ANA Discussion Forum
General Category => Inquiries => Topic started by: picker2b on November 06, 2008, 09:36:29 am
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Hi group,
I want to send many thanks to each of you for this forum. I hope to help some of you if the need be.
I have not had my MRI yet, it is scheduled for next week and I know I'm being pre-mature in my worrying.
Are all classic hearing loss signs the symptoms of AN?
I am 61...and very young :D
I had a hearing test 2 weeks ago and was referred to the ENT. The ENT doc. wants to do an MRI study because I have gradual left sided hearing loss (some also in the right ear.). I have been experiencing constantTinnitus mostly in the left hear and some in the right.
The Tinnitus has been on and off for many years but became continual in the left ear about a 1 & 1/2 years ago.
I have no dizziness or imbalance problems that I am aware.
I am so afraid that I might have a tumor.
Thank you,
Picker2b-Pat
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Pat~
WELCOME! Since most of us here are NOT Dr.'s, we can't really answer that question AND even if we were, NOTHING gives solid proof except an MRI WITH contrast. In the meantime, know that we are here for you and will be anxiously awaiting your MRI results!
K
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Thank you Kay!
I know I should not worry at this point...but there is so much on the net that give us information that can be a great thing.....But....maybe sometimes too much info can set one up to make a diagnosis that is unecessary.
thanks for your response.
P
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As Kaybo says, there is no way of knowing until you get the MRI, but my ENT told me that only about 6% of those sent for an MRI to test for an AN actually have one.
Even if: This is a very treatable condition, and the folks on this board can offer plenty of advice about how to handle it.
Mac
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Thanks Mac,
I suppose anyone presenting with certain symptoms are sent as to R/O underline conditions.
Being a new to this.... I need to step back and breathe.
Thank all of you for being here.
P
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Hi Pat and welcome. To step back and breathe is a good thing! ;) We all try to do that on occassion :)
As everyone is noting, to have the MRI with contrast done is the only, true way to properly diagnosis an AN. Very treatable, yes to the benign.. and as you can see here, many of us are doing the best we can with this diagnosis.
If you have specific questions, try the "Search" option here as many, over time, have contributed a wealth of info based on experience and research. Hang in there... keeping fingers, eyes and toes crossed that you get your issue resolved and that all is well.
Hang in there... ok, try breathing again! :)
Again, welcome
Phyl
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greetings,, prior to 4 years ago when I had my tumor removed, I had no symptoms at all concerning the tumor. I was slowly losing my hearing in my good ear so the Dr suggested an MRI to see what all was going on. They found a tumor in the opposite ear. I am now waiting on surgery on a second tumor.,,,,,,,,Larry
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Picker:
Hello and welcome to the forum. Self-diagnosis by non-physicians is always risky and usually in error. As others have correctly noted, the MRI scan - with contrast - will tell your doctor whether or not you have an acoustic neuroma. If you do, it is not necessarily a catastrophe, as the posts here will attest. If its something else, you need to know that. Meanwhile, don't allow fears and uncertainty to control your outlook. Try to remain positive until you have something concrete to deal with. Perhaps you'll have little or nothing show up on the MRI. One never knows. For now, do 'step back', swear off the self-diagnosis and try to enjoy life.
Jim
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Thank you...I will back off.
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Picker -
there's no reason not to be proactive in your quest for an answer to your hearing loss, so don't feel guilty about your "self-diagnosis". Although the vast majority of us here aren't doctors, I can pretty much guarantee you that each of us has self-diagnosed something in our medical history - whether it was a correct diagnosis or not ;)
To answer your question, no, not all classic hearing losses mean the patient has an acoustic neuroma. There are other reasons for hearing loss. However, it is possible you have an AN.
The only definitive way to rule out or confirm an acoustic neuroma is through a MRI with gadolinium contrast, so it sounds like your ENT is moving in the right direction by ordering one.
While I'm hopeful you don't have an AN - it's not the end of the world, but not something I'd have consciously asked for :D - if you do have one, take comfort in the fact that 99.9% of them are benign. So if you have to have a tumor, it's one of the "better" ones to have.
Wishing you all the best. Please let us know what your MRI shows.
Jan
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hearing loss is only one piece of the puzzle .. and a small piece !! .. add dizziness , ear fullness , headaches .. facial numbness... and even with all that ... it could still be something else, AN's are rare..... in most cases of people popping in here... it turns out not to be a AN ...
as everyone else has said ... a MRI with contrast is the gold standard to see the tumor .. if its there, it can't hide! even on Halloween!
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Hi group,
My MRI was negative for a tumor.
Thank you again for this forum and the wonderful support you give to one another.
Thank you for listening and responding in such a concerned manner regarding my fear, you are an exceptional group of folks.
Grace and peace,
Pat
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Excellent news!
Although I love welcoming newbies, it's great to find out that a newbie isn't really "one of us" afterall ;D
Jan
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Pat:
We welcome those who have an acoustic neuroma so that we may help them in some way but we're as just as quick to congratulate those who suspect they might have an AN and post, but later find out (via MRI) that they don't. So, in this case, congratulations, Pat! I hope your doctor can get to the source of your symptoms, soon...and thanks for your generous words of affirmation for our group. :)
Jim
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Pat:
We welcome those who have an acoustic neuroma so that we may help them in some way but we're as just as quick to congratulate those who suspect they might have an AN and post, but later find out (via MRI) that they don't. So, in this case, congratulations, Pat! I hope your doctor can get to the source of your symptoms, soon...and thanks for your generous words of affirmation for our group. :)
Jim
Hi Jim,
Per the physician......It seems I have a natural hearing loss on the left side. It is mild and I can barely notice it. Not sure were the Tinnitus came from but if has been a year or more. It does not bother me as much as it did at first. He said he could not help the Tinnitus...so I guess it is what it is.
To each of you,
A Wonderful Peaceful Holiday
Pat
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Hi Pat (and Happy New Year),
I'm in a similar boat as you. I was convinced I had an AN based on my ENT's suspicion and symptoms. The MRI says i do not have an AN. BUT - I still have significant hearing loss in my right ear. This forum has been wonderful for me despite the reason for my hearing loss. Do not be a stranger to this forum. You obviously have hearing issues as do most of the people here. They can and WILL help you. Most of the people here have been through rather traumatic surgical procedures and have recovered to a relatively normal life. Regardless of the cause of your hearing loss, a normal and fulfilling life is yours just as it would be with perfect hearing.
Happy New Year to you and yours!
Mike.
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Pat:
Niacin, vitamin E and manganese have all helped reduce my tinnitus. But the biggest benefit has come to me by eating lots of steamed leafy-green vegies and salmon. For some reason, my tinnitus always decreases when I'm eating that way often. Lots of sleep is also a tremendous help.
Hope that helps... everyone is different.
Best wishes,
Tumbleweed