ANA Discussion Forum
Post-Treatment => Post-Treatment => Topic started by: MichaelUK on January 09, 2009, 06:49:22 am
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Hi all ive just joined the site im Michael im from the uk,I had a op to remove a 4.5cm AN in aug07 and had a very stormy post op was in hospital for 9 weeks.
Im a member of BANA and found this site through them this is a great site.
Michael
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Micheal~
Hello and welcome!! Glad you have found us here! I had quite a few post op issues (didn't have a long hospital stay though) but am doing really well now - would like to hear more about what all you dealt with. How are you doing now? Let us hear more from you...
K ;D
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Welcome Michael,
Wow 9 weeks is a long time to stay in the hospital. How are you today? You will love this forum... great people with real experiences with ANs. I feel this forum has been more valuable than many of the doctors I have seen.
M ;D
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Hi Michael and welcome,
Wow 9 weeks in the hospital! I hope you don't mind my asking why you were there so long? I think you will find this forum a wonderful source of information and comfort. I'm glad you found us -- feel free to vent, ask questions and join in the occasional hilarity here.
Best wishes,
Wendy
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Hi all,Well after my op i had a CSF leak because my op was so long and it wouldnt stop so they did a fat graft from my tummy and went back in and stopped it but i noticed i didnt know who my familiy or friends were, and when the curtains on the ward were opened in the morning i couldnt stand the light then i had a fit and was told i had court Menengitis which nearly wiped me out,Then when after i was treated for that(20days)i noticed my 3 scares were opening up and all infected i had caught MRSA and when i was treated for this and was all clear i was let home.
My recovery is very good i go to the Lindens clinic and use a Nero 4 stimulator every day and my last ECG was 57% for my nerve count.and my voice has come back after losing that ,Ihave no feeling and tinitis, and double vision since Dec07 since i had a botox injection to close my eye lid when i had surgery on it upper lid weight and lower lid lift.But they said if the double vision dosnt go away by itself they can do squint sergery.
Ive been through alot but so lucky and look at life in a different way.
Michael
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Hi Michael and welcome!
Wow - you have been through a lot! Sounds like you have a good attitude and are doing well now.
I hope that all of the things that can and did go wrong for you are done with and everything goes well from here on in!
Lori
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Hi Michael-
Welcome - and what a story! Wow. You sound like you have a great attitude, though - and that can certainly help make it through some of the rougher days. Hope you'll hang out for awhile.
Debbi, in New Jersey
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Wow.. welcome to the forum. You'll find everyone here is very supportive and encouraging to you during your AN journey (as we like to call it). I'm glad you found this site, but I'm very saddened by all that you have gone through. It seems that your recovery is back on track and I wish you the best during this time.
Regards,
Brian
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Hi Michael, its anne from the uk BANA site , this is a great site isnt it, glad your doing well take care
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Hi anne doing great thanks!
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Hi, Michael and welcome.
I had a fat graft, but it was part of my AN surgery - a very common thing here in the states.
Nine weeks in the hospital post op? That must be some kind of a record! :o
Glad things are going well now.
Jan
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HI,It felt like a record and don't ever want to try and break it :)Was only going to be in for 10 days but the Menengitis and MRSA took some getting rid of i was swabed every 2 weeks and if one swab was positive i was treated again for another 2 weeks never thought i was going home.
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Michael, you certainly have been through it. I'm glad to hear you are coping well, and I wish you continued recovery.
Best,
Marci
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Michael, I'm so sorry you had such a rough recovery period. You had a giant AN, so a lot can happen because of that, and it would seem that it all happened to you! Bummer. I hope that your recovery gets better and better and that the future only holds good things for you.
Best wishes,
Sue in Vancouver, WA USA
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Howdy Michael,
You certainly have had some experiences that will allow you to share insights from a place very few of us have been. I am delighted you are doing so well given the circumstances of your treatment and the complications that followed. You are an inspiring fellow. Pleae keep us advised as to your progress and know that you have found one of the finest groups of folks that exist. Those who "post" here do so in as honest and forthright manner as anyone I ever dealt with. You will be a valuable addition to our number. When you have time, please give us the specifics of the surgical procedure you underwent. I went the radiation route myself and so am not very knowledgable about surgical options. How were you able to function with the AN being so large. As I said earlier, you are an inspiring fellow. Welcome to the group and "speak" to us often. We learn best from those like you who have actually experienced the things some of us will never fully know.
Richard
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Hi, Michael:
As occasionally happens, I somehow managed to completely miss your original post. I offer my apologies and a belated welcome to the website and the forums, and I thank you for posting.
Indeed, your surgical/hospital experience was horrendous; a CSF leak, the subsequent belly fat graft surgery, meningitis, MRSA, but at least you survived it and are on the mend, as it were, proving that even the toughest post-op complications can be surmounted. You have my respect and appreciation for sharing your AN experience and my hopes and prayers for continued recovery and a return to normalcy. Please consider us your friends and visit the forums as often as you deem necessary. We do understand your situation and want to offer our collective support.
Jim
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Hi Michael,
I've also just joined. It is so refreshing to finally find people who have been through what I've been through and worse (bad for you-good for me, because it puts my problems into perspective). Probably my most annoying symptom is the high pitched screamy tinnitus in the deaf left ear. It affects everything. I have facial paralysis, had the nerve surgery (12/7 nerve transposition) one year ago and am not seeing great results. Some result, but of course not up to my standard. I just want to smile, is that too much to ask??? ;D My sis lives in UK.
Would love to chat more.
Maureen
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Thanks for all the nice welcome's! doing well..And me all i want to do is smile ;D ;D
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Michael,
Just reading your last post makes me believe you are smiling. You made me stop and think about how very many ways we can and do "smile" without using our mouth. I've seen laughing eyes, an obviously happy step, bounce or jump, and many others that I won't list. The point being, your tone was smiling for me and I'm sure that attitude is smiling though to any around you. It's been almost a month since wqe heard from you. How ae you doing?
Richard
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I'm doing great start my new job tomorrow 8th april after 1year 7month on the sick..i was a carpet fitter for 18 years but had to stop that kind of work..but start a seasonal job at Newcastle International Airport..fingers crossed...
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Hey Michael...
Welcome...
I will reply to your PM on double vision shortly!
Trish
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michael thanks great what sort of work will you be doing? take care and let us know how you get on.