ANA Discussion Forum
General Category => AN Issues => Topic started by: FAITH40 on February 03, 2008, 09:47:20 am
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GOODMORNING TO ALL ;)
I HAVE NOT READ ANY POSTINGS ON NEUROMUSCULAR FACIAL RETRANING.. HAS ANYONE HEARD OF THIS? I HAVE AN APPT. THIS WEEK WITH A PHYSICAL THERAPIST THAT SPECIALIZES IN THIS AREA OF THERAPY. YOU CAN GOOGLE THIS AND GET INFORMATION ON WHO IN YOUR AREA SPECIALIZES IN THIS. THERE IS A CLINIC IN ATLANTA, GA. CALLED ATLANTA EAR CLINIC. A WOMAN BY THE NAME GAYE W. CRONIN OTD. OTR. SPECIALIZES IN FACIAL RETRAINING AND SUPPOSE TO BE GREAT WITH AWESOME SUCCESS!! GOOGLE HER !
LOOKING FORWARD TO THIS!
TAMMI ;)
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Hi Tammi, nice to meet you. Neuromuscular facial retraining is basically for those who had facial paralysis post surgery, & are beginning to have
movement return. As soon as movement starts (I was told) is when you go for this training. It's suppose to stop/decrease synkenesis from
occuring. I never regained movement so I never had the facial retraining.
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HI NANCY,
THANK YOU FOR THE COMMENT! ;) I AM ONLY 7 1/2 WEEKS POST OP, AND HAVE HAD GREAT SUCCESS SO FAR WITH SOME MOVEMENT AND SPASMS. I AM HOPING THIS LADY CAN WORK MAGIC!! ;) SHE SAYS EVEN IF YOU HAVE HAD NO MOVEMENT FOR YRS IT IS POSSIBLE!! YOU MAY WANT TO READ UP ON HER IF YOU HAVE HAD NO MOVEMENT. I AM GRASPING AT ANY STRAW!!!
THERE SURE SEEMS TO BE ALOT OF PEOPLE IN THIS AREA THAT HAVE AN ACOUSTIC NEUROMA.. HMMM MY DR. WAS ON THE NEWS TALKING WITH THEM ABOUT THIS AREA. STRANGE!! ??? ???
TAMMI
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Tammi: I just sent the Atlanta Ear Clinic a message re: my situation. Well, we'll see what they say, can't hurt to try.
Thanks for the information, Nancy
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NANCY,
GREAT!!!!! ;) ;) WE HAVE TO DO WHATEVER WE CAN TO SUCCEED AND OVERCOME THIS THING THEY CALL "ACOUSTIC NEUROMA" !!!!! I FEEL GOOD ABOUT THIS WOMAN!!! ;)
FAITH AT WORK!!!
TAMMI ;)
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Tammi, I saw Todd at UPMC for facial retraining. I did have some movement and with his help I improved from 30 - 65%. He uses biofeedback training. It was a great experience. I learned a lot. However be prepared to stare at face in a mirror for lengths of time. That was difficult emotionally.
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HI PEMBO,
THANX FOR THE WARNING!!! ;) I LOOK IN THE MIRROR CONSTANTLY ALREADY!!!
;D
DID YOU GO RIGHT AFTER SURGERY OR AWHILE LATER?
TAMMI ;)
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Hi Tammi,
I am looking for someone in the western Washington area who does this kind of training. I had my surgery in May and about 5 1/2 months later I started having real problems with the nerves connecting up wrong. My eye closes when I eat - and also some when I am speaking.... I don't really want to travel all the way to Atlanta .... but I can't find anyone here. If you hear of anyone trained in my area I would really appreciate the info. I live in southwest Washinton - so even someone in Portland, OR would be close enough.
Thanks,
Margaret
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Tammi,
I live in SC and drive 3 1/2 hours to receive Occupational Therapy from Gaye. I had Gamma Knife in June 07 i n Augusta. 3 months post GK, I developed facial paralysis. I have been going to Atlanta since Dec 07. She is helping me with my face and my balance. I am getting some return, but still have a ways to go. I make the trip monthly. I even saw the doctor that she works with for a consultation last month. It was well worth the time. She is an encouraging therapist and I highly recommend her. Good luck !
Susan