ANA Discussion Forum
Post-Treatment => Post-Treatment => Topic started by: hevreh on June 12, 2009, 10:13:30 am
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Am weighing risks of both ck and proton for AN treatment. Boston, MA has resources for both. I'm told by experts it would be a "wash" choosing one over another; both excellent. In theory, proton seems safer with less harm to tissue. Debates in medical circles go on. I seek to learn from patients with AN treatments in both modalities, if they had post-op complications. My decision for treatment must be made by June 20th. Thank you for replies.
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hello henrey,
i had ck and did not research proton radiotherapy when i was looking into options, so i can't offer much of a basis for comparison. you can read about my experience with ck on my website (see below, in my signature line).
these are the factors i would consider in selecting a method of radiation:
1. tumor control rate - which method has historically had the higher rate of success in killing the tumor
2. hearing preservation - which method has had better success in preserving hearing (assuming you have useful hearing you want to preserve)
3. other permanent deficits - which method generally results in fewer permanent deficits, such as facial dysfunction or balance problems
be careful about relying on just one doctor or one institution to make your decision. i would suggest speaking with at least two or three doctors at different institutions to get the best picture of what the pros and cons are.
i was treated at stanford. tumor control rate there is 99%, hearing preservation is around 80+% with essentially no incidences of facial nerve damage. other symptoms are variable depending on location of the tumor and its response to the radiation. however, i think this is true of all treatment modes.
my website lists a few good resources for you to continue on with this research.
best wishes,
francesco