ANA Discussion Forum
Archive => Archives => Topic started by: sodagal on March 24, 2006, 10:38:27 pm
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I wanted to know when do I start to feel like me again? I have a lazy eye,partially deaf in ear from surgery and have numbness on entire left side of body and right side of face- the facial paralysis has diminished 99 percent but I still go to therapy for balance etc. Are these issues normal? :-\
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Sodagal unf they sound pretty normal depending on the size, location and extent of your surgery. The entire left side of your body is numb? I have left sided facial numbness (my an was on the left). I'm still going to therapy to try to increase my fatigue from the vestibular imbalance. I'm 7 mos post op yesterday. I still do not feel like me but I do feel better than I did at 3 mos out. Are you doing any eye exercises for your lazy eye?
You'll get sick of hearing but..Hang in there it does get better its just very slow!
I just read you're a new mommy. Congrats! You've got a lot on your plate with a new baby and post surgery!
You'll find we're a friendly bunch just watch out for the wenches! ;D
Michelle
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Sodagal,
You'll be right mate! keep practicing the walking and within days, you'll be able to walk the plank without falling off the sides.
Laz
p.s do watch out for those wacky wenches, and the club is growing
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Oh yeah, you'll feel a lot better soon. I'm 4 months post op and I can walk pretty much all by myself. Just short term memory I'm dealing w/ now. Just keep walking (if tolerable) and in time you'll feel a lot better.
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Thanks to all of you for the encouragement!! I hope allwill get better! I do walk around a lot when I can , but I do get tired so I try to pace myself!! Thanks to all of you and I am so happy I found this site!! It sure helps to know I am NOT the only feeling this way!!! ;D
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Hey Sodagal!
If you go to the profiles section and go to modify profile and then fo "forum profile info"--down where it says "signature" you can enter in your type of treatment, where, docs, and tumor size, and anything else you want--it gives members a frame of reference on you when you post. Welcome to our exclusive club. I'm 3 years post-op. You will get a lot of your balance back, but you have to fight for it! I'm still fighting for mine! It takes a long time to recover from this surgery and folks recover at amazingly different rates.
Hang in there!
Capt Deb 8)
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Just to give everyone a little more detail- my whole left side of my body feels asleep- basically tingly and numb-WEIRD- doc says it could go away in 6 months post op but ya never know- I have a lazy eye in which I wear neat eyepatches rotating eyes each day- people get cool bandaids so I bought so neat disposable eyepatches to wear- I figure if people are going to point and talk about you- give them something neat to talk about!!! HUMOR HEALS!!! I use no equiptment now but did come home in a wheelchair etc. so I do know how hard that is- I just wanty my body back!! I would really like to drive too but haven't since November from tumor and now eye! Hopefully soon! Thanks to all for writing- it really helps to feel you are NOT alone in the world when it comes to these weird things that happen!!!
;D
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Sodagal
Well, you need to join our motley crew of pirate wenches if you already have the eyepatch!Me, I have an earpatch! You can catch up on our adventures via the good morning thread--if you post on it our ships chronologer Laz will write you into the log. A great diversion!
Capt Deb
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Hey Sodagirl,
Our good Captain speaks with forked ears, whoops, tongue - hey do parrots have a tongue? Is Capt Deb mad as a hatter, especially wearing the same outfit everyday (pew) - well, everytime i see your posts el capitanie, you are wearing the same outfit...
they are here again, oh no, saaaaaaavvvvvvvvvveeeeeeeee meeeeeeeeeeeeeeeeeeeeeeeeee.
Come along to the good ship BP Sodagirl where all your secrets will be made public, all your fears will exagerate. You have to provide a brief biography about yourself of course - you know, key stats like... ah, better not go there - wrong thread, see ya in good morning.
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Sodagal,
I can't chime in about post-op situations, but I can welcome you and send you wishes for feeling better MUCH sooner than later.... I know we all tire from hearing it, but "...in time".... it really is what it will take. Hang tough, give your little one a pinch on the cheek from me and um...since I'm cruise director on this fun ship, please let me be ... heck, definately NOT the first, to say welcome aboard. We're all here for you, much more than you know.
Be well and look forward to hearing more updates on your recovery.
Phyl
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Soda girl. Know we are here for you. We all have a host of outcomes from our treatments..ok except for phyl. She's going to pass with flying colors and supply the rest of us with some good chocolate!
Watch out for Laz he's a trouble maker...Capt Deb is just plain trouble lol
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I went and got into the group! Thanks!!! ;D
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sodagal, your sig line notes a "cyst"... oh, are we twins? They found a temporal cyst as well as choroidial cyst (mid-brain) with me....
and don't listen to batty.... I'm a true angel! :D
Phyl
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Angel Smangel you are lol
We're all harmless unless you happen to be a greek god with a killer 6 pack and bronzed tone skin then we might put a hurtin' on ya lol
:o
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Or dip ya in the choclate phone booth!
AAAAARRRRR!
Cap'n Deb 8)
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Hey Sodoagal - any fettishes this chronologer needs to know about? or do I take poetic licence.
Speak now or forever hold your .... chocolates. The wacky wenches couldn't hold anything for ... whoopsie, wrong thread.
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Sorry- no real fetishes- yet never know though :o Have reevals on Monday for OT and Wed for PT keep your fingers crossed guys all is getting better!! ;D
Thanks!
Sodagal
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soda gal are you doing any vestibular therapy? what are you doing with ot?
By the time larry is done with you you'll have all kinds of fetishes lol
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I am doing some vestibular but that is mostly with pt- I am fine doing motor skills stuff since that is what I am really lacking right now- I get to play with putty- beans etc to get back feeling since I am still "numb" feeling on left side- I do an hour of OT Mondays and Wednesdays- I use to go 3x a week but graduated to 2x!! Not much different- I still do thepary at home too- by taking care of baby, housework etc-Never ends!! ;)
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No it never ends! My mom wanted me to sell my house and downsize thinking it would be easier to cope with. I had to remind her that you still have laundry, dirty dishes etc in an apt just like a house lol Only difference would be I wouldn't have to maintain the yard but would have to walk my two boos (dogs) outside which would be harder than yelling at my son to mow the grass :o)
I did some fine motor skills in the beginning as part of my physical therapy. I find even now at 7 mos I still have trouble with hand eye coordination. Just play with the babies toys and you'll improve!
I was hoping to be done with therapy this week but.was told I still need more vestibular and eye therapy. I'm so sick of therapy I could scream! I did manage to walk on the sidewalk with a neighbor tonight without knocking her to the ground. I guess that's improvement..last time I kept bumping into her.
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Batty-
I totally understand where you are coming from!!! Thepary gets to be tiring but just think where you would be with out it! My friend is getting a moonwalk for Easter and I can not wait to go in there and play!! I told her I get 5 minutes alone!! ;D
I have been playing eith the baby toys and let me tell you it is fun but since I am still patching my eye each day I have learned to do with only one eye- you should have seen me try to feed the baby for the first time in the highchair-it is a wonder she still likes me- she had food from ear to ear and chin to forehead- between her looking around and my coordination we got more on each other than in her tummy- but now I can do it= PRACTICE!!!
Just remeber EVERYTHING YOU DO IS THERAPY!!!
Sodagal ;)
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Oh yes it is!
I was hoping to get discharged friday but was told no but they did move me down to 3 days a week instead of 5 so I'm hoping that means I'm progressing good enough at this point. It's been 7 mos of therapy and others have indicated they haven't had to go as long so I was very frustrated. At least you have an excuse to play with baby toys I just felt plain silly! I remember doing a kids puzzle and was in tears I got so frustrated and felt so stupid not being able to manipulate it.
I bet the first time you fed your baby made you want to laugh and cry at the same time :)