but, I can assist with a terrific link from the CK forums ... by Dr. Medbery, re GK/CK and age

http://www.cyberknife.com/Forum.aspx?g=posts&t=2528#jumptobottom

Phyl

Title: Re: Cyber or Gamma knife for NF-2 tumors
Post by: Jeff on February 19, 2010, 10:28:22 am

Hi,
I'll share my family's experience. Please bear in mind that these are only personal experiences, not research-supported facts.

My brother (nf2) had radiation treatment on both tumors. Both grew susequent to treatment and required surgery. He also lost most of his hearing after treatment.

I hope that this helps.

Jeff

Title: Re: Cyber or Gamma knife for NF-2 tumors
Post by: mk on February 19, 2010, 07:21:21 pm

I was just reading a detailed review article today and from what I remember it stated that the success rates with radiation are significantly lower for NF2 patients.

Marianna