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General Category => AN Issues => Topic started by: leapyrtwins on June 04, 2008, 06:08:45 pm

Title: Reviewing results of annual MRI ?
Post by: leapyrtwins on June 04, 2008, 06:08:45 pm
Question for those of you who have had annual MRIs since your AN treatment and for those of you who are currenting watching & waiting.

Is it customary for the doctor who orders your followup MRIs to go over the results with you even if there is no problem with the results?  By this, I mean, do you actually get to sit down at an appointment and go over the results, have the medical terms translated, review the films, etc., with him?

I'm asking this because I'm in kind of a dilemma.

I had my first annual MRI back in mid-April and at the time the doc ordered it he said we'd go over the results at my next appointment.  Well, my next appointment was today (obviously about 6 weeks later) so not wanting to wait that long to make sure everything was okay, I sent my doc an email asking him to please let me know via email that everything was status quo.  I figured this was fast and easy for him and fast and easy for me too.  I also mentioned that I would like to go over the results "formally" at my appointment today.

My doc subsequently emailed me and said the results were great.

About a week ago I emailed my doc again and reminded him of my BAHA appointment and said I'd like to review the films with him.  He said okay; bring the CD.  When I got there today, the CD wouldn't work on the laptop computer he had, so he went to use another computer in his office while I went to work with the audiologist.

While I was with the audiologist, the doc stuck his head in the room and said "everything's perfect", handed me the CD and said "don't forget you need another MRI in a year".  This wasn't really my idea of sitting down and reviewing the results, but in all fairness I didn't protest or ask him to spend time showing me the films.

Shortly after I left his office, I was kicking myself for not speaking up and telling him what I wanted, but I also wondered if my expectations were unrealistic.  I thought that maybe I was being childish or too demanding.

On one hand, I trust him implicitly and know he's not lying to me about the results.  On the other hand, I have a need to have the surgical site pointed out to me so that I can see with my own eyes that the AN is gone (note - the CD contains tons of images of my head and I'm not even sure which pictures are relevant).  I thought I had communicated this need very clearly in my email.

In his defense, he did have another patient - with her spouse - there at the same time I was and I know he was running behind schedule.  She was definitely a new patient and for all I know she was an AN patient and I know from experience that he spends lots of time with newbies.  I also generally find my doctor to be a great doctor and despite today's lack of attentiveness I still do.

I guess my question is, do I schedule another appointment so we can really review the results? or do I just let it go, despite the fact that it's obviously bothering me?  I won't have another MRI for about 10 months.

Input, please.

Thanks,

Jan
Title: Re: Reviewing results of annual MRI ?
Post by: Debbi on June 04, 2008, 06:35:12 pm
Hi Jan-

I think that you and I are both "information junkies" who need to know a lot more than some of our doctor's other patients.  That being said, if it were me, I would probably call and schedule another appointment for the specific purpose of sitting down and actually reviewing the MRI. 

I am glad you brought this up, becuase when I go back in Sept for my first MRI I will want to make sure that I am clear with Dr. G that I want ALL the details.  Like you, I will want to see the pictures where the booger used to be! 

Meanwhile, enjoy the BAHA!!

Debbi - vancomycin junkie...

Title: Re: Reviewing results of annual MRI ?
Post by: er on June 04, 2008, 07:04:51 pm
My  doctor that did the surgery never wanted me to bring the CD he wanted the real negatives and the old ones so he could compare himself to make sure everything was ok. So I have my old negatives except for this time because I have moved to Texas and I just had a regular doctor order my MRI.
That reminds me, does any one know how many MRIs or how many years do they check on you to make sure tumor is not coming back.? I would like to know so I can schedule an appointment with a neurologist.

But if you feel that you need to have that one on one visual exam and comparisons you need to do it you are paying him for his time not the other way around.

eve
Title: Re: Reviewing results of annual MRI ?
Post by: cmp on June 04, 2008, 07:11:53 pm
Even if it's not standard for a doctor to do an in-depth review when MRI results come back OK, I think your desire to have a better understanding of what the films show and to be able to decipher them visually is perfectly reasonable and understandable, especially since this is your first annual check and you don't have another MRI for 10 months. I'd certainly request a second appt--a much better idea than resigning yourself to feeling unsatisfied and underinformed for almost a year!

Probably for most folks, just knowing they're in the clear is information enough, and I know that, for myself, before this new round with the AN I found looking at MRI films kind of creepy and wasn't really keen on seeing them (guess I associated them with that traumatic long-ago appt when the doc showed me the albino plum in my head!)

But I'm with you now, information is power, and I fully anticipate wanting to scrutinize the spot where the AN was and then wasn't!

(Also--how do you like your BAHA processor?)

Carrie

Title: Re: Reviewing results of annual MRI ?
Post by: leapyrtwins on June 04, 2008, 07:19:23 pm
Thanks for the responses.  I'm still debating this one.  I don't want to be known as a "needy" patient, yet I don't personally want to think of myself as a "marshmallow" who can't stand up for herself.

I realize I'm a control freak at heart and I don't want that to play a part in this.  I'll probably sleep on it and then decide what to do.

Carrie -

the BAHA is "different" - which is not to say that I don't like it.  But it will take some getting used to.  There are more details under a subject titled "Can you hear me now?" started by my partner-in-crime, Lori  ;)

Jan
Title: Re: Reviewing results of annual MRI ?
Post by: cmp on June 04, 2008, 08:02:58 pm
thanks for pointing me to that thread, Jan--will have to check it out... I'm intrigued by the BAHA, though I don't know that I'd be a candidate since I have so little hearing in my usable ear.

Have fun getting used to yours, and good luck with your decision!
Title: Re: Reviewing results of annual MRI ?
Post by: sgerrard on June 04, 2008, 08:07:56 pm
Jan,

I would call back and say that you thought you would be able to look at the MRI yourself on the CD, but once you did, you realized that you didn't know what to look at, so now you would like someone to show you where to look. Don't mention that you explained that three times already; act like it is a new request. Maybe you can coordinate it with a second visit to the audiologist on the new BAHA for whatever reason.

Steve
Title: Re: Reviewing results of annual MRI ?
Post by: leapyrtwins on June 04, 2008, 08:25:04 pm
Interesting thought, Steve.  Never considered that, but it's not a bad idea.

Thanks for the input  :)
Title: Re: Reviewing results of annual MRI ?
Post by: wendysig on June 04, 2008, 08:43:59 pm
Hi Jan -
Hope you don't mind if I put my two cents in.  Steve's idea is great and I agree with you that if you need the doc to go over the MRI with you, then he should, no questions asked.  Thsis is about you, not him.  It's his job to make sure you are taken care o of mentally as well as physically.  If this is what you need, then this is what you need.

Wendy
Title: Re: Reviewing results of annual MRI ?
Post by: leapyrtwins on June 04, 2008, 08:51:01 pm
Wendy -

many thanks for your two cents.  I definitely want any and all opinions - I'm looking for different perspectives - which is why I started this post.

I understand that if this is what I need, then this is what I need.  But am I being too needy here?  If you were the doc, would you feel like I was questioning your judgement or undermining your authority?  I certainly don't want to make him feel insulted - as that is definitely not my intention.

Jan

Title: Re: Reviewing results of annual MRI ?
Post by: Jackie on June 04, 2008, 11:20:11 pm
Hello Jan,

I am watch and wait and have had MRI's every 6 months. I always get the CD WITH the Radiologist's report then see my doctor for a complete explanation of both. He is an ENT and if he doesn't know the answer to my questions he is great about getting the answers for me! Next MRI is in July and I fully expect to sit down at his computer and go over the results, along with the new Audiologist's report too! I think you have a right to have the visual of what you went through explained to you! After all you have endured, it's called peace of mind, that you well deserve. Go girl!!!
Jackie
Title: Re: Reviewing results of annual MRI ?
Post by: leapyrtwins on June 04, 2008, 11:29:58 pm
Hi Jackie -

thank you so much for your thoughts.  You are confirming that I decided just about an hour ago. 

I need the peace of mind and although my doctor may or may not understand this (I can't speak for him here), I don't think he'll object to giving me what I need. 

I appreciate the validation. 

Good luck with your MRI,

Jan
Title: Re: Reviewing results of annual MRI ?
Post by: GM on June 05, 2008, 03:30:00 pm
If I don't ask for details....I don't get them.  Even though this has been a LONG process, and the same doctor is treating me, he still forgets that I am an informed patient.

So...ask about the results...I ask to see the tumor with him to see if my measurements were the same as his   :D

Gary
Title: Re: Reviewing results of annual MRI ?
Post by: Jim Scott on June 05, 2008, 04:34:32 pm
Jan:

Here's my take.  I'm usually the curious type but on my last MRI/doctor visit, my appointment with my neurosurgeon was canceled on short notice because he was in surgery longer than he intended.  Since its a 60 mile round-trip to my neurosurgeon and the MRI facility, I didn't reschedule.  Instead, I called back a few days later inquiring about the status of my MRI result and after checking with the doctor, his secretary informed me that the doctor said "everything was O.K."

I trust this doctor implicitly so I was fine with that.  But I also decided that on my next visit, I would insist on a consultation regarding my latest MRI results.  Well, my next (6 month) MRI is scheduled for June 30th and I have a consult with the doctor scheduled for an hour after the MRI (his office is next to the hospital where I have the MRI scan).  Based on past experience, I expect my doctor will put the MRI disc on his computer and explain what we're looking at because, like you and most non-physicians, it might as well be a map of ancient Phoenicia for all I can tell.  I expect to be told that he sees shrinkage and necrosis and to show me that on the MRI photos, as he's done on previous occasions.  I'll let you know.

In your case, I suspect that you were probably a tad too diffident with the doctor (a common patient reaction to physicians) but were pleased with the good news and, as you admit, didn't want to be thought of as a 'needy patient'  Hardly, Jan.  A pro-active, well-informed patient is more accurate.

I would call back, using whatever pretext you think is most effective, and make another appointment with the express purpose of having the MRI photos explained.  To justify the visit, you may have to simply explain that you need this information for peace of mind.  Put the onus on you, not the doctor, and I doubt he'll take offense.  Besides, he'll be paid for his time by your medical insurance carrier.     

Frankly, as long as I'm assured that no growth is evident (but necrosis is) I don't care that much about actually seeing the MRI scan results, but I find that my neurosurgeon gives me such a clear and detailed explanation of the MRI scan that I find myself really interested.  He also gives me a mini neurological exam and is very inquisitive about my general health, which is reassuring.  In every past visit he's praised my recovery, which is encouraging.  I trust you'll have a similarly rewarding experience if and when you choose to see your doctor again to explain the results of your latest MRI scan.  To be honest Jan, I'm pretty sure you'll make that appointment.  :)

Jim
Title: Re: Reviewing results of annual MRI ?
Post by: leapyrtwins on June 05, 2008, 05:34:13 pm
Thanks for the input Gary & Jim.

It's reassuring to know that I'm not considered "needy" - I'm considered well-informed  :)

Yesterday wasn't one of my better days, despite my shiny new processor, and I thought that maybe I was just being a little too sensitive about not reviewing the results.  My doctor and I have a very good rapport and he always listens to my concerns and answers my questions.  In addition to that, although he's not known as a "funny guy", he very obviously makes an effort to be humorous since he's realized I just can't live without a good laugh ;)  I think one of the goals of yesterday's appointment just wasn't met for several possible reasons.

I have decided to communicate my frustration directly to my doctor and see if he is willing to sit down and review the results with me.  I thought that was much more honest than scheduling an appointment through his staff and then handing him my CD once again.  I also didn't want him to hear from one of his staff members secondhand that I was somewhat unhappy yesterday.  I think I owe him the courtesy of a firsthand explanation.

I'll keep you posted.

Jim - good luck with your MRI on June 30th; I hope the results are outstanding  :)  And I just have to add, it's amazing how well you know me; you are very intuitive  :)

Jan

Title: Re: Reviewing results of annual MRI ?
Post by: Debbi on June 05, 2008, 06:47:48 pm
Hi Jan-

So glad you are feeling better about this - and your approach sounds perfect.  And, for what it is worth, I don't think you are/were being at all needy!  I would want the same level of information. 

How's Day Two of the BAHA?  (I'll check the other posts on this, too...)

Debbi
Title: Re: Reviewing results of annual MRI ?
Post by: leapyrtwins on June 05, 2008, 11:11:10 pm
Hi, Debbi -

I am feeling better about this.  Doc says he'd be "glad" to go over the results with me "personally" -  just make an appointment.  And I'm sure he is totally sincere about this; from past experience I know he's not the kind to just tell me what I want to hear  8)

BAHA Day Two has gone well - I'm learning to attach the processor much better now, did a little show & tell at work, and managed to pick up a new nickname "BAHA Benjamin"  :D 

All the sordid details are on this forum in various posts.

Thanks for asking - and for saying I'm not "at all needy".  I've been feeling a little vulnerable lately - circumstances in my personal life - and it's been making me feel like I'm needy.  This too shall pass - soon, I hope  ::)

Jan
Title: Re: Reviewing results of annual MRI ?
Post by: wendysig on June 06, 2008, 06:16:30 am
Jan -
Glad to hear you spoke to your doctor and will be seeing him about your MRI.  I was sure if he knew you really needed this his response would be positive.

Wendy
Title: Re: Reviewing results of annual MRI ?
Post by: leapyrtwins on June 06, 2008, 08:43:28 am
Actually we emailed, but it's kind of the same as speaking - unless someone is answering his email for him  :D

Seriously, I just didn't think this was something to initiate through his office staff plus I wanted to give him some time to think about my request in case this was something he doesn't normally do.  I didn't want to "put him on the spot" so to speak.

I'm not surprised his response was positive either - he's a good doctor.



Title: Re: Reviewing results of annual MRI ?
Post by: Nancy Drew on June 06, 2008, 07:07:16 pm
Hi Jan,

Sometimes I think we all forget that we are consumers.  You are not needy.  You just want more information, and you have a right to get that information.  I think it is normal what you are feeling, and I think a lot of people get overwhelmed when they go see their doctor.  I was certainly overwhelmed at my last visit, and I only remembered at the last minute to ask about the comparrison of last years MRI as compared to this years MRI especially since it grew in the past year.  The doctor just popped that CD in and showed me the difference in the shape and where it grew.  I remembered to ask for the written report but now I am wishing I had gotten a copy of my hearing test.  I am always so good about taking a "list" when I go see my primary care doctor, but I never think to do that when I go to my AN doctor.  Maybe is has something to do with really high anxiety or something.  I'm going to call and request my hearing test results.  I want to study them since he went over them so fast during our visit.  I am a control freak myself, but I also find the MRIs to be so interesting to look at.  Amazing to look at all of that brain matter.

I also don't understand why most doctors offices schedule six or more patients for every hour.  Ten minutes doesn't seem like enough.  I love my PCP.  She spends 30 to 45 minutes with each patient.  I think she just loves being a doctor and doesn't really care about how much money she makes.  What a special doctor.  When I had my first MRI the place only made films, not the CDs like they do now.  I kept my films and showed them to my PCP.  She actually explained all of the different parts of the brain to me.  I felt like I was in a classroom learning about brain anatomy!  Best wishes with your BAHA, and I appreciate all of the support and info you give on this site.

Nancy
Title: Re: Reviewing results of annual MRI ?
Post by: Kaybo on June 06, 2008, 07:30:51 pm
Jan!
I didn't see this thread until today and even though you have already contacted him, here is my input!
1) You are CERTAINLY NOT needy
2) You have to take care of YOU 1st & foremost and get YOUR needs met!

I am obviously more laid back & don't HAVE to know quite as much as you - we are 2 different people and I think that is OK.  I probably would not do anything - I know I will be seeing him again and having another scan.  Would you like to worry for a whole year or have something done right now anyway?  They'd probably tell you to watch and wait & then you would worry...I think I know you well enough to have figured that one out!  ;D  I guess the big thing is - I don't understand what you want him to show you.  Do you have specific questions?  He has already looked at it twice...that is more than usual...

I am certainly not trying to upset you...just throwing out the other side of the coin!!

K
Title: Re: Reviewing results of annual MRI ?
Post by: leapyrtwins on June 07, 2008, 01:30:13 am
I guess the big thing is - I don't understand what you want him to show you.   He has already looked at it twice...that is more than usual...


K -

excellent points!  I think this is where I get the feeling that I'm appearing "needy".  He has looked at the films twice and there is really nothing to show me - except the place where my AN used to be.  I have read the radiologist's report and get the gist of it, although a lot of medical terms puzzle me; yet I feel like I need a personal explanation/translation from someone. 

So the question becomes, why am I letting the lack of a formal review bother me?  Why do I need my "hand held" so to speak?  I'm normally not an unreasonable person, but I'm thinking this could be considered unreasonable but lots of people.  I'm not sure I know the answer to these questions 100% and I think that's one of the things that is bugging me.  It's almost a psychological thing, and as someone who almost flunked Psychology 101, I'm doing a lousy job of psycho-analyzing myself  ::)

I saw the AN on my first MRI, but only after the neurosurgeon pointed it out to me - even though when he did it was right there in front of my nose.  The disk of my second MRI has a million pictures of my head - obviously an exaggeration on my part, but there are numerous ones - and I have been unable to locate where the AN was and see with my own eyes that it is now gone.  At the risk of sounding "off my rocker", I really just want someone who has a medical degree to show me the relevant picture and say "See; there's nothing there".
 
It may have something to do with the fact that most things in my life - especially lately - are about someone else and what they need.  Subconsciously I'm probably feeling like it's time to take a stand and ask for what I need for a change and this just happens to be the event that I've decided to take a stand with.   

It's difficult to explain.  I totally trust this doctor and I have absolute confidence that he is telling me the truth, yet I still feel I need the peace of mind of reviewing the results with him which makes it appear that I don't trust him at all.  Maybe I'm just having a long overdue "it's all about Jan day".  Maybe it's because this is my first post op MRI.  Maybe I won't feel this way every year.  I honestly have no clue.

Jan, totally confused in IL (not the first time, probably not the last)  ;)



Title: Re: Reviewing results of annual MRI ?
Post by: wendysig on June 07, 2008, 07:20:42 am
Hi Jan,
I don't think you're being at all unreasonable or needy.  You have gone through a major event in your life by having an AN and surgery.  You've reached a major milestone with your first anniversary.  I don't find it unreasonable to want to understand everything in the report and see for yourself the exact place your AN used to occupy and that there is nothing there now.  If this is what you need for your peace of mind there is absolutely nothing wrong with that.  I'm sure your doctor would agree and not be at all offended by your request.  Everyone needs their hand held at one time or another.  This is one time you need your hand held and I'm sure your doctor won't mind holding it.  As I said before this is about YOU not him.

Wendy
Title: Re: Reviewing results of annual MRI ?
Post by: Kaybo on June 07, 2008, 08:14:08 am
Jan~
 
I think you deserve an "All About Jan Day" -- maybe you should go see your Dr. & then go to the spa or something -- do something for YOU!!   :-*
I think you may have hit the nail on the head in what you are trying to discover about why you feel this way.  You are not doing enough to refill YOUR buckets so that you can keep giving to everyone else all the time (your kids, your house situation).  Again, you need to do what YOU feel you need!  Sounds like you have a GREAT Dr. who totally understands this!!

K
Title: Re: Reviewing results of annual MRI ?
Post by: Debbi on June 07, 2008, 08:31:32 am
Me again - with my two cents worth.  Jan, I totally understand your need for information and maybe that is why I don't view it as needy at all.  Now, my perspective may be skewed - I am the one who never goes to the any doctor without my list of questions.  I have always been the most nervous and afraid of things I don't understand - so, for me, needing tons of info is my way of keeping the fear away.  I am the offical medical "researcher" in my family - whenever anyone gets anything, I'm the one online reading and making lists of questions for their doctors.  Yep, crazy, but it works for me.

So, that's just a long way of saying - if you need more information in order to feel calm, go for it!  I am going to want a blow by blow when my firs tMRI comes around, you can be sure of that! 

As Kay so correctly pointed out, we're all different and all have different needs and capacity for information.  Don't feel bad or "needy" about asking for what you need!

Debbi - information junkie...
Title: Re: Reviewing results of annual MRI ?
Post by: leapyrtwins on June 07, 2008, 11:07:08 pm

I think you deserve an "All About Jan Day" -- maybe you should go see your Dr. & then go to the spa or something -- do something for YOU!!   :-*


Instead of the spa, maybe I should just ask my doctor if he has a private island that he'd be willing to let me use LOL

Seriously, thanks guys.  I'm feeling more comfortable with my quest for personal peace of mind and since the doc is willing to sit down and review things, I'll most likely schedule an appt. very soon.
Title: Re: Reviewing results of annual MRI ?
Post by: leapyrtwins on June 18, 2008, 09:42:47 pm
Just wanted to follow up on this thread and tell everyone how things worked out.

I had an appt. this morning to go over my MRI results with my doc.  I almost cancelled before the appointment, because I woke up with K's comment in my mind "I don't understand what you want him to show you" and it made me feel kind of silly because K had a great point.  But I decided that if my doc was willing to honor my request to go over my results personally, it was my job to not cancel on him.  In the end, I was very glad I kept the appointment.

Despite the fact that I started the conversation asking him if he thought I was "crazy" for wanting to go over the very positive results, to give the man credit he said he understood my need for peace of mind and I don't think he was just pacifying me.  He asked specifically what I wanted to see and didn't laugh or roll his eyes when I said I wanted to see where my tumor "wasn't"  8)

He spent a good amount of time going over the new films with me and showed me the difference between them and the old films.  He also pointed out things in my head that I had no clue about - "this is your hearing nerve", "this is scar tissue", etc. and explained some very fascinating stuff.  I found out that the MRI machine at the hospital were I had my MRI is a great place to go because it doesn't "pick up" the belly fat in my head, which might be misconstrued as something else by a radiologist who didn't realize I had AN surgery.  He also told me that you can't see the titanium screws or mesh in my head because MRI machines don't "pick up" titanium.  He gave me a scientific explanation for that one, but I have to admit, it was over my head - so I kind of nodded and pretended to know exactly what he was talking about ;)

We also went over the radiologist's report and he translated the medical terms into English for me.  Among other things, I found out that the "defect" in my head that was referred to was not really a defect afterall - it referred to a bone in my head that was missing due to the surgery. 

I also asked my doc if it was normal for him to review MRI results with patients when there are no problems present and he assured me that it all depends on the patient.  Some of his patients want a "formal" consultation, some are okay without one.  I, in turn, told him pretty much what I've said here - I trust him completely and didn't doubt what he had told me about my "perfect" results but I had a need to go over them and see things for myself.  I also mentioned that although I'm usually a "tough guy" I found that I needed my "hand held" a little, so to speak. 

It was a very productive conversation and it topped off a very educational morning.  I came away with a greater sense of peace.  I also reaffirmed to myself that my doc was the best choice for me - which was a wonderful reaffirmation.

Jan

Title: Re: Reviewing results of annual MRI ?
Post by: claire1 on June 18, 2008, 10:16:44 pm
Jan

You are absolutly not childish or needy.  You are a patient that has had major surgery and one that is continuing.  Your dr seems to be very up-right with you in the past and you seem to have great respect for his opinion. I believe that he will honor your request for him to go over the MRI with you without any imbarressing reprocushions. (pardon the spelling, fingers working overtime *)) You chose him to do the surgery and you have done your homework well. I think being honest and up-front with him concerning your need to "Make Sure It's Dead" is not an unreasonable request. I think he will welcome it as an oportunity to educate and dismiss your worries.

Sometimes we forget surgeons are human and won't be understanding about the patients concern.  Let me digress;

My surgeon call me last week to ask me about a letter he got from another surgeon I had seen.  I told him I was seeking out all my options to make sure I was doing what was best for me. After talking for about a 1 &1/2 hours he said that he  had learned so much about patient concerns that the day I had surgery he was still impressed of how much clearer his thinking was in terms of what a patient goes through,not only dealing with the surgery but the emotional and psychological aspect of it as well.  This made an impact on me as well that I had "Done well" in choosing a surgeon that is open to talking with and listening to his patient.  BTW, He call at 6:45 at night.  He said that many times dr's get wrapped up in their day to day bussiness (US) that they forget that the human factor is there and it's patients like me that are there to remind them.

So, Jan, YOU GO GIRL
Claire
Title: Re: Reviewing results of annual MRI ?
Post by: Kaybo on June 19, 2008, 11:41:14 am
Jan~
I feel so bad - I shouldn't have said anything - I was just stating what a dumb blonde thinks!!  I'm so glad that you did what you needed to feel at peace.  Sounds like your Dr. is awesome and that you really get even more than you bargained for!!

Sorry!!   ::)
K
Title: Re: Reviewing results of annual MRI ?
Post by: lori67 on June 19, 2008, 12:28:25 pm
Jan,

Glad you got to sit down with your doctor to see where your tumor "wasn't".  I don't know how he didn't chuckle a little when you said that!

There's nothing wrong or abnormal about wanting to go over your test results in detail, and you went about it the right way by making an appointment to do it.  Some people want to just try to catch the doctor between patients or squeeze in their million questions at an office visit for another reason.

And we know you accountant-types like to have your ducks in a row and your head "defects" explained.   Not everyone wants that much information, but to each his own!  Besides, you would have driven yourself crazy for the next year until your next MRI wondering if you should have insisted on having the results explained to you.  (and we all know, you're crazy enough as it is!   :D)

I was given a copy of my CD the day of my MRI and my appointment with my doctor wasn't until a few weeks later - that gave me ample time to play with the CD on my own and take a look at the comparisons between last year and this year.  I'm definitely not a radiologist, but I have some idea of what should and shouldn't be there, so when my doctor popped in the CD at my office visit and went over it very briefly, I was content with his "Looks great!".  But you have to do what's going to make you feel content.

Now you don't have to worry about it for another year!   ;D

Lori
Title: Re: Reviewing results of annual MRI ?
Post by: Jim Scott on June 19, 2008, 01:25:12 pm
Jan:

Thanks for the update on your MRI results/consultation with your doctor.  I'm glad to learn that you had the discussion with and explanation from the doctor that you felt you needed and now have a better understanding of your MRI results and why they're good.  Your doctor sounds a lot like my neurosurgeon.  He'll give me as much time as I need or as little as I want to spend.  I do expect to have a thorough explanation of my latest MRI when I see him in about ten days.  I know he won't mind at all.   



Jim

Title: Re: Reviewing results of annual MRI ?
Post by: cmp on June 19, 2008, 01:49:45 pm
It's great that your "educational" appt worked out well, Jan! Sounds as though your doctor understood exactly where you're coming from and will accommodate your preference for more vs less info in the future.

I'm normally ok with less vs more myself (though that's actually been changing of late...), but I have to admit his topographical guide to your film (ie the scar tissue, the acoustic nerve, learning that your "defect" wasn't exactly a lifelong trait!) sounds awfully appealing to me. Certain medical/anatomical terms get thrown around so much, seems truly understanding them can only be a plus...
Title: Re: Reviewing results of annual MRI ?
Post by: leapyrtwins on June 19, 2008, 05:08:51 pm
Thanks for the validation, Claire and for sharing the doctor story.  IMO any doctor who will listen to a patient's opinion for 1 1/2 hours should be knighted  ;)

K - absolutely no reason to apologize; as I told you before you were 100% right in what you said - which is what made me question myself.  But questioning myself also led me to have a much more comfortable conversation with my doctor by acknowledging that I thought I was being silly but that didn't change my need for peace of mind.

Lori - for someone who's never met me in person, you know me so well it's frightening!  I knew that without an appt. I would have driven myself crazy.  I explained that one to the doc too.  At this point, he probably knows me just about as well as you do.  I didn't mention the tattoo though!  A girl's got to have some secrets  ;D

Jim, it sounds like we both have great doctors  :)

Carrie - although you say you usually like less vs more, I encourage you to spend time with your doc going over your next MRI.  I work for a medical association, but I'm an accountant so I am totally clueless when it comes to medical terminology.  Viewing the radiologist's report by myself made me feel like I needed a medical dictionary just to get past the first sentence  ::)  I found my doc's "tour of my head" absolutely amazing.  I also understood the report so much better once he translated it for me.  You know, if these MDs would just talk in terms the average person can understand, I think patients would be a lot less confused  ;)

Jan
Title: Re: Reviewing results of annual MRI ?
Post by: lori67 on June 20, 2008, 10:04:02 am
.  I didn't mention the tattoo though!  A girl's got to have some secrets  ;D



Jan

Well, at least make him buy you a drink first!  And can we all take a tour of your head when we're in Chicago sleeping in your back yard?

Lori
Title: Re: Reviewing results of annual MRI ?
Post by: leapyrtwins on June 20, 2008, 05:34:52 pm
Well, at least make him buy you a drink first!  And can we all take a tour of your head when we're in Chicago sleeping in your back yard?

Did you miss the symposium agenda in the latest issues of ANA Notes  ???  It was right there on page 3 "Tour of Jan's Head" given by her favorite doc.  I'm even sponsoring this event  ;D

Oh, and I think that Steve's buying drinks for all the forumites, as well as all the doctors, in attendance, so that won't be an issue  ;)

Jan
Title: Re: Reviewing results of annual MRI ?
Post by: lori67 on June 20, 2008, 06:54:06 pm
Great!  Will this be like a Disney ride where we sit in little boats while music plays and we admire all the parts of your head as they sing some catchy song?  Oh wait, it was your hands that are big, not your head, right?   :D

Lori
Title: Re: Reviewing results of annual MRI ?
Post by: leapyrtwins on June 20, 2008, 10:13:53 pm
Well, now that you ask, I have to confess that the plans for this event haven't been finalized yet.

But there may be something to that whole Disney boat idea and the annoying (I mean catchy) song.  I'm remembering "It's a Small World" here  ::)  I wonder how much money it would cost to come up with those little boats?

BTW, just how many times do they sing that darned song while the boat is floating through those various worlds  ???

Yes, it is my hands that are big - at least that's what Steve said.  I'll bet he's glad he's not knitting me gloves  :D

Jan
Title: Re: Reviewing results of annual MRI ?
Post by: wendysig on June 20, 2008, 11:49:58 pm
Hi Jan -
Just tjought I'd add my two cents worth.  I'm glad yo had your appointment with your doc.  I was sure he would understand you need to see where your AN wasn't and  explain the report.  Good doctors understand what an emotional issue this is for patients even though it may be an every day event to them.  I give your doc a lot of credit for doing what he did.  I'm sure he didn't" mind holding your hand" a little.  He sournds like a really good person.  I'm glad you have the peace of mind you were seeking and can now relax about the matter. 

Wendy