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AN Community => AN Community => Topic started by: ppearl214 on May 20, 2008, 11:21:56 am

Title: Sen. Edward Kennedy has a malignant brain tumor
Post by: ppearl214 on May 20, 2008, 11:21:56 am
http://www.thebostonchannel.com/news/16339284/detail.html


Regardless of what your political inclinations may be, this is hot off the press.  this is a man that helped me, due to my AN, bring the bloke into the country. A huge debt of gratitude from me to him is owed.....

confirmed that it is a malignant glioma

http://www.boston.com/news/local/breaking_news/2008/05/mass_general_sa.html



I thought I'd share this with you all... as we never know who becomes afflicted with these head boogers. I'll be phoning his office to extend my prayers and wishes to him (and his family).

Just FYI.....
Phyl

Title: Re: Sen. Edward Kennedy has a malignant brain tumor
Post by: Sue on May 20, 2008, 12:02:57 pm
Well, that's too bad.  I am sorry for Senator Kennedy and his family.   :'(

Sue in Vancouver, WA
Title: Re: Sen. Edward Kennedy has a malignant brain tumor
Post by: Jim Scott on May 20, 2008, 01:27:14 pm
I'm so sorry to learn of this.   I'm sure millions of Americans will feel the same, regardless of any differences we might have had with Senator Kennedy's politics in the past.  My brother-in-law died (a few years ago) from brain cancer despite the very best treatment money could buy (Johns Hopkins, etc).  It is a vicious form of cancer.  This is truly a tragedy.  My prayers go out for Senator Kennedy and his family.

Jim
Title: Re: Sen. Edward Kennedy has a malignant brain tumor
Post by: Soundy on May 20, 2008, 03:19:25 pm
Prayers to him and his family...
Title: Re: Sen. Edward Kennedy has a malignant brain tumor
Post by: yardtick on May 20, 2008, 03:40:14 pm
Prayers from Canada.  The Kennedy legacy has always fascinated me. 

I did a major American history project on the family back in 1978.

Anne Marie
Title: Re: Sen. Edward Kennedy has a malignant brain tumor
Post by: ppearl214 on May 20, 2008, 05:54:03 pm
Local tv channels are only broadcasting "breaking news" of his updates. Currently, he is at Mass General (as many here know, he's in fab hands there!) and they are now talking FSR and chemo for him.  Unsure of the dynamics of his growth besides it being a glioma (size unknown).  Iain (the Bloke) and I are following closely and I've left a message to his office here in Boston sending our wishes.  He was there for us in our time of need... not even realizing my AN was his mode to help get Iain through the immigration nightmare we endured... and now, both of us sit here, wishing we could do something in return......

Jim, I'm with you on this and sorry to hear of your brother-in-law.  As many here know, I lost a sister to a malignant brain tumor.  We know Kennedy has access to nothing but the best and we send continued wishes and prayers to him and his family.

Really having a tough time with this.... in my/our case, too close to home..... knowing what he has done for us.. as well as a BT diagnosis, although his is worse situation than mine.   Really at a loss.

Phyl
Title: Re: Sen. Edward Kennedy has a malignant brain tumor
Post by: Kate B on May 21, 2008, 06:29:20 am
The Kennedy legacy has always fascinated me. 

Anne Marie

Me too! 
Title: Re: Sen. Edward Kennedy has a malignant brain tumor
Post by: Cheryl R on May 21, 2008, 07:29:26 am
It's too bad that the tv news stations can't discuss and go into the great detail about AN's as they have about Kennedys glioma.              Just think what proper information we could give to patients and doctors if it ever was.           Don't we wish!
                                         Cheryl R
Title: Re: Sen. Edward Kennedy has a malignant brain tumor
Post by: MaryBKAriz on May 21, 2008, 08:23:13 am
Phyl,

I too am sad about this. Seeing McCain talk about him with his voice cracking made it obvious how highly he is thought of on both sides of the aisle. Ironically yesterday I watched coverage of this on TVs at the Radiation Oncology department at BNI while I was getting my preps done for the CK. I feel blessed my diagnosis was so very much better. I cannot imagine what he and his loved ones are dealing with. I am sure there are a lot of heartfelt thoughts and prayers for he and his family from across the nation.

I send you hugs Phyl!

Mary
Title: Re: Sen. Edward Kennedy has a malignant brain tumor
Post by: jerseygirl on May 21, 2008, 12:28:59 pm
I am so sorry about Kennedy's diagnosis. I wish there is anything I can do but hope that a miracle occurs and the Senator beats the odds. I just read a chat transcript about the diagnosis. I believe our Phyl is in it! Here is the link:

http://www.boston.com/news/local/massachusetts/articles/2008/05/21/chat_transcript_dr_andrew_norden_answers_questions_about_brain_tumors/


                        Eve
Title: Re: Sen. Edward Kennedy has a malignant brain tumor
Post by: ppearl214 on May 21, 2008, 12:40:55 pm
dang, eve!  You found me! :)  yes, was an enlightening chat discussion (don't tell my boss, tho', as I was suppose to be doing financial spreadsheets).  The dr was kind enough to answer some really awesome questions.

The senator has been discharged and is now back at home. 

Phyl
Title: Re: Sen. Edward Kennedy has a malignant brain tumor
Post by: jerseygirl on May 21, 2008, 12:51:36 pm
Phyl,

You ask some amazing questions!  What a great discussion there! By the way, I am not going to tell your boss but I have to warn you that this article made national news. That is where I found it!  ;D

             Eve


                   
Title: Re: Sen. Edward Kennedy has a malignant brain tumor
Post by: HeadCase2 on June 02, 2008, 06:22:43 am
Sen . Kennedy is undergoing surgery at Duke today.
Title: Re: Sen. Edward Kennedy has a malignant brain tumor
Post by: leapyrtwins on June 02, 2008, 07:11:43 am
I just read that on MSN.com

It also said that he'll do his post op chemo at Mass General.

Although I'm not fond of Senator Kennedy's politics, I wish him well and will keep him in my prayers today.

I hope they can remove the entire tumor and that with chemo he'll be able to live many more years.

Jan

Title: Re: Sen. Edward Kennedy has a malignant brain tumor
Post by: Brendalu on June 02, 2008, 07:33:36 am
I have my pirate sox on for Senator Kennedy and a few others today.  Good thoughts and prayers going out to all of these brave people.
Brenda
Title: Re: Sen. Edward Kennedy has a malignant brain tumor
Post by: MLB57 on June 03, 2008, 11:11:43 am
Hi guys--Yes I'm following Sen Kennedy's  progress as I was born and brought up here in MA and admire him for everything he's been able to accomplish--I am also very interested to find out what kind of radiation he will have at Mass General as I had my FSR there last fall--the news reports mention "targeted" so I'm wondering it will be Proton Beam or FSR (LINEAC). ???

Talk later, Regards, Mary   ;D
Title: Re: Sen. Edward Kennedy has a malignant brain tumor
Post by: ppearl214 on June 03, 2008, 12:01:13 pm
GrammyMary, I was wondering that as well.  Although I may/may not agree with the politikal aspects, he was there for me (who woulda thunk my trifecta of medical, incl my brain booger) would have him help us in the way he did... and now... with his situation, wishing I could do more to help. Prayers and wishes continue for him. 

Phyl
Title: Re: Sen. Edward Kennedy has a malignant brain tumor
Post by: msuscottie on June 03, 2008, 02:18:31 pm
Here's a link to a video clip with the Dr. who actually performed my sugery (Dr. Pieper) talking about Sen. Kennedy's tumor/surgery/doctor. If you click the link the video is on the right hand side. It was on the news here in Detroit.

http://www.wxyz.com/content/news/health/story.aspx?content_id=2de29bce-0d73-4c32-b51e-2823f9d7c45a (http://www.wxyz.com/content/news/health/story.aspx?content_id=2de29bce-0d73-4c32-b51e-2823f9d7c45a)
Title: Re: Sen. Edward Kennedy has a malignant brain tumor
Post by: HeadCase2 on June 03, 2008, 03:00:59 pm
Scot,
  We may never hear the details of Ted's treatment plan.  Your doctor was mentioning some of the things I've been thinking where possible treatment options.  I'm somewhat familiar with Duke's Tish Brain Tumor Ccenter.  Something like 60% of Duke's Brain Tumor patients are involved with clinical trials, which is a high percentage.  I've been wondering if they are going to try one of the viral therapies.
Regards,
  Rob
Title: Re: Sen. Edward Kennedy has a malignant brain tumor
Post by: Captain Deb on June 04, 2008, 11:00:25 am
Dr Friedman, who performed Sen Kennedy's surgery, was my cousin Cam's surgeon 5 years ago. Cam was diagnosed with a very agressive form of brain cancer just a few months before my AN was found and we sort of went through our treatments together, but with very different outcomes. We even had "mirror image" incision scars. Cam survived less than 16 months, but that was 6 months longer than they expected. Despite headaches, facial issues, eye problems, balance problems, single-sided deafness, and other issues we may have, we are all very lucky to be alive. Prayers go out to Senator Kennedy and his family.

Capt Deb
Title: Re: Sen. Edward Kennedy has a malignant brain tumor
Post by: Brendalu on June 04, 2008, 11:18:33 am
I agree Captain Deb, and I am very sorry for your loss.  Everytime I start feeling sorry for myself, I think about others who are far worse off than I am.
Prayers for Mr Kennedy and a hope that he lives as long as your cousin did.
I kinda think it's funny when people think I've been hitting the bottle at 6 a.m. when I'm out for my morning walk!!
Brendalu