ANA Discussion Forum
Treatment Options => Radiation / Radiosurgery => Topic started by: carter on January 07, 2009, 08:30:31 pm
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Ck is set for friday, monday, and tuesday. i just want it done right now.
i have good neuro and ck dr.
i have said my prayers anf i believe that i am ready to go.
carter
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Carter,
Congrats on your decision. I am 3 months post ck and am glad that I decided on this treatment. Just make sure they crank up the music loud!!!! I didn't have happy pills and the music wasn't loud enough the first day of treatment.
You will do fine I am sure!
Good Luck,
Sher
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Carter:
My thoughts (and prayers) will be with you on Friday. I wish you a smooth CK treatment and a trouble-free recovery. :)
Jim
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CARTER,
YOU HAVE A POSITIVE ATTITUDE AND THATS AWESOME! ;) SOUNDS LIKE YOU ARE SITTING ON GO!!! PRAYING FOR YOU AND A SMOOTH RECOVERY!
TAMMI ;)
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Carter,
Today you begin the journey to being a "toastie-postie"... you are going to do great and time to rock 'n roll! Good luck today and hang in there!
Phyl
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Thinking of you today, Carter! Let us know how things go,
Cindy
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thanks for the thoughts... i will leave work in a while to have it done. so if at 3:00 CST, the lights dim, you will know that the little bastA*()&rd is on his way to death.
again thanks
carter
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Good luck!!! We will all be thinking of you.
Grace
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hope all went well carter.
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session 1 is over. the treatment took a little over an hour. i watched the robot almost all of the time. i felt 0 from the radiation. i just very tired of laying there.. they laid me out and locked down the mask....started the cd ---- bob dylan. they zerod it in and came in and said that we are waiting on teh neuro surgeon. after about 30 minutes they released me for a minute.... then locked me down again as the onocologist wanted to look it over. then we waited another 30 minutes for the neuro dr...... the cd ended a few minutes after the treatment started. so i watched the robot. this did not bother me .... in fact it fascinated me.
about 30 minutes into the treatement, they came in to change something in the robot - a lens? they released me .... by this time, i was really achy ...... a shoulder and the back of my head. back down - disc 2 in and away we went.
there were a few mechanical noises - but no big deal.
i had taken a valium an hour before i was scheduled ... 30 minute wait before...an hour wait for neuro dr ..... and an hour to treat .... the valium did not last. i did not need it for anxiety .... just tired of laying there and not able to move.
no smells, weird feelings,,,, no nothing.
i got home to find the daughter had brought over a pizza to cook.
then she showed that she has listened.... she drug out 3 pints of icecream. she said that i had complained too much about no special diet for AN folks.... she had made labels --- radioactiveman ice cream.
so other than the delay and the laying there too long - session 1 was no problem.
life is still good and the little bast(**$$@rd is starting to die!!!!
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There you go, Carter. A couple of more like that, and the AN is history.
Good for your daughter picking up the ice cream. Well deserved, I would say. :)
Steve
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Great news on the first treatment--how fortunate you are in the USA ! Here in the uk,we have just taken delivery of the first ck machine-- And it is not available on the NHS. Most uk surgeons still don't trust radiotherapy---''cut 'em out' they cry! For me to come to the USA for treatment would cost over $130,000.--plus accomodation,flights,etc. The alternative is CK in Munich--but they will only carry out the treatment in a single dose --and i would love to preservr my hearing. Good luck to you all over there--chris,manchester,uk.
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Carter -
glad things went well yesterday. I hope Monday and Tuesday continue to follow this pattern.
I'll be thinking of you,
Jan
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Carter:
Thanks for the update. It seems as if boredom and impatience are your biggest issues, so far. I hope this smooth treatment experience continues. Oh, and I like your daughter's sense of humor: 'Radioactiveman Ice Cream'. :D
Jim
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day 2 was a breeze.... i was called back right on time... got set up in 3 minuts or so... they got the drs there in about 5 minutes and the treatment started. it lasted about 1 hr and 15 minutes.
i drove myself and did not atke a valium... i ddi not like how valium made me feel.
during teh weekend i was tired feeling and hD ONLY SMALL HEADAHES - NOT A BIG ONE. THE ECH SUGGESTED TAHT TEH STRESS BEING OFF MAY HAVE HELPED GREATLY!!!!
I AM LISTENINGTO THE LITLLE BAST%#RD SCREAM AB HE DIES.
LIFE IS GOOD
CARTER
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Thanks for keeping us updated. I am so glad this is going well for you.
Grace
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WOOHOO on Day 2, Carter ;D
Jan
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day 3 of treatment
got set up on time .... waited for 45 minutes for the dr to ok the start. the tech released the mask 3 seperate times - twice just let me to move about and once to ask questions of the P.A.
amount of radiaiton given compared to other cancers such as wife's breast cancer -- about 1/2
her in 30 days - mine in 3
when to call? she said to call when my bosy says that there is a problem. no set rules...and not to call back if there is any delay.
she said to expect to be tired and to have body aches for a few days. already have the ache - did not know it went with treatment...
she advised to take it easy for several days. others in medicine made it sound luke to not expect the faigue. i had taken off after about 3 hours today .... ladies at work called my wife. wife said to come home.
i asked what ot expect in hearing changes - she said hopefully none and dropped it.
i asked why the treatments were 3 rather than 5. she said that she did not know this .... she got approavel for dr to talk to my wife about this.
i asked about a script for headaches - more than tylonol... he wrote script after a few questions.
i did the last treatement .... a little over 2 hours on the couch .. i was told that it was not a table, but a couch. 2 hours is too long on the couch or tabel. i had made it through teh otehr treatments without moving --- not today. i was just uncomfortable. this just delays the whole thing.
finished and said goodbyes to tech .... she was nice and explained a lot such as why the room is not contaminated by radiaiton... it is proton beams - the do not leave particles behind.
we had expected to see dr (told at first visit) or at least for him to talk to wife (talk to pA)... dr willison never made his presence known during the entire treatemnt period but neither did any other dr. this really surprised me ... to never see a doctor. it was just the tech - Regian and a helper on 2 of the days.
tip for others ....slow down on drinking a couple of hours before treatment and always make a pit stop before getting on the couch.
it is over!!!!!!!!! yeah. i am listening to the little bast$#$rd scream in agony.
i am to get mri and see doctor in 8 weeks ..... this is sooner than i expected.
life is good --- just have to live life and try to forget about this inconvenience. but i am sure that it will be pins and needles as i get teh next mri and wait to get the results.
i am taking off tommorrow to relax - rest and do some fun things. tonight the last dose of radioactivamn ice cream.
now i think of the words from the movie jeramia johnson .... you've come a long way pilgram. i have. and the people of this forum have taught me a lot. so keep your topnotch. i will be around
thanks
carter
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Carter,
I am glad you finally made it off the "couch"!! You are right, two hours is a bit much for anyone. Enjoy your ice-cream tonight and take it easy tomorrow. I'm so glad you are finished with your treatment. I wish you the very best in your recovery!
Windy
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Hey Carter,
Thanks for finishing it up! (I had a 3 day treatment as well; I think it is just the right amount). I appreciate the excuse to go get myself some non-radioactive chocolate ice-cream, which I think I will do right now!
Steve