ANA Discussion Forum
Post-Treatment => Post-Treatment => Topic started by: Soundy on March 13, 2008, 05:42:47 am
-
or smack my doctor upside the head but since I am not a violent person
I will just cross my eyes and moan and vent here
Ringing in deaf ear seems to be getting louder and have had an ear ache ... I went in
to be checked for an ear infection and there was none ... more steroids were prescribed
then we moved on to talking about the BAHA fight...
I mentioned talking to people here and similar problems with getting it paid for ...
I was told that maybe I was causing myself more problems by reading too much here...
asked if anyone else had mentioned more ringing in their ears... >:( ... told me sometimes
people in a rough spot take on the symptoms of others with similar problems to justify not
feeling their best
So we are all just making each other sick and can close this board down and go home :o ... we don't have
ringing in the ears ,dry mouths or metal taste , droopy eyes , drooping mouths or memory problems...
we are not dizzy and no not have headaches other than those cause by worrying too much about
all the things we don't have... there is no such thing as WONKY HEAD :o
OK... all better... he may be able to go and and get these things out but is almost worthless
as far as treating after effects of surgery ... he honestly does not understand how I feel... he is
nice and I like him but still want to give him a smack like on the V8 juice commercials
and if he felt like coming here and sharing was a bad thing
why does he have the info to get here in his pre-op stuff he gave me ???
-
Soundy -
very interesting perspective from a medical professional. Obviously, I totally disagree with this opinion.
How insensitive! I wonder if the ANA has some kind of "bad response award". We could nominate him and have it presented at the 2009 symposium.
Good for you for restraining yourself and not telling him what you thought of his medical advice; I couldn't have been so nice.
Jan
-
I can't say what I'd like to say to this one!
-
Nancyann
I'll say it --WHAT AN INSENSITIVE MORON!
Surely as a medical professional he's heard these issues before. I mean obviously none of my symptoms and issues were present before I joined this group. Duh. Then why did I seek out this group? Soundy, maybe we should all start a letter-writing campaign to him describing our "imaginary" ailments.
Still wobbling through life with a big eye, halfsmile,and salty-tin tasting mouth (in spite of what he thinks)
David
-
David -
the letter writing campaign is a great idea. I'm in; just tell me when we start.
I read this a few hours ago and I still can't believe it. What a jerk!!!
Jan
-
ya know, when I saw Soundy's post this am... I had to take a step back and really try to be unbiased in viewpoint. I showed it to my bloke to get his thoughts on it.....Bloke says to me that sometimes when we go to the dr's, they may say something and "selective hearing" may interpret what is said as to be one thing... when the dr may have meant something different. Now, I sit back and say... ok, maybe this dr doesn't know how to actually treat what has been presented and instead of saying "I don't have definate answers to try to resolve your issues but we could try this or that and see how it goes", the dr may "cop an attitude" instead.
Now, having time to get to know Soundy and know the kind of person Soundy is :-*... and not one for complaining, I know this was a scenario that Soundy needed proper attention...... so, very unlike Soundy to complain......
I was recently prescribed meds by my dr to help headaches. Many here have recently posted their terrible times with this particular med. Now, I haven't started the med yet due to other issues... but, for me to go back to my dr and say "ya know what? I read many on the forums that have used this med and they are having a brutal time with it"... my dr may say the same as Soundy's dr.... and she may note to me that "individual results may vary, so stop listening to the folks on the boards and see how it does for YOUR particular situation".
I'm torn on this one.....
but, I say we keep the forums... dang it! :)
Phyl
-
Doctor's don't seem to be too happy dealing with people who are knowledgeable about their illnesses or disabilities. My experience has been that they really don't like to be questioned. There are exceptions of course.
-
Well, apparently that one doctor who has probably never had his head radiated, cut open or dug around in knows more about the after effects than the 2936 of us here who have! I guess it's just all "in our heads", huh?
I'd go with the V8 smack to the head for this guy.
I understand that doctors are probably bombarded these days by "I read it on the internet" from patients, but when all of the things that your are exeriencing are known to be caused by AN's and their treatment, I'd hardly think you were making it up as you go along. If he doesn't feel that he can treat you properly or adequately, then he should be referring you to someone who can.
While you're at it - give him another smack in the head from me.
Lori
-
Some time ago when I mentioned my internet usage, my doctors only comment was that you can't believe all you read on the internet. I have been now involved with AN's since 2001 and I am slowly seeing my dr acting more believable of the after effects of all this even though he has been doing AN's for much longer.
No ANA newsletter yet in Iowa also. There have been times that I seem to have got mine earleir than others. It will get here.
I just talked to a friend who is having AN symptoms. She has her hearing test showing hearing loss that is not age related according to the ENT. This is her 2nd ENT as the first said it couldn't be AN. She was given 4 days worth of steriods for possible fluid in the ear. She goes back in April and I told her demand the MRI with contrast. She says she is not as scared as she might be with seeing how I have done.
Soundy's dr needs a big attitude adjustment! That is horrible!
Cheryl R
-
I understand that doctors are probably bombarded these days by "I read it on the internet" from patients, but when all of the things that your are exeriencing are known to be caused by AN's and their treatment, I'd hardly think you were making it up as you go along. If he doesn't feel that he can treat you properly or adequately, then he should be referring you to someone who can.
Lori
Very well said, Lori. Much better than my "jerk" explanation - although I still stand by it ;D
I'm waiting to see Jim Scott's thoughts on this. He always says things that I wish I had said, and he says them so eloquently too :)
Jan
-
I just talked to a friend who is having AN symptoms. She has her hearing test showing hearing loss that is not age related according to the ENT. This is her 2nd ENT as the first said it couldn't be AN. She was given 4 days worth of steriods for possible fluid in the ear. She goes back in April and I told her demand the MRI with contrast.
Cheryl R
Cheryl -
please make sure you followup with your friend in April. It seems like I've read so many stories on this forum recently from people who were misdiagnosed or who weren't diagnosed for years. I think a lot of doctors, ENTs included, just aren't aware of ANs and what to look for. In your friend's case, it might turn out to not be one, but then again, it just might. Better to err on the side of caution, IMO.
Jan
-
Jan
I'm with your "Jerk" and my "Moron" explanations.
A true wonky-head,
David
-
Oh don't get me wrong - I think "jerk" is perfectly appropriate in this case! And many others.... hence the two head slaps!! :o
-
Hi Soundy
Someone in my family had at one time suggested that maybe my AN symptoms were all in my head.
Well, I know they are and I have the MRIs to prove it.
It really hurts when someone I trust, such as a family member makes a comment like that. But it makes me angry to know that a Dr. could be so insensitive.
I'm sure Drs. do get tired of being challenged by patients who get info from anywhere and everywhere on the internet. But thanks to the internet, I have this AN discussion forum as a resource.
I'm so sorry that your Dr. could be so insensitive. Could it be time to seek help elsewhere since this Dr. doesn't have the answers and will not admit it?
Syl
-
I'm waiting to see Jim Scott's thoughts on this. He always says things that I wish I had said, and he says them so eloquently too :)
Jan
I second that one!
Phyl
-
OK...here is my two cents (if it is even worth that!)! I agree that he is just a big-ole jerk and I would like to give him a slap too! That being said, I think that sometimes symptoms can be "realized" after reading/hearing about them...have you ever noticed that a LOT of women don't have morning sickness until they go to the Dr. & find out for sure that they are pregnant?? I know that in my case, I had just kind of gone on with everything b/c I didn't know any different. After I got on here, I thought, "Wow! There are a lot of people w/ the tinnutis (sp?) thing -- I'm sure glad I don't have that!" and then I was laying in bed one night in the silence and realized "I DO have that!" After so long, I had just gotten used to it (it CAN be done!)...if I hadn't read so much about it here, I'd probably just gone on & never thought about it. Does it affect my life? No, but I am AWARE of it now...same with facial fullness. Do I think I am making this up or that it is empathy? No, I just think I had been coping with it in my own way and now it has been brought to my attention again...does that make sense at all?
I still think we should tackle that Dr.!!! ;D
K
-
I will make sure she keeps at the doctors for what ever it takes. I was one of those who saw one ENT and when I asked if it could be a tumor,he said I just get anxious. I refused to go back to him. I did eventually get an apology out of him when had to take an elderly relative to him at a later date.
I am going on my 3rd tumor surgery in April so she is aware of what all I have been thru.
Where is your taxidermist relative in MI located? We have a daughter in Lansing.
Cheryl R
-
what I don't get is that what I mentioned as coming from here was not medical but the
trouble getting BAHA paid for by insurance and he goes off in another direction totally...
I just came in from a full day of school and I don't think that it was at all good for me...I
have a headache and have been thinking about this all day and steaming... I know we are
not imagining things and he does too ... and I don't think coming here has made me worse
as he has implied...
I had a point that has got lost in my foggy brain... between lupus brain fog and AN wonky head
it is a miracle I find my way home and know my name :)... I am napping and will
catch up later and maybe remember what I waned to say
-
Where is your taxidermist relative in MI located? We have a daughter in Lansing.
Cheryl R
My brother lives in the middle of nowhere in a town called Barryton - has 40 acres and a "log cabin" - his kids have to trek 20 miles to school. His shop is currently located in Clare @ Jay's Sporting Goods. He's also a big game hunter - been to Alaska & Africa. My other brother is a systems analyst for a major pharmaceutical company in NJ. They are as different as night and day - go figure ;D
Jan
-
Oh Soundy,
Drs loose touch with reality and they loose their personality. I had a jerk, moron, idiot, butt hole of a dr and because of him I found this wonderful forum. So go figure something good did come out of the experience. Today my head is pounding too. A Colorado low blanket Southern Ontario today. We are all her for you.
Take care of yourself, a sister in pain!
Anne Marie
-
Went to my PCP Friday because ears hurt more and the top of my head felt heavy ( best way I
can describe it )
the sinuses above my eye brows and along cheek bones showed up all nice and white instead of the
normal gray...which meant they were full of fluid and infection... now three days later with antibiotics
and decongestants my head feels better and ringing has went back to it's annoying level instead of
the deafening level it had risen to... :)
I have had no sniffling or sneezing or drippy nose... just the increased ringing and headache...
At least I know it is not all in my head , even though it was all in my head... ;)
-
Infection, hmmmmmm. Sorry to hear this and hope you have recovered nicely. This makes me wonder if I'll be getting an infection just because I read this post! Gotta go wash my hands. YUK!
-
Infection, hmmmmmm. Sorry to hear this and hope you have recovered nicely. This makes me wonder if I'll be getting an infection just because I read this post! Gotta go wash my hands. YUK!
Arushi, that is too funny. My husband, the germ-a-phobic, will love it!
Soundy,
I am very proud of the control you showed in not 'bopping' your doctor. I have been using my same ENT for about 15 yrs. and just love him as a person. Unfortunately he did not find my AN. Since he is a young 'whipper snapper' (to those of us over 50), I might just 'bop' him if he starts making comments like your dr.
Hope you are feeling much better today. Wishing you a complete recovery soon. :)
Annette
-
Reminds me of when I told my MALE obgyn that I felt the baby move for the first time. I was so excited. He said, "It is too early to feel the baby, you probably just had gas."
Yvette