ANA Discussion Forum

Treatment Options => Radiation / Radiosurgery => Topic started by: windy on July 28, 2008, 04:22:41 pm

Title: Going with Gamma Knife in Pittsburgh
Post by: windy on July 28, 2008, 04:22:41 pm
Well, I have finally made a decision!  I can hardly believe it myself.  Apparently, "my gut" finally kicked in and I have resolve in my decision making process.

I am scheduled for GK with Dr. Lunsford at UPMC on the morning of 8-5-08.  I feel he is a GK expert and feel good about my decision.  I will not be flying.  My family and I will take a couple of days to drive.  We will get the bulk of the trip behind us on the first day and drive the least amount on the second day.  I hope to arrive in Pittsburgh around noon on Sunday, 8-3.  I see Dr. Lunsford on Monday, 8-4.  My procedure is scheduled for the next morning.

I want to thank everyone on this forum for their input and support.  Your help in my decision making process has truly been invaluable.  I also have a wonderful group of friends and family who have prayed for me diligently.  Without everyone, there is no doubt that I would not have made my decision with such peace and resolve, as well as a head full of knowledge!  Thank you so much!
 
Title: Re: Going with Gamma Knife in Pittsburgh
Post by: leapyrtwins on July 28, 2008, 05:46:07 pm
Congratulations, Windy  ;D

I'll bet this takes a load off your mind.  Treatment decisions are always tough.

Don't forget to put your GK on the AN treatment calendar.

Thanks,

Jan
Title: Re: Going with Gamma Knife in Pittsburgh
Post by: Anomar11 on July 28, 2008, 06:35:04 pm
Windy,
Congratulations on coming to a decision.  I'm still somewhat in the process but leaning toward GK at Mayo in Sept.  I have been following your post and wish you all the best. 
Mona
Title: Re: Going with Gamma Knife in Pittsburgh
Post by: claire1 on July 28, 2008, 09:11:59 pm
Windy
Congrads on your decision. What a load off, huh. It is such a learning journey. Don't forget to keep a journal after your GK to document your feelings and how you feel, that way you can look back ,from whence you came. 
I had GK 6 weeks ago and am doing fine. You'll do great. Ask them for the drug amnesia cocktail.  I'll be thinking of you.
Take care
Claire 
Title: Re: Going with Gamma Knife in Pittsburgh
Post by: sgerrard on July 28, 2008, 10:15:33 pm
Sounds good, Windy. One week, and you will be a postie. Best wishes for a great outcome.

Steve
Title: Re: Going with Gamma Knife in Pittsburgh
Post by: GRACE1 on July 29, 2008, 07:00:48 am
Good luck with your procedure.  It sure takes a load off when you make that final decision.  I have never regretted having my GK.  You will be in my thougts.
Title: Re: Going with Gamma Knife in Pittsburgh
Post by: cindyj on July 29, 2008, 07:34:58 am
Hey Windy,

Good for you for making your decision and, really, quite quickly, I think.  (Some people (ok, me) can't seem to make a decision one way or the other.)  Everyone here says to go w/ your gut feeling and you will feel better once you do so.  Seems it has indeed worked for you!

Good luck - we'll be watching for your updates on how things go.

Cindy
Title: Re: Going with Gamma Knife in Pittsburgh
Post by: Jim Scott on July 29, 2008, 12:21:35 pm
Windy:

Thanks for your sincere statement of gratitude and congratulations on your decision to go with Gamma Knife at UPMC. 

I certainly will be thinking of and praying for you on August 5th.  May better days await you.  :)

Jim
Title: Re: Going with Gamma Knife in Pittsburgh
Post by: ppearl214 on July 29, 2008, 01:28:30 pm
hey windy and congrats! Decision making process is done... monkey now off your back!  Time to get you done and onward and upward to wellness!

Hang in there!
Phyl
Title: Re: Going with Gamma Knife in Pittsburgh
Post by: windy on July 29, 2008, 04:36:35 pm
Thank you everyone for your well wishes!!  I appreciate the encouragement.

I wish I could say I was totally light of heart now, but I still have some fears.  Is this normal?  I seem to have more and more symptomology on the right side of my face from the eye down to my mouth.  It keeps me in a worried state. 

I am relieved to move forward with treatment and certainly think I have chosen an accomplished physician in the area of AN's, but I just worry about my face and its future.  Is this unreasonable? 
Title: Re: Going with Gamma Knife in Pittsburgh
Post by: Kate B on July 29, 2008, 07:06:21 pm
Hi Windy,

Oh my gosh no...your fears are normal.  No matter what the treatment choice, there is wonder about how it will all turn out.

I believe that we all make the best decisions based on the information we have at hand and then you step forward.  No matter the outcome as there are no guarantees and these tumors are unpredictable.

You have chosen a stellar facility for gamma knife. When I did my research, when it came to gamma knife, UPMC was the institution I heard over and over again. Dr. Lunsford is renown at UPMC.

All the best,
Kate
Title: Re: Going with Gamma Knife in Pittsburgh
Post by: leapyrtwins on July 29, 2008, 09:53:35 pm
Oh my gosh no...your fears are normal.  No matter what the treatment choice, there is wonder about how it will all turn out.

I believe that we all make the best decisions based on the information we have at hand and then you step forward.  No matter the outcome as there are no guarantees and these tumors are unpredictable.


Windy -

I agree 100% with Kate.  I couldn't have said it any better myself.

Fears are totally normal.

Keep the faith; you'll do fine.

Jan
Title: Re: Going with Gamma Knife in Pittsburgh
Post by: Nancy Drew on July 30, 2008, 10:55:39 am
Hi Windy,

Hopefully I will be right behind you soon with GK.  We've discussed it, and I think you are going with a great team.  I am anxious to hear how things things turn out for you so please give us a follow-up.  Thinking of you.  Nancy   
Title: Re: Going with Gamma Knife in Pittsburgh
Post by: Pooter on July 31, 2008, 10:55:44 pm
Congrats on making your decision, Windy!  I pray that you have success like others have had with GK.  That's great!

Brian
Title: Re: Going with Gamma Knife in Pittsburgh
Post by: windy on August 12, 2008, 11:46:51 am
Gave update in Post-Treatment section.  Thanks to all for the well wishes!!