ANA Discussion Forum

AN Community => AN Community => Topic started by: cindyj on November 10, 2008, 04:19:41 pm

Title: Monday's Update on Cindyj
Post by: cindyj on November 10, 2008, 04:19:41 pm
Cindy sends her "Hello" to all!  She looks forward to joining you again.  Today is somewhat better than yesterday.  Took her first walk down the hall this AM.  Really tough as she's still fighting nausea, but better than it has been.  Sure tomorrow will be even better.  Thanks again to all of you for your concern and support.

"Mom"
Title: Re: Monday's Update on Cindyj
Post by: Jim Scott on November 10, 2008, 04:51:52 pm
Thanks so much for the update on Cindy, Mom.  :)

As you know, the first few days post-op are usually the hardest, in terms of regaining balance, etc.  I'm confident Cindy will be fine.  Of course we look forward to seeing her post again but tell her not to worry if she can't, we just want her to recuperate and get all the rest she needs as she regains her strength and equilibrium.  :)

Jim
Title: Re: Monday's Update on Cindyj
Post by: NL on November 10, 2008, 04:57:05 pm
Hi Mom,

I don't know if you've had a chance to read all the replies to your last update, but many there responded who also had problems with nausea that lasted about 4 - 5 days. So hopefully Cindy will experience nausea-free days very soon. Glad she's feeling a little better. Hope you were able to find some of the "tummy-settling" cookies, too.

Thanks for the update!

Nancy
Title: Re: Monday's Update on Cindyj
Post by: ppearl214 on November 11, 2008, 06:50:29 am
hi "Mom" and thank you!  Please tell Cindy to enjoy the weather there as I hear it's ca-ca in GA right now.... sounds like she's onward and upward to wellness ... the bloke and I send continued wishes of wellness! Looking forward to her "graduation" to Seton Hall and for her to head home soon.  You hang in there too..... we're thinking of you!

Phyl and Iain (da bloke)
Title: Re: Monday's Update on Cindyj
Post by: LADavid on November 11, 2008, 12:11:27 pm
Hi Mom
I'm glad to hear the surgery was a success.  Please give Cindy my best.  I sort of got lost in the shuffle of a move and the loss of an internet connection.

It was great meeting you all on Thursday.  I'll have to check for pictures from Nancy.

Hope you're enjoying your stay here.  The weather has been great.

My best

David
Title: Re: Monday's Update on Cindyj
Post by: Nancy Drew on November 11, 2008, 12:48:44 pm
Thanks Mom for posting.  And, a great big hello to Cindy.  I am so glad you are doing OK.  That walk down the hall must have been meaningful to you.  I hope the nausea is getting better.  Please keep us informed.  It is great to hear that you are in good hands in LA.  Thinking of you, and I wish each day that you get better and better.  Hugs!

Nancy :)
Title: Re: Monday's Update on Cindyj
Post by: NL on November 11, 2008, 09:57:11 pm
Ha!  You wouldn't be referring to the Knoxberry Farms Raspberry ones would you?  Hopefully they've stocked up since we left.  Mike bought 27 packages out of every machine he could for me.  LOL  He said I sounded like a squirrel in the middle of the night tearing into a bag of them.  Think that's how I gained the extra 7 pounds I'm packing?   ;D

Cheri

Cheri,
Yep - those are the ones! I think you were the first one to discover their medicinal qualities.  ;)
Title: Re: Monday's Update on Cindyj
Post by: JerseyGirl2 on November 12, 2008, 11:14:37 am
Cheri,

Please excuse me if I sound nosy, but I was curious when I read your comment about going back to House next fall for a follow-up. May I ask if they requested that for some reason?

Thanks,

Catherine (JerseyGirl2)
Title: Re: Monday's Update on Cindyj
Post by: leapyrtwins on November 12, 2008, 12:31:00 pm
Cheri -

I'm curious about this also.

Don't most patients who travel to HEI find a local doc to do their followup visits?  I could be wrong, but I'd imagine it would be cost prohibitive for most AN patients to travel to HEI on a regular basis - or even annually.

Mom -

thanks for the update on Cindy.  The nausea will pass at some point - I promise!  Been there, done that  ;)

Please give Cindy our best,

Jan
Title: Re: Monday's Update on Cindyj
Post by: Joef on November 12, 2008, 03:10:35 pm
No, HEI did not ask me to come back.  I am making the choice to do so.  I may have to request a doctor's order from HEI and would like for the doc's who did my surgery to do my one year follow up.  I can get the MRI done locally like I did in the first place and send it to them, but if all goes as planned, we are hoping to return to Seaton for a few days and see Dr. Freidman and Dr. Stephan first hand.  Besides, I'm wanting to spend more time with my new L.A. 'homies', so what better excuse?   ;)
Cheri

I think we will do the same ... for my 5 year MRI ... we will call it a vacation and go to LA again !!!
Title: Re: Monday's Update on Cindyj
Post by: wendysig on November 12, 2008, 04:04:19 pm
Mom -
Thanks for the update on Cindy.  As others have said, the first few days are the worst -- things usually start improving a lot from then on.  Please give her my best wishes for a speedy recovery.

Wendy
Title: Re: Monday's Update on Cindyj
Post by: JerseyGirl2 on November 12, 2008, 07:45:35 pm
Cheri,

As much as I adored everyone at House and will, for the rest of my life, be so very grateful for the excellent care and treatment I received there, I have to admit that when we drove out of the parking lot for the last time to head to the airport, I was thinking "I hope I never have to come back here again." Hope you'll have a good reunion visit next fall and that all will be well.

Catherine (JerseyGirl2)
Title: Re: Monday's Update on Cindyj
Post by: cindyj on November 12, 2008, 08:54:49 pm
Hi all!!!  It's me, myself!  I made it to postie land - wow what a few days.  I just got out of the hospital today and am exhausted, but wanted to say hi and thanks SO VERY MUCH to all of you - I could NOT have done this without you - can not imagine people going thru this without the support of this group.  I have much I want to say and tell you about - want to try help you other pre-posties as I have been so helped, but think it'll have to wait til tomorrow...

Amy, the scarf will be on its way to you tomorrow - I had intended to get it off sooner, but the body didn't cooperate at the speed I was hoping for,  But, the magic will get there and to anyone else having treatments...best of luck.

I'm not going to proof this, so please excuse my errors - I'm off to rest .

I felt everyones hugs, love and concern - it was esepecially great to have been able to see and touch David, Mathilda, and Nancy before the surgery  - thoughts of you guys and how well you looked kept me going in those first few days!

Talk to you tomorrow - when I'll try to not ramble and be more coherent,

love cindy
Title: Re: Monday's Update on Cindyj
Post by: leapyrtwins on November 12, 2008, 09:16:52 pm
Welcome back, Cindy!  ;D

Thank mom for being such a great scribe.

Now, get some rest.

Jan
Title: Re: Monday's Update on Cindyj
Post by: NL on November 12, 2008, 09:41:29 pm
Hi Cindy!

I'm so happy to see you posting! We can all rest a little easier now that we've heard from you! Keep listening to your body and taking those naps!

Please thank your mom for keeping us updated the last few days. Looking forward to hearing more when you're rested!

Congratulations, postie!

Nancy
Title: Re: Monday's Update on Cindyj
Post by: JerseyGirl2 on November 12, 2008, 10:18:55 pm
Cindy,

You made it -- congratulations!! Take care and get lots of rest.

Catherine (JerseyGirl2)
Title: Re: Monday's Update on Cindyj
Post by: sgerrard on November 12, 2008, 10:59:44 pm
Hi Cindy,

Welcome back, it is great to hear from you. Take it easy, you will be home soon.

Steve
Title: Re: Monday's Update on Cindyj
Post by: Jim Scott on November 13, 2008, 09:40:50 am
Hi, Cindy and welcome back!

Good to see you post...and you're quite coherent.  :)  Now, try to get some rest and take care of yourself. 

Jim
Title: Re: Monday's Update on Cindyj
Post by: Mathilda on November 13, 2008, 10:11:55 am
Hi Cindy,

Great to "hear" from you personally ! Remember that in two weeks you'll probably be walking on the boulevard taking in the view just like I did last week. Time flies and you'll amaze yourself I'm sure. But just make sure you do it one tiny step at a time. The healing part is still more important right now than trying to be ever so active.
Say hi to your mom from me as well!

Mathilda
Title: Re: Monday's Update on Cindyj
Post by: Nancy Drew on November 13, 2008, 12:54:43 pm
Hi Cindy,

You are a trooper, and I knew you'd make it through it all like a warrior.  Looking forward to your next post.  Hang in there and do what all of the surgery folks recommend since I can't give you any inside info.

Nancy (Drew)

P.S.  I had my first hearing test today, and I haven't lost any hearing in my AN ear since GK.   ;D

Title: Re: Monday's Update on Cindyj
Post by: LADavid on November 13, 2008, 01:30:47 pm
Hey Postie

Congratulations and welcome back.  I'm glad that our visits helped you out.  I'm still amazed at the tour Nancy took you all on.  You saw the best stuff in LA.  For those of you who are coming into LA for surgery at St Vincents -- call Nancy.  She's got this tour thing nailed.

When are you headed back to Georgia?  How is your balance and dizziness?  Hope all is well and you continue to improve.  And do thank mom for the updates -- they were very appreciated.

Best wishes
David
Title: Re: Monday's Update on Cindyj
Post by: ppearl214 on November 13, 2008, 03:07:06 pm
Cindy!!!!!!!! OMG!!!!!! Fab news hon and thrilled to hear from you! Hang in there.. going to let the bloke know you are now checking in... continued wishes for wellness... you POSTIE!!!!!!!! next time I/we are in HotLanta, we are SO doing a celebratory luncheon (liquid, of course!).

Congrats!
Phyl
Title: Re: Monday's Update on Cindyj
Post by: cindyj on November 13, 2008, 09:01:39 pm
Well, I flew the Seton coop today...had a very rough night emotionally, mainly.  made poor Mom pack us up at 5:30 this morning and we moved back to our Japanese hotel...only 3 miles from the docs, but many worlds away from anything hospital like - not a wheelchair in sight - think I'll make now..
 
Then continuing my new queen bee character, I had my hair washed and dryed in the hotel salon - need i say more?

I still have so much i want to tell you guys, but i'll be brief again tonight.  Physically, I am very pleased w/ my balance - i was quite the showoff in the hospital each time i saw a pt person - I was determined to get out, but no canw or walker has been needed.  Pain is hardly even worth noting, but it will be very nice once the room stops spinning.  My face is still a bit weak, but i am not concerned, just tough to eat,etc - havung gone through the Bells Palsy before, I can handle this.  The fatigue is bad, but I have read the word patience here enough to try to behave myself.  I am going to grumble about the decadron...it is awful,but i know i must just get through it - did I see someone say something about the awful smell in the head w/ this stuff?

Well, i better stop - thanks everyone = I feel bad I'm not able to check on everyone and respond to all of you yet, but know I'm thinking of you all all day.  See you tomorrow :)
Title: Re: Monday's Update on Cindyj
Post by: Kaybo on November 13, 2008, 09:26:39 pm
Cindy~
Don't worry about everyone else yet - just take care of YOU!!!  You sound great - keep up the good work!

K
Title: Re: Monday's Update on Cindyj
Post by: Omaschwannoma on November 14, 2008, 08:50:25 am
Take it easy, we are glad you are able to let us know how you are doing and this is just fine. 

Now, concentrate on yourself for the next few weeks so you don't stress about keeping in touch.

Have a great life!
Title: Re: Monday's Update on Cindyj
Post by: MKLady on November 14, 2008, 09:18:17 am
Cindy,

I'm so glad to hear from  you!  It sounds like you are doing well and have come through in good shape.  Keep resting.  And you absolutely deserve to be the queen bee for a few days.  Actually if you play your cards right you can keep it up for weeks ;D ;D

Keep us posted.

Susan
Title: Re: Monday's Update on Cindyj
Post by: Debbi on November 14, 2008, 03:15:44 pm
Cindy-

Yay for you!!  You sound like you are right on track - and your attitude and sense of humor are great!  Yes, the decadron is a bi***  ;D (I meant Beast) but that should be in your rear view mirror soon.  Hang in there!

Debbi
Title: Re: Monday's Update on Cindyj
Post by: Nancy Drew on November 14, 2008, 04:28:17 pm
Hi Cindy,

Great news.  I told you all of that training you did for the breast cancer walk would pay off!!! Your attitude is amazing.  Hang in there.  Thinking of you. 

Nancy ;D
Title: Re: Monday's Update on Cindyj
Post by: cindyj on November 16, 2008, 09:17:38 pm
Hi to You All,

Just to let you know that Cindy is coming along.  Yesterday was not a good one but today has been much better.  Had a visit from Nancy and have so enjoyed getting to know her.  She's a great gal - great tour guide too.

Cindy is still having the room spin around her and a few other small issues but nothing too bad.  Getting stitches out Tuesday and hoping to see Deb's hubby, Lance, and her sister at St. Vincent's while we're over that way.  Then, our plan is to fly back to "Hotlanta" on Wednesday.  Hate for her to have to make that long flight but only way to get her home.

Thanks again for all of your well wishes and your concern.

My best to all of you,
Sandra (Cindy's Mom)
Title: Re: Monday's Update on Cindyj
Post by: sgerrard on November 16, 2008, 11:10:31 pm
I have a feeling the flight to Atlanta will not be a favorite with Cindy, but getting home will make it worth it. Sorry to hear she is still struggling with the room spinning. Please give her our best wishes, and I hope she gets tons of rest and sleep and naps for the next few weeks.

Steve
Title: Re: Monday's Update on Cindyj
Post by: Anomar11 on November 17, 2008, 11:12:09 am
Cindy,

I'm glad this is behind you.  One day at a time.  Hope the nausea/spinning leaves for good.   You're in my prayers.  Mona
Title: Re: Monday's Update on Cindyj
Post by: Nancy Drew on November 17, 2008, 06:21:33 pm
Hi Cindy,

So glad to get an update.  Sorry about the spinning.  The flight back to Hotlanta might not be so much fun, but you will have your wonderful family and friends waiting for you.  Just remember, you are the Queen.....you deserve the royal treatment!  You hang in there, and I am keeping you in my thoughts and prayers.  A nice big hug to both you and your mom.  Glad you are on the "other side".  You are a survivor x 2 now!!!

Nancy from CO
Title: Re: Monday's Update on Cindyj
Post by: ppearl214 on November 18, 2008, 02:52:22 pm
cindy,

based on your mom's post, sounds like you are flying home tomorrow.... hang in there, know that the bloke and I are sending our continued wellness wishes to you.. .and BTW, my mom told me "Hawt"-lanta has been anything but hot.... blame us Yankees for that! :)

Congrats again Cindy! Another "road block in life" conquered! :)

xo
Phyl and da bloke
Title: Re: Monday's Update on Cindyj
Post by: MAlegant on November 18, 2008, 05:24:41 pm
Cindy,
You are doing great, all things considered.  I'm sure you'll be much happier in your own bed.  Post soon when you're up to it.
Best,
Marci
Title: Re: Monday's Update on Cindyj
Post by: cindyj on November 18, 2008, 10:09:59 pm
One more post from L.A.

She had her stitches out today and okay from doctors to head back to Atlanta tomorrow.

She is improving each day; still dizzy and bit of headache but not too bad.  She will be glad to get home.  Has been quite the experience here in L.A.  Certainly is the right place to come; she has been extremely happy w/her time hear.  Everyone here is so very nice.  We visited with DebinTexas' husband, Lance, and her sister Kim today in St. Vincent's waiting room.  Heard she did very well.

Cindy says she will post herself soon -- after she recoups from our trip home.  She is looking forward to joining you again.  This site has meant so VERY much to her (and to all of us).  THANKS!

My very best to you all,
Sandra (Cindy's Mom)

Title: Re: Monday's Update on Cindyj
Post by: sgerrard on November 18, 2008, 10:46:59 pm
Thanks again, Sandra. That sounded a bit like a good bye, as Cindy will be back herself soon. Stop by anytime you like. Thanks for the sneak preview on DebraInTexas, too, I'm glad to hear that. :)

Cindy, just one more day, and one long plane flight, and you will be home! Take it easy - really easy. We look forward to hearing from you when you are up to it again.

Steve