ANA Discussion Forum
AN Community => AN Community => Topic started by: Sammict on July 16, 2008, 10:31:45 am
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Hi Everyone
I had sinus surgery 3 years ago. Back then I used to get this leak from my nose everytime I bent over but I thought nothing of it I thought is was just my sinuses getting clear.
The problem would go away everytime i would get an infection which was alot. My problem is back and I thinks it's because I just had surgery on my ear drum in preperation for AN surgery this fall. My sinuses have cleared up since that surgery and the leak is back.
It is clear fluid and drips on a whim I can't control it. is it possible I have been leaking for 3 years with no other symptoms?
I have an appt next Thursday but i'm afraid to bring it up. Has anyone had anything similar could it possible be CSF leak?
Thanks Sam
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I suppose it could be - but don't really know. I would talk to your doctor about it - if it IS a leak, you don't want to risk infection - meningitis. If fluid can get out, bacteria or viruses can get it. Best to be careful.
Tammy
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I agree with Tammy, bring it up with your doctor. Maybe it's nothing, maybe not. Your doc will be glad to rule out a problem or, if need be, help you head one off at the pass!
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Sam,
I suppose it could be - but don't really know. I would talk to your doctor about it - if it IS a leak, you don't want to risk infection - meningitis. If fluid can get out, bacteria or viruses can get it. Best to be careful.
Tammy
I'm with Tammy. I heard about a patient who had a CSF leak for a year before the issue was addressed. The patient turned out ok in the end, but it was necessary to operate to patch up the leak. Please do mention it to your Dr. asap.
Syl
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it does sound like a csf leak !
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I did have a CSF leak 2 years ago. Sit down and bend your head way over. Hold a cup or tissue under the nose for several minutes. It will leak like a faucet. Drip and after so long drip again and again. I called my hospital and since it was evening and 2 1/2 hr trip they said I could wait until the next day since I was not running a temp. They put me on bedrest for a day and since there was still a drip the next day after that then did surgery.
My nose also runs at times but it does not drip. Sometimes a clear fluid and sometimes more thicker fluid. The only really positive way to see if it was CSF was to be a beta transferrin lab test which was a several day test.
I am not sure with the type of surgery you had that it would be a CSF leak for sure. I know it is a worrisome thing. My nose ran alot of a clear fluid when it ws hot after the 2001 surgery but since it did not drip when I did the bend over test than my surgeon said it was not CSF.
Cheryl R
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Sam:
I'm very suspicious that this may be a CSF leak. Call your doctor.
Jim
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Sam,
Based on what everyone said this sounds like it could be serious. Please be sure to mention this to your doc tomorrow We'll be waiting to see what he says.
Wendy
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Sam -
this sounds important. Call your doctor ASAP.
It could be nothing, but then again it could be something - so it's better to check with a medical professional.
Please let us know how this all works out.
Jan
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thanks everyone
Cheryl I took your advice and bent over and dripped in a cup it wouldn't stop dripping.
I looked up my sinus surgery and one of the risks if CSF leaK. I just can't beleive it. The doctor that did my sinus surgery is the same doc that put tubes in my ear when I lost my hearing. He never once said i should be looking for any leaks. I have thought this was normal. if i hadn't been in this forum i never would have known.
Thanks for everyone's advice I am going to call my doc. i will let everyone know how I make out.
Does anyone know haow they would test the fluid to see if it is CSF ?
Sam
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Sam--
Just saw your post and agree with everyone else in urging you to contact doctor asap. I'm not sure what the test is for CSF leak - Cheryl may be able to shed light on this.
Sending you many good thoughts.
Debbi
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The University of Iowa did the beta transferrin test and took several days even to get it back.
Darn, I was thinking due to location and where surgery was done that there was a chance it was not CSF. If you are not having headaches or fever then you are doing ok for now.
We will be waiting to see how it goes.
Cheryl R
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Sam,
You have enough people urging you to get it checked out. All I can say is that my medical team, post op, kept having me bend forward with my head down to see if anything leaked out. I can't count how many times they had me do this. This is the sign of a CSF leak according to them.
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So the verdict is in it is a slow csf leak going back to 2005 when I had sinus surgery. It looks like this is going to delay my AN surgery
that was going to take place in the fall.
I am being referred to a surgeon that specializes in CSF leak from the sinus area. They asked me to collect fluid and bring it with me on Monday morning. I am
a little nervous i don't know what to expect.
Thanks for everyones input
Sam
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Sam-
So sorry to hear that it IS a CSF leak - but it sounds like you caught it in time. Keep us posted on what happens next - you know you've got lots of prayers and good thoughts coming your way.
Debbi
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Sam:
I'm glad you at least have an explanation for the CSF leak. I'm sorry that addressing it will delay your AN surgery but it obviously has to be controlled before the surgery can be done. Consider it just another bump on the road to wellness. You'll be O.K.
Jim
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Sam -
thanks for following up on this and letting us know what the outcome was. I've been wondering.
I'm glad you asked your doctor about it. It would have been a little disconcerting to go in for your AN surgery only to have this problem discovered, as I imagine they would have cancelled the surgery at that point. Sounds like it's much better to solve this problem prior to the AN surgery.
I hope the surgeon tells you on Monday that this leak is a quick fix. Please keep us posted.
Hang in there,
Jan
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Sam--
Sorry to hear there is yet another bump in the road for you, but I'm very glad that the leak was caught before it got infected or something awful like that.
Do keep us posted on what you learn at Monday's appt, and I'll be sending you peaceful vibes this weekend. You deserve them!
Carrie
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Hii Sam,
Thanks for updating us, I have been wondering how you were. Sorry to hear your problem did turn out to be a CSF leak, tht's really a tough break. I'm so glad you had it checked out. Since my surgery is tomorrow, I will ask Debbi to let me know how you are going over the next few days. I'm sending you lots of healing thoughts and look forward to seeing future posts from you on how things turn out with the surgery to repair the leak.
Hugs and prayers,
Wendy