ANA Discussion Forum

General Category => AN Issues => Topic started by: sher on September 08, 2008, 09:51:55 pm

Title: Decided!!!!
Post by: sher on September 08, 2008, 09:51:55 pm
I am meeting with Dr Rodgers from Salt Lake Cyberknife on Friday to set up treatment. Dr. Daspit from Barrows knows him and has worked with him and Dr. M on Cyberknife forum trained him. He hasn't done very many AN's at his clinic but has done elsewhere and lots of GK. I am worried about the rate of growth the last 4 months and am hoping that it won't continue after CK. Thanks all for just being here for me to tell... No one understands the emotional roller coaster that I am on. Husband started a new job and is totally consumed in it... so feeling quite alone these days.
Thanks for being here,
Sherry
Title: Re: Decided!!!!
Post by: 28Lisa on September 08, 2008, 10:48:12 pm
hi Sher Sher, we're all here for you and we know what you're going through....

Stay Strong

(((((((((((((((((((hugs)))))))))))))))))
Title: Re: Decided!!!!
Post by: Tumbleweed on September 09, 2008, 12:26:58 am
Congratulations, Sherry, on choosing CyberKnife. That's a great choice. You're going to do just fine.

Best wishes,
Tumbleweed
Title: Re: Decided!!!!
Post by: ppearl214 on September 09, 2008, 05:51:15 am
Sher,

You know I am cheering you on.... meeting wioth the docs to discuss, face to face, will help you get the process completed (ie: your decision making process).  We're here for you and please keep us updated on how the appt goes.

Hang tough! :)
Phyl
Title: Re: Decided!!!!
Post by: MAlegant on September 09, 2008, 06:26:29 am
Hey Sher,
Good for you.  Now you can go one to the next phase.  Nothing is quite as bad as having to decide how to treat your AN. Now that you've done that, your roller-coaster ride should even out a bit.
All best,
Marci
Title: Re: Decided!!!!
Post by: cindyj on September 09, 2008, 06:31:20 am
I know you are SO relieved to have the decision made!  Congratulations!  Keep us posted on your treatment dates and how you're doing.

Take care,

Cindy
Title: Re: Decided!!!!
Post by: wendysig on September 09, 2008, 06:49:04 am
Hi Sherry,
Now that you've made the hard decision I hope you start feeling a little more relaxed.  If Dr. Medbery trained your doc in Cyberknife I'm sure you're in good hands.  I don't have any one-on-one experience with Dr. M but always had a good feeling about him.  You are not alone -- we are all here to help and support you in whatever way we can.  My husband was very  distant before my surgery and I thought our marriage was in trouble and didn't know why.  It turned out that he was feeling even more overwhilmed that I did.  He is such a control freak and he knew my AN and choice of treatment was not something he could control.  He was actually much better after my surgery.  Although it hurt me that he was not there for me when I felt I needed him most he is trying to make up for it.  I hope your husband realizes how much you need his support right now and steps up.

Best wishes,
Wendy
Title: Re: Decided!!!!
Post by: sgerrard on September 09, 2008, 07:44:50 am
I am worried about the rate of growth the last 4 months and am hoping that it won't continue after CK.

That is something that CK is pretty good at, hitting about 98% or so control of growth. You might get a little swelling, but the AN is doomed now. Congratulations on making your treatment decision.

Steve
Title: Re: Decided!!!!
Post by: Jim Scott on September 09, 2008, 09:16:12 am
Hi, Sherry:

I just want to add my congratulations on your decision to have the CyberKnife treatment. 

The (specific) treatment decision is often the hardest one to make and you've now achieved that, so the rest should a bit easier.  Your husband's inattentiveness to your situation  is unfortunate and appears to be as much a matter of timing as anything else.  I trust he'll become more focussed on you as he gains confidence in his new job, your treatment date draws closer and the reality of your needing his support becomes obvious.  As Steve correctly pointed out, the CK should certainly halt any growth and, one hopes, begin the process of necrosis (tumor cell death).     

You know you have friends all over the country Sherry,thanks to the internet, the ANA website and these forums.  Lean on us as much as you need to, we'll support you all the way, and you can count on us.  :)

Jim
Title: Re: Decided!!!!
Post by: goinbatty on September 09, 2008, 12:22:34 pm
Congrats!!!!  If you're like me, just having made the decision felt like the weight of the world had been lifted off my shoulders.  On to the next step of treatment.  Keep us udpated. 
Take care,
Sandra
Title: Re: Decided!!!!
Post by: sher on September 09, 2008, 02:08:06 pm
Thanks everyone for your supportive words.... I wish I could meet each one of you. We need to have an AN convention or something.
Sher
Title: Re: Decided!!!!
Post by: leapyrtwins on September 09, 2008, 02:21:32 pm
I wish I could meet each one of you. We need to have an AN convention or something.


Funny you should mention that.  I noticed just now that the ANA was started posting details of the 2009 ANA Symposium on the main page of this website.  Hope to meet lots of you there  ;D

Congratulations, Sher!  Making your treatment decision is often the hardest part of the whole AN process.  Bet you feel somewhat relieved  ;) 

Don't forget to put your treatment date(s) on the AN Calendar so we can all wish you well again prior to the big day.

Jan