ANA Discussion Forum
Post-Treatment => Post-Treatment => Topic started by: bern on January 06, 2009, 03:43:17 pm
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I go for my second MRI following gamma knife in july. the first showed no change.
I have been so sick since treatment that I hope the MRI can tell why since no one else seems to believe me.
I also see ENT for ear pain and more hearing loss on the 20th. I need relief from all of this ear pain and ringing.
After my appointments, I am leaving my doctors and finding another group to help me.
I spent 14 years suffering from Celiac Disease and near death but I knew I was sick and kept searching for help and found it. So I will search again for someone to help me with this AN.
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I wish you well on the results of your MRI. Also, I think it will help for you to get a fresh perspective from a new group of physicians about the problems you have faced post GK. My thoughts are with you!
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Bern -
I hope your MRI gives you the answers you are looking for.
Refresh my memory. What part of the country do you live in?
Perhaps someone near you can suggest a good group of doctors.
Jan
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I live in Harrisburg, Pa. Close to many hospitals. Milton Hershey is where I was treated. I go for MRI Monday Jan 26. Keep your fingers crossed. thanks
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Hello bern,
Just chiming in here, and hoping that you have great results of you MRI. I am curious about your diagnosis of Celiac's disease as my husband also is a Celiac. He on a Gluten free diet and has been for 6 years. The problem is he has never ever experienced any relief, though his symptoms are non-typical. I'd be interested to hear about your situation.
Jackie
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Bern -
good luck on the 26th.
I'm keeping my fingers crossed on your behalf :)
Jan
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Bern:
I also hope and will pray that your MRI yields some answers and that your discomfort can be eased.
I've added your MRI scan to the AN Treatment Calendar. Feel free to edit if necessary. http://my.calendars.net/an_treatments/d26/01/2009?authenticate=&display=M&style=B (http://my.calendars.net/an_treatments/d26/01/2009?authenticate=&display=M&style=B)
Jim
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I am so scared for Monday. I cry alone each day so no one sees my fear. what happens if i decide not to do anymore treatment? I am in such denial. I have a bad feeling gamma knife didin't work and i think my tumor has grown.
PRAY that my anxiety level drops.
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Bern -
my prayers are with you.
My best advice is to just wait and see what your MRI results are. Until then you may be worrying needlessly. And if there is growth, then you can decide with your doctor's input what the best course of action will be.
You will get through this. Keep your chin up.
If you would find it helpful, please PM me. I, and many others, are here for you.
Jan
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Bern~
I agree with Jan. Don't borrow trouble! At times I have wondered over the last 13 years if my tumor has returned - it was always because I was having headaches again. I am one of the blessed ones that do not have headaches since surgery (had HORRIBLE ones before). Both times, there was some change in my life/stress level causing me the headaches - the birth of my 3rd child 18 months after my 2nd with a 4 year old to take care of too - needless to say, I wasn't really getting much sleep! After the first 5 years, I was not required to get MRI's every year - now I get them about every 5 years to ease my mind. Please do not be alone in this - poeple care and want to be there for you! I didn't understand your statement about "not doing anymore treatment"...heaven forbid it has grown back, there are still other options that you have. This in no way should be thought of as an insurmountable thing. WE ARE HERE FOR YOU!! ;D You will be in my prayers - may you feel PEACE until tomorrow and as you have your MRI and await the results!
K
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Hi Bern,
Good luck tomorrow with your MRI. I sincerely hope you get the answers you are looking for and get some relief for your problems. As Jan said, if you let us know where you are, maybe someone can recommend other doctors who you might feel are a better match for you. Please keep us posted, you are not alone --we are here to help and support you however we can.
Best wishes,
Wendy
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Bern,
I will have you in my thoughts all day tomorrow. I hope you get a good report from your doctor and I also hope you can get to the bottom of the other problems you're having since your treatment.
As others have said, you don't need to feel alone in this - we are all here for you - maybe not physically in PA with you, but we are all an e-mail or phone call away if you ever need us. My phone number is on the Willing To Talk list from the ANA, if you have that, if not, I can PM it to you.
You just need to get through one step at a time - get through the MRI tomorrow and then deal with whatever comes your way after that. It gets overwhelming if you try to look too far ahead - so just take it slowly.
Let us know how it goes tomorrow.
Lori
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Bern,
Good luck on your MRI tomorrow. As you know, an MRI is conclusive evidence of necrosis (cell death) or anything else. You will be in my thoughts all day until you get results. As others have said, you can PM me at anytime. During the week, I'm never far away from my email and this website. Please keep us posted on the MRI and results.
Kindest regards,
Brian