ANA Discussion Forum

General Category => Inquiries => Topic started by: Samman on May 28, 2009, 04:58:58 am

Title: Other Tumors
Post by: Samman on May 28, 2009, 04:58:58 am

What are the chances of me developing tumors elsewhere in my body? I had an AN removed in December of 2006 and although I am not too concerned about AN showing up again, I am somewhat concerned about other tumors.

Thanks.

Title: Re: Other Tumors
Post by: TP on May 28, 2009, 05:57:36 am

I don't have any scientific info but for my personal situation, I've had some cysts and lumps removed. The good news all these lumps and bumps are non cancerous!

Title: Re: Other Tumors
Post by: ppearl214 on May 28, 2009, 06:27:49 am

Like TP, I am not aware of scientific info/data either.... but long prior to my AN diagnosis (and since my AN diagnosis as well), I have had many lumpy-bumpy issues... most benign, one malignancy diagnosis.  Based on the diagnoses I've received, I cannot find any correllation to the AN as they are totally in non-related places and types.

Phyl

Title: Re: Other Tumors
Post by: leapyrtwins on May 28, 2009, 06:53:59 am

Samman -

here's a think to another thread that asks this very same question  http://anausa.org/forum/index.php?topic=9319.0

I thought it might helpful for you to read other's responses  :)

Best,

Jan

Title: Re: Other Tumors
Post by: grega on May 28, 2009, 12:23:27 pm

Hi Samman,

One of the post-ers herein, Kate, has a great website (http://anworld.com)  on which you can find lots of links to lots of helpful info.  One of the links on one of the links is this one .... it might help answer your question.

http://www.dizziness-and-balance.com/disorders/tumors/acoustic_neuroma.htm

Also, you might try googling "acoustic neuroma causes" for other informative spots.

Stay well!

Greg

Title: Re: Other Tumors
Post by: Brendalu on May 29, 2009, 04:50:55 am

John,

For many years I have also been one of the lumpy bumpy ones.  Cysts on kidneys, head, and breast cancer and melanomas on my nose and then wham and AN and then NF2.  You have raised an interesting question or thoughts.  I just figured I was one of the "lucky" ones.  Oh and gliousis in the central nervous system and of course MS.  It does make you stop and wonder if all this is related in some way.
By the way, how are you doing?
Brenda

Title: Re: Other Tumors
Post by: Jim Scott on June 01, 2009, 02:25:45 pm

As usual, I guess I'm the anomaly.  Except for my AN, I've never had any other tumors, cysts, 'growths', etc.   Proving nothing at all, I suppose.  Just wanted to inject a note of skepticism into the mix.  Mission accomplished.  :)

Jim

Title: Re: Other Tumors
Post by: sarahinPA on June 13, 2009, 08:14:00 am

i was told by my doctor ( Dr. Douglas Kondziolka at UPMC Pittsburgh) that because my body has already produced a tumor on its on i am at higher risk to develop other tumors cancerous or not..just a little note from my dr.

good luck!

Title: Re: Other Tumors
Post by: clr on June 19, 2009, 06:00:01 am

My daughter was told the same thing as sarahinpa.

Cindy

Title: Re: Other Tumors
Post by: ppearl214 on June 19, 2009, 07:05:39 pm

Quote from: Brendalu on May 29, 2009, 04:50:55 am

John,

For many years I have also been one of the lumpy bumpy ones.  Cysts on kidneys, head, and breast cancer and melanomas on my nose and then wham and AN and then NF2.  You have raised an interesting question or thoughts.  I just figured I was one of the "lucky" ones.  Oh and gliousis in the central nervous system and of course MS.  It does make you stop and wonder if all this is related in some way.
By the way, how are you doing?
Brenda

Unfortunately, I'm like Brenda... many growths, most benign... and all were diagnosed before my AN diagnosis... go figure.

Phyl