ANA Discussion Forum
Archive => Archives => Topic started by: thecakes on February 04, 2006, 01:21:36 pm
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If anyone sits on the right of me its such a pain. I have to switch around and sit very uncomfortably and just maybe I'll hear. I try not to let this happen. So many times I act like I hear but I don't. I just smile and shake my head. Good God, I hope I'm not agreeing to anything I should'nt be. That could be desasterous. Thecakes
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[That is the same problem I have but it helps if you set in the end seat that has your ear towards the others...and for gods sake becarefull to slightly ajust the hearing aide...They will blast you out when they see you have a aide in your ear good luck,, Is your tumor still there or did you have surgery if so how long was you in the hospital and surgery.. and icu time????/i am faceing surgery coming up...
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When I got out to eat with friends, we play musical chairs until I find the spot that works the best. :D The worst is when I am on the phone at work, people try to come up and ask me quick questions. How many times do I have to tell them, when the only ear I have that works is on the phone, I can't hear anything else!
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My wife suggested that I might want to get a small earring for the deaf ear to remind her which one she shouldn't be talking into.
I was curious if there is any kind of standard emblem for an earring for those with a single deaf ear. Has anyone ever come across such a thing?
JD
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No, don't think there is such a thing. My experience is that most people generally don't think it's a big deal when u tell them u can't hear out of one ear. It's such hard work trying to get across to them that you really can't hear them properly.
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lmurray69,
I just had surgery on Jan 25. That was a Wed. I was in ICU over that night into Thursday at around 3:00 p.m. Went home midday Saturday. I had a pretty cooperative tumor and about an 8-hour procedure, no real complications and my balance was pretty good post-op. My hearing in the AN ear must have been pretty bad pre-op, as I did not notice a big difference afterward. I feel that I have been blessed regarding my treatment & recovery. Too soon for any one-sided hearing war stories, but I do still have to remind my spouse not to whisper things in the AN ear.
Please feel free to send me a personal message if you want more details.
Sanddollar
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One sided hearing or "selective hearing can be useful at times, especially when my wife is telling me off. I am lookingh quite seriously at Baha or something else but am waiting for version 3 or 4.
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I looked for an earring online. I only found a lapel pin with an international "no entry" symbol in red. I think it was on the H.E.A.R.Foundation site. I thought about wearing a stud in my good ear, or a silly happy face earring in my "happy" ear for a while to help my family and friends to remember.
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Imurray, I had my operation Oct 02. Everything is fine now but I had many complications -1 month in ICU. I have no hearing at all in my right ear and that can be more of a libility than I thought. Don't let my time in ICU scare you, everyone and every tumor is different. Lots of luck, the cakes
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I'm a musician.Try playing with a band.I do alright,the trumpet section is usually so loud I can hear them with the right ear.Its my left I cant hear out of after the removal of the AN.My wife will seat on right so I can hear her.I have now started to use a small monitor to hear other parts of the band like the vocalist or the piano.I have also thought of the BAHA but would like to see it reduced in size.I keep my hair very short and I dont want that thing sticking out.
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That is a real pain.... there! But think positive. You don't have to hear all the stupid things. You are driving car, kids are screaming behind.... you continue driving you just close your good ear with finger. Neighbours dog is shouting all night long, your spouse cannot sleep... you just put your good ear to the pillow and sweet dreams. In work if you did not do something... sorry I did not hear you... Life can be simple and funny in some cases. Ok there are plenty of those bad ones also in noisy places... but... ;)
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I had an early appointment with some maintanance guys that were suppose to look at our furnance. They came from 35 miles away. I slept through it. I woke hours later and there was a message on my machine saying that they pound on the door, called me on the phone, came back and pound again and no answer. I called when I woke up to say how sorry I was. I can't believe that I could sleep through that. I must of been sleeping on my good ear. I can't believe I did'nt set the alarm for this, I totally forgot. I do this alot. :'(
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JD: The Canadian Acoustic Neuroma Association did sell an earing that says "out of order". Check out thier web site, I think the address is anac.ca. I don't know though if it's a "dangle" style earing that a man may not like to wear....how about a small tatoo? X on the lobe of the ear that works, "X marks the spot". Kathleen
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Cakes,
Don't worry about sleeping through the door pounding. I quite often sleep on my good ear and miss hearing my alarm to get up for work. It's a big club but very exclusive Cakes.
cheers
Larry
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Cakes - Good ear to the pillow and I sleep through rain, heavy winds, a snoring husband and a snoring dog, alarms, doorbells, ringing phones and loud kids. ;D
Kathleen - I like the idea of the earring. I am definetly going to check it out Thanks!
matti
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Sometimes I have trouble actually falling asleep, but once I do............. if I'm laying on my "good" ear, nothing wakes me, alarms, dogs, husbands, kids, unless someone actually touches me or shakes me. It can be a blessing, but also a major PITA to have to depend on the kids getting themselves up for school as well as waking me in time to get ready for work! It means so much to be able to relate to so many people who are going through all the same things. I feel like I'm not as crazy as I originally thought. Then again................. ;)
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Did you guys see the alarm watch on Dr. Phil a few weeks back? It's an alarm designed for those who sleep through the alarm...I'm sure it's not cheap but looked interesting...gave you a buzz to gentely wake you during the most optimal time during your rem cycle...maybe he'll send us a few to try out? lol
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I actually enjoy sleeping through all those things, but I do have to work... >:(
Have found that my dog is pretty good at waking me up when I miss the alarm. All and all, it's a PITA sometimes, but I've learned to deal with it. I just hate having to ask people to repeat themselves...especially when it's more than once. Most of my good friends are very patient with me. In fact, my boyfriend will move over to the non-AN side to talk to me before I even have a chance to think about it. He's very good about it all.
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Gennysmom who are you kidding..he knows he'll got no where fast if he can't remember which ear to whisper sweet nothings into or honey can you ?????? lol
I just quit setting the alarm, Im so thankful I have a good kid or he could stay home every morning and i"d not realize he was here until lunch time lol
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For those of you who sleep through the alarm. There are vibrating alarms that clip to your pillow. The have a sound as well as vibrate. I didn't think it would work but it does. Harris communications is one online catalog which carries this .Anyone find smoke alarms with a strobe for a decent price? I've looked everywhere and the cheapest I've found is around $129. I live alone , so everyone has suggested it. luv2teach
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Most cell phones have a alarm setting, the tone is different from your cell ring and different then a regular alarm clock. For some it's easier to wake up to. It's worth a try if you all ready have a cell phone. My phone is set on the highest sound setting and I swear it's loud enough to wake the neighbors.
Best to all
Raydean
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Harris is in my back yard...wonder if employees get a discount on the junk I mean stuff they make?
Never thought about an alarm. Interesting. Learn something new everyday!
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Smoke alarm....hmmm...hadn't thought of that. Once again though, my dog is real good about waking me up if need be. My neighbors daughter is deaf from birth (but now has a cochlear implant)...I should check with her for other ideas of things I might not think about. If she has any thoughts I will post them. I've lost my hearing so gradually I just adapted, and have never really considered some of these things.
Batty, stay away from the vibrating alarm. Bob might get jealous. And by the way, HEY! He whispers into my AN ear just to annoy me. Doesn't bother with the regular ear.
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The maintenance guys for the furnace are comming again this morning and this time I'm awake!
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I sleep on my good ear also. My sister bought me an alarm clock that has shaker attachment. You put it a disk like device either under your pillow or between the mattress and it shakes the bed or it has a very loud alarm. It also has a large display screen. I love it. My sister only paid around $50.00 for it.
I still hit the snooze, but it does work. I just don't want to get out of bed.
Denise
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Hmmmmmm, can you just make it shake your bed when you want it to??? :-X