ANA Discussion Forum

Treatment Options => Microsurgical Options => Topic started by: cabram on January 21, 2008, 01:45:51 pm

Title: Getting ready for retrosigmoid
Post by: cabram on January 21, 2008, 01:45:51 pm
First of all thanks to all who reply  on this site, it's very usefull.

I'm 44, I started having the feeling of a clogged ear back in Nov.  MRI found an acoustic tumor (very smalll), at one point i did have facial paralysis on the left side along with the inability to close my left eye, had to tape it shut at at night and complete loss in left ear.  over the course of about 2 weeks the paralysis went away, my eye is fine and I can hear.
My Dr. said that this all can come back at anytime, so I decided on surgery vs radio, I didn't like the fact that I would have to have an MRI pretty much every year for the rest of life and knowing, something is still inside and is it  possibly growing, plus the slight chance of cancer.  Right now I'm scheduled for surgery on 2/13. I have read some replies that recovery tiime has been months, Dr. said I will be in hospital for up to 1 week and recovery time is a month. 

I've also been reading that radio will become the preferred method for treating AN's over time??????

I'm just looking for some feedback.

THX
Title: Re: Getting ready for retrosigmoid
Post by: jtd71465 on January 21, 2008, 06:48:25 pm
If it helps I had surgery January 10, 2007 and I am fully recovered.  I went back to work at the end of February and haven't looked back.  My surgery was 3.5 hours long (or short) and spent 3.5 days in the hospital before being dis-charged.  I hope you have the same experience as I did.  Feel free to send me a note if you want more information or specifics on my surgery or recovery.

Joe-
Title: Re: Getting ready for retrosigmoid
Post by: cabram on January 21, 2008, 07:02:28 pm
Now that's good to read !! congrads !!!
Title: Re: Getting ready for retrosigmoid
Post by: Static on January 21, 2008, 08:03:32 pm
Cab,
Everybody's experience is different.  I think a lot of it has to do with size and location of tumor.  The AN was on the larger side and pressing on the brainstem.  The surgery was suboccipital (or retrosigmoid) and was exactly 4 years ago today.  I was told the surgery was 11 hours long.  It took me a bit longer to recooperate than jtd.   I did expect to be deaf in my right ear and was, but the balance loss was unexpected.  I had to regain my balance which was totally gone.  That took me about 2-3 weeks to get rid of the walker and feel a bit more confident without constantly grabbing something and to this day, I still stumble at times, but nobody really knows unless I tell them!  I didn't have any facial paralysis and just a little dry eye which went away enough that I don't need drops.  My right eye doesn't tear, but that's really no big deal.  I was probably back to driving in about 6 weeks.  I did have to go back in the hospital in late April or early May (either can't remember or don't want to, not sure) for a CSF leak that was probably there for a couple of months and I kept denying, but I got plugged up through the mastoid bone and was out in a few days.  The test to be sure it was a CSF leak (because it was so long since the surgery) was probably worse than the actual surgery to fix the leak!  If you have any other questions, let me know.  I am not a doctor, this is just what had happened in my case.  You wanted some feedback, but don't forget, everyone is different.
~Karen
Title: Re: Getting ready for retrosigmoid
Post by: cabram on January 21, 2008, 08:21:10 pm
My tumor is 13 x 7.7 x 4.5 mm, the location is not in the auditory canal but on the ouside an to the left, this is why the retro approached was suggested by Dr.  I was told surgey would last about 3 hours, at this point time is not an issue as long as it's done right.
Title: Re: Getting ready for retrosigmoid
Post by: leapyrtwins on January 21, 2008, 10:07:03 pm
I had retrosigmoid surgery on 5/31/07 when I was 45; and today I feel wonderful.  I made a full recovery within the usual time frame (6 weeks).  My only side effect is SSD on my left side.  My AN was on the 7th and 8th cranial nerves and I had diminished hearing prior to surgery.  My surgery lasted 7 1/2 hours, but my AN was larger than yours.  I was hospitalized for 5 days, but mainly because I was severely nauseaus and didn't eat for a few days.  As a result, I was weaker than I should have been and I didn't walk enough to be let go after 4 days.  All AN patients are different and no one can guarantee how fast you will recover or what side effects you will have, but that "rule" can be applied universally to all patients.

One of the factors that made me choose surgery was just wanting to have the AN out of my head, so I can totally relate to your thoughts on radiation.  Surgery was the right choice for me, but others have found that radiation was the right choice for them.  I don't know what the preferred treatment over time will be, but you should go with the treatment you are most comfortable with.  Also, make sure that your doctors are well qualified and experienced in the treatment of ANs. 

Good luck; keep us posted,

Jan

 
Title: Re: Getting ready for retrosigmoid
Post by: sgerrard on January 21, 2008, 11:39:51 pm
I don't know that "preferred" is really the right term. For some ANs, radiation makes a lot of sense, and the range of tumors that are considered suitable for it has broadened as experience with the procedure grows. But I would bet that surgery will be around for a long time yet, and will be the better choice for a good number of situations. It is still case by case, it is just that radiation is "on the table" for more of them.

I wouldn't be so concerned about the MRIs, or the regrowth, or the slight chance of cancer. MRI rates drop off after the first few years, and are actually very similar to the pattern for surgery patients, who also get follow ups. Regrowth happens about equally with radiation and surgery, and is fortunately low for both. A malignant AN is so rare, each one is reported in its own research paper, and there are less than 10 of those, out of 10's of thousands of ANs. Radiation is not perfect, however. it takes a while to run its course, and the swelling that happens in the meanwhile can be troubling and sometimes damaging.

The location of your AN is not ideal, leading your doctor to recommend retrosigmoid surgery. If I were in your shoes, my main concern with that would be the possible damage to nerves, especially the facial nerve. Many people come through it just fine, and I certainly hope you do, but there are also cases of people struggling with facial nerve paralysis for months, and occasionally years. You should go in knowing the score. Still, if you know you want surgery, and that is the right kind of surgery for your case, then there is not much else to do but make the arrangements and have it done.

Just in case you are curious, you could try contacting one of the doctors on the cyberknife forum, and see if you can mail them a CD of your MRI for an evaluation. They may tell you to stick with the surgery, or they might say they think radiation would work out well for you.
http://www.cyberknifesupport.org/

Best wishes, Steve
Title: Re: Getting ready for retrosigmoid
Post by: Boppie on January 22, 2008, 12:21:03 am
Cab, Your doctor will want to do follow up MRI for a few years after your surgery to check out his work and how the site looks on film.  But as others have mentioned both forms of treatment require follow up MRI's.  It seems you have checked out the details and you have a "big enough" small tumor that getting it out sounds like the best thing based on its proximity and impact on your facial nerve.  Good luck.  Keep us posted in February, please!
Title: Re: Getting ready for retrosigmoid
Post by: Static on January 22, 2008, 07:40:20 am
Cab,
Your tumor size does seem small but I don't know a lot about cyberknife vs surgery.  The reason I chose surgery was twofold.  I didn't want anymore pressure on the brainstem and there usually is swelling at the site from the radiation.  Also because of the location and just in general, I wanted the tumor gone from my head.  I couldn't go on knowing, that dead or alive, there was a tumor in my head!  Again, it's a personal choice which was something that also hit me by surprise because usually, for me it's been no choices.  I had a perforated ulcer that had to be fixed, no choices there.  My babies were breach, csections were done, no choices there either.  So when I was given the choice, it threw me for a loop.  I had to make a major medical decision that I had to research and I had no idea about all this medical stuff, that's what the doctors were for, but in today's world, we need to be our own advocates for this stuff.  It was a new awakening for me.  You have to go with what you feel is right and live with it, which is a tough pill to swallow.  Pick a doctor you feel comfortable with and who has done alot of these surgeries, if that's what you are sure you want, and go forward, no looking back once you make your decision.  Same thing goes for if you make the decision to have radiation, just move forward with your decision.  I wish you the best with whatever procedure you decide to go with!
~Karen
Title: Re: Getting ready for retrosigmoid
Post by: cabram on January 22, 2008, 09:04:24 am
Again, thanks to all for you comments.

I'm still on schedule to have it taken out on the 13th.  Right now I have no signs of AN, ( no facial,hearing or balance lost).  I'm just nervous that it all can come back at anytime.  Hopefully,by attacking this thing before anymore signs pop up is a good thing, plus like another poster commented, the everyday feeling of a tumor inside of you (dead or alive) will drive me nuts.  I want it out.

I have trust in my Dr.  I sent him an email to make sure I heard him right and he said excellent not good.  Here's the reply:

"I understand your anxiety and recognize the importance of your decision. You are relatively young with a small intracanalicular tumor. Your chances for the result that you seek are excellent"

Title: Re: Getting ready for retrosigmoid
Post by: OMG16 on January 23, 2008, 12:01:11 am
Hi Cabram I am glad you joined us here at the AN forum.  I wish you a great surgical experience and a very fast recovery and it sounds like your Dr is confident this will be the case.  Trust in your Dr is a first step.

I do have a few questions if you don't mind answering them.  What were you told the complications would be?  Did the Dr mean a full 100% recovery in 1 month?  Does your Dr recognize post op headaches, cognitive issues and balance problems as possible complications.  The reason I ask is my son has a different type of brain tumor so I am not sure what the usual complications of AN surgery are other that what I have read here.  I would appreciate it if you and others here could answer these questions so that I can learn a little more.  Kisses to your forehead.  :-* 16
Title: Re: Getting ready for retrosigmoid
Post by: sgerrard on January 23, 2008, 12:44:10 am
My tumor is 13 x 7.7 x 4.5 mm, the location is not in the auditory canal but on the ouside an to the left, this is why the retro approached was suggested by Dr.  I was told surgey would last about 3 hours, at this point time is not an issue as long as it's done right.

I have trust in my Dr.  I sent him an email to make sure I heard him right and he said excellent not good.  Here's the reply:
"I understand your anxiety and recognize the importance of your decision. You are relatively young with a small intracanalicular tumor. Your chances for the result that you seek are excellent"

I a little confused. You said it was not in the auditory canal, but the doctor's reply says it is intracanalicular (in the canal). I guess I ask because location is usually an important factor in  the decision on which surgical approach to take.

Steve
Title: Re: Getting ready for retrosigmoid
Post by: jtd71465 on January 23, 2008, 06:35:50 am
Steve-

Please read the entire post, sounds like many reasons have been taken into consideration in making this very difficult decision.  Lets be supportive. 

Hopefully,by attacking this thing before anymore signs pop up is a good thing, plus like another poster commented, the everyday feeling of a tumor inside of you (dead or alive) will drive me nuts.  I want it out.  

I wish you well and "I" respect your decision...trust me surgery is not as bad as people make it sound.  Again I am open to discussions about everything I experienced Pre and Post surgery.



Joe-
Title: Re: Getting ready for retrosigmoid
Post by: leapyrtwins on January 23, 2008, 07:27:11 am
Joe is correct; surgery is not as bad as people make it sound.  It's definitely not something to take lightly, but there is life after AN surgery.  If, God forbid, my AN returned tomorrow, I wouldn't hestitate to have it surgically removed again if that was what the doctor recommended.  Call me foolish, if you'd like. 
Title: Re: Getting ready for retrosigmoid
Post by: ppearl214 on January 23, 2008, 08:18:56 am
Actually, everyone is right... size and location do "help" to determine best surgical approach, regardless of which surgical option is utlimately decided... and yes, this is a highly personal decision.  As we know, "individual results may vary"... regardless of which AN treatment options (microsurgical vs radiation/radiosurgery), we all know there are risks involved. We know of many that had surgery that have had good and not-so-good outcomes... we know of folks that had radio-treatments  with good and not-so-good results. I'm glad that Cabram is researching this carefully and weighing out all options that will work best for them.

Agreeing with Joe, we do respect final decisions, provide the best support we can regardless of decision as each decision is highly personal and best for that person.....  Cab has noted faith in their dr and I have faith in Cab to make the best decision possible for them.

Phyl
Title: Re: Getting ready for retrosigmoid
Post by: lori67 on January 23, 2008, 09:06:56 am
No opinions to offer today - just wanted to say good luck!   :)
Lori
Title: Re: Getting ready for retrosigmoid
Post by: cabram on January 23, 2008, 09:18:18 am
sgerrard
From what I remember in the office he said " the tumor was not in the location he expected it, (after 2nd MRI that was more accurate than 1st). he said it's good because the tumor was up and to the left.  I have sent him an email to clarify. Will post once I get it. Either case he did say excellent chance !! that works for me, even though  I know anything can happen.

omg16
Complications are still the same ones that are posted ( CSF leak, Anesthesia issues, headaches) and are pretty much standard.

More to come  ;D
Title: Re: Getting ready for retrosigmoid
Post by: cabram on January 23, 2008, 09:20:00 am
No opinions to offer today - just wanted to say good luck!   :)
Lori

THANKS !!!!!
Title: Re: Getting ready for retrosigmoid
Post by: OMG16 on January 23, 2008, 12:11:09 pm
I will add your surgery date to my calander and add you to my prayers.  Thank you for your answer, I just get a little confused sometimes.  Could you have someone post after your surgery so that we can know how you are progressing.  I think that most of us are like worried Mothers when our forum members are having surgery.  I wish you the best!  Have a great day!  ;D 16
Title: Re: Getting ready for retrosigmoid
Post by: Static on January 23, 2008, 03:46:51 pm
Cab,
Will be thinking of you and wishing you the best outcome and recovery!  Take care of yourself!  :)
~Karen
Title: Re: Getting ready for retrosigmoid
Post by: leapyrtwins on January 23, 2008, 06:33:33 pm
Cab -

Phyl summed things up very nicely in her earlier post - thank you, Phyl  :)  Regardless of your treatment choice, we are all here for you and we all wish you the best possible outcome.

You sound like you have a wonderful comfort level with your doctor, which in my opinion is key.  I had complete faith in my doctors and it definitely made a difference in my anxiety level both pre and post op.

Keep us posted as time goes on and good luck on 2/13; I'll be thinking about you.

Jan
Title: Re: Getting ready for retrosigmoid
Post by: sgerrard on January 23, 2008, 10:40:54 pm
sgerrard
From what I remember in the office he said " the tumor was not in the location he expected it, (after 2nd MRI that was more accurate than 1st). he said it's good because the tumor was up and to the left.  I have sent him an email to clarify. Will post once I get it. Either case he did say excellent chance !! that works for me, even though  I know anything can happen.
More to come  ;D

Good. I join the others in supporting you in your decision, it is never an easy one to make. The one thing I do know is that now is the time to ask the questions; afterwards is not. If he means up and to the left as in away from the nerves and easy to pluck off, so much the better!

Steve
Title: Re: Getting ready for retrosigmoid
Post by: cabram on January 24, 2008, 08:35:22 am
info from Dr. about position of tumor

Your tumor lies WITHIN the Internal Auditory Canal (IAC). It does not fill the canal, but it most certainly does lie within it as I have demonstrated to you.
 
All wounds heal by “scarâ€? formation. Yours will be a vertically oriented, slightly curved line just behind your ear, within the hair line, extending towards the upper portion of your neck.  I will reconstruct the portion of skull that I need to remove in order to gain access to the tumor. I generally use a titanium mesh plate held in with some tiny titanium screws. The plate is a “permanentâ€? one and will help to reduce post-operative headaches that are ordinarily experienced after these operations.

Boy this really sounds  nice !!  :'(

Title: Re: Getting ready for retrosigmoid
Post by: ppearl214 on January 24, 2008, 10:03:45 am
Hi Cab,

Well, to me, sounds about right. Like your's, mine did not "fill" the IAC but lays in it kinda sideways, almost like an egg, but doesn't touch the walls of the IAC... but this is based on what I could tell that you wrote.  When I look at mine on the MRI films, I see it width-wise, but not top to bottom as much, if that make sense.  As long as it is still in the IAC and not into the CP Angle region (mine was definately pointing in that direction with a hint of it peeking into the CP angle region), sounds like you definately caught it in time before it could really wreck some havoc :)   That may help bring you some peace of mind :)

Although I did not have the micro-surgery, what you note, if my old-age memory serves me right, sounds about the same as many here have had done. Hoping many here will chime in to let you know and how they did post surgery.  I know it is tough to hear from the dr's when they provide the "anticeptic" version, but... I have faith in the folks on this forum to help bring some peace of mind as well.

Hang tough!!!!!!  we're cheering you on.

Phyl
Title: Re: Getting ready for retrosigmoid
Post by: lori67 on January 24, 2008, 12:21:37 pm
I know the doctors version can seem harsh, but sometimes there's something reassuring in knowing that the doctor finds this to be routine and seems totally comfortable with it.  i think I'd be a little worried if he seemed to be completely worked up about it.

I know you'll do well.  You seem to educated yourself on what to expect so there shouldn't be too many surprises along the road.  Hopefully if there are, they are pleasant ones!

Lori
Title: Re: Getting ready for retrosigmoid
Post by: leapyrtwins on January 24, 2008, 08:05:22 pm
Cab -

your doc's description sounds fairly typical and what he's saying isn't as creepy as it may sound. 

my AN was inside the inner ear canal also.  I had retrosigmoid and my scar looks a lot like the one in the description.  My scar is not noticeable at all, in fact, my hair was growing in around it a few days post op.  I also have a titanium mesh plate and screws in my head, along with some fat that they took from the left side of my abdomen - quite common with AN surgery.  I don't know if the titanium plate helps reduce headaches or not, but for what it's worth, I have had no headaches that can be attributed to my surgery. 

Jan
Title: Re: Getting ready for retrosigmoid
Post by: cabram on February 05, 2008, 09:52:40 am
Welll, getting close !!! I have my pre-op appointment this Thurs. Operation on Wed....
I'm still doing ok, not to nervous.......yet !!
Title: Re: Getting ready for retrosigmoid
Post by: Esperanza on February 05, 2008, 11:44:03 am
Just wanted to add my very best wishes for a successful op. and a speedy recovery....   :)

Title: Re: Getting ready for retrosigmoid
Post by: elise on February 05, 2008, 01:07:25 pm
for what it's worth, if i had to decide again, i would  go for surgery instead of GK treatment...at the time of my decision their were no top notch surgeons in my area, something which greatly affected my choice, wasn't and amn't afraid of minute chance of developing malignancy or anything, just that it's still there 6 years later, and has started growing again. my choice for radiation at that time complicates what i do with it now. those surgeons are pros and are interested in racking up their successes in the field...don't worry, be informed and get it behind you...
Title: Re: Getting ready for retrosigmoid
Post by: ppearl214 on February 05, 2008, 01:43:35 pm
cab,

sending wishes to you as you prep for your surgery.... will be watching for updates and onward and upward to "postie" (post-treatment) status! :) 

Hang tough!
Phyl
Title: Re: Getting ready for retrosigmoid
Post by: jtd71465 on February 05, 2008, 05:26:04 pm
Not sure you will get nervous, I know for me that hardest part was the pre-treatment time.  Once I decided on a treatment method it was like a weight had been lifted off of my shoulders. 

I wish you the best,


Joe-
Title: Re: Getting ready for retrosigmoid
Post by: Kate B on February 06, 2008, 05:00:24 am
Hi Cab,


Your post requested feedback relative to surgery and recovery time.  My middle fossa surgery was 4 hours.  At HEI, you are in ICU for 24 hrs. Then you are discharged to the sixth floor. My stay at the hospital was four days.

       My biggest side effect the first five weeks was fatigue ( I took naps daily for the first few weeks) and my right eye did not tear at first.  However, it was moist enough that I didn't need daily drops.  I went to an opthamologist in Hinsdale that works with AN's. He, too, said that my eye closed correctly and was okay.  He said sometimes the lack of tears might last for 3 month to a year to..... My tears did return right after New Years and my operation was in November.

There were a couple of times I felt off balance during recovery.  Like many on this listserv, it seemed to be at night.  Like one night I woke up in the middle of the night for a drink of water and while trying to walk around the dog,I walked into the furniture.  Or the time I just finished telling the hair stylist that I was doing great and she asked me to stand up for a moment to sweep all the clippings and I stood up and veered into the wall.  We both laughed....but truly those are the extremes and happened during the first five weeks after my surgery. 

     I was able to return to work full time after five weeks as a Curriculum Director for a large suburban school district. That being said, Keep in mind the uniqueness of the experience for each individual.  Know that your outcome and experience will be as varied as the darn tumors themselves.  But go in with an expectation that you will recover and move on.  Soon you will be on the other side of the mountain coaching others. 

     There was a movie called, Pay It Forward with Kevin Spacey and Helen Hunt.  Its theme was that the way to pay someone back for good fortune is to "pay it forward".

This is my hope for you as you journey along the AN path. 


All the best,
Kate
Title: Re: Getting ready for retrosigmoid
Post by: cabram on February 07, 2008, 06:50:56 pm
Had my pre surgery testing today, took about 4 hours ( blood, ekg,xrays), they also gave me some antibiotic shampo to use the night before and morning of.   Here we go !!  6 days and counting ::)
Title: Re: Getting ready for retrosigmoid
Post by: leapyrtwins on February 08, 2008, 12:01:26 am
Hang in there Cab - as Joe said, deciding on a treatment option is like a weight being lifted off your shoulders.

Try to relax and chill out for the next 6 days - before you know it, you'll be a postie! 
Title: Re: Getting ready for retrosigmoid
Post by: nancyann on February 08, 2008, 07:55:48 pm
Hello Cab:  I hadn't replied to your post until now.   I do wish you a successful surgery. 

 Remember, post op is tough, no getting around it.
You may feel like a mac truck hit for a few weeks.   You will sleep ALOT - & please do, your body is letting you know you need it. 
You'll have to 're-adjust' your balance - when you walk at 1st it may feel like you're walking on a plank suspended by wires on a windy day....   
 My headaches started when I returned home & continued nonstop for a few weeks.

I did end up with facial paralysis, but this is not the norm (thank God - I was told 5% chance, it has not been easy but I am getting thru it).
My eye issues continue, that's the next thing I need to take care of.

I had my mom stay with me for 2 weeks after I got home - the 1st week I couldn't clean, do laundry or shop.  Just didn't have the energy
(or the balance).  You will need someone with you.

I will be sending out positive thoughts  & prayers for you.    Try to keep a peaceful heart during this time,    Nancy
Title: Re: Getting ready for retrosigmoid
Post by: sgerrard on February 08, 2008, 10:00:00 pm
Best wishes on the surgery, Cab. As I understand it, when you first wake up, you won't feel too great, but it gets better every hour, day, and week after that.  Just plan on hibernating for a while, and perking up again in spring, which is not that far away now.

Its good to know that you will have clean hair on the day of surgery.  :D

Steve

Title: Re: Getting ready for retrosigmoid
Post by: jtd71465 on February 09, 2008, 08:36:26 am
Cab-

Just to give you some reassurance when I woke after my surgery it was not as bad as everyone describes....even my Dr.'s had put the worse possible scenarios in my head (no pun intended).  One told me the room would be spinning and I would most likely be vomiting...they made it seem like this would last for days. 

I did not vomit(but did have that nauseating feeling in recovery which I was given medication for), the room was spinning but not that I just drank 12 beers with my buddies spinning.  It was a slow spin that lasted for 1.5 days.  I ate breakfast the morning following my surgery (I had my surgery from 5PM - 8:30PM).

If you want to know my hospital stay day by day don't hesitate to contact me.

Best wishes and stay calm,


Joe
Title: Re: Getting ready for retrosigmoid
Post by: ppearl214 on February 09, 2008, 08:56:22 am
cab, hope you are hanging in there... please remember "individual results may vary" and sending wishes for a terrific procedure.  Sending wellness huggles and will look forward to seeing you on the "postie" (post-treatment) side! :)

Hang in there!
Phyl
Title: Re: Getting ready for retrosigmoid
Post by: jtd71465 on February 09, 2008, 05:31:53 pm
I 100% agree with Phyl, individual result do vary...but hearing and keeping a positive attitude are very helpful as one approaches surgery.

Joe-
Title: Re: Getting ready for retrosigmoid
Post by: Featofclay on February 09, 2008, 06:01:57 pm
Hi Cab,
Just wanted you to know I am thinking and praying for you.  My surgery was 2/16/07 and my first MRI last month was negative.  You are going into this surgery with a positive attitude and confidence in your doctor....that goes a long way.  The surgery was not as bad or debilitating as I had expected.  My surgery was 5-1/2 hours and just seven days later I was walking into Dr. Stefan's office to be released!  I just wanted it "out and gone" which was a big relief once the surgery was over.  I have had headaches but I had headaches prior to surgery and off and on for years.  Soon you will have the surgery behind you and be on the road to recovery.  We are all here to support you in anyway we can.   
Jean in MS
Title: Re: Getting ready for retrosigmoid
Post by: OMG16 on February 09, 2008, 10:18:15 pm
I was just thinking of you and wanted to tell you I will be praying for you on the 13th and wish you well!  Kisses to your forehead.  :-* O  :-* M  :-* G  :-* 1 :-* 6  :-*
Title: Re: Getting ready for retrosigmoid
Post by: leapyrtwins on February 12, 2008, 09:58:06 pm
If my memory is working correctly (sometimes it doesn't - I had brain surgery you know LOL) tomorrow is Cab's big date with the surgeon.

Hope all goes well Cab.  I'm thinking about you and praying for a short, uncomplicated recovery.

Best wishes,

Jan
Title: Re: Getting ready for retrosigmoid
Post by: Glenda on February 12, 2008, 10:17:55 pm
Hi Cab, I just wanted to let you know I am praying for you! I hope you have a successful surgery and a smooth recovery!  God Bless!  Please give us an update when you are able!  BIG HUGS to you!!!

Glenda
Title: Re: Getting ready for retrosigmoid
Post by: cabram on February 13, 2008, 04:41:55 am
Well, today is the day, I'm heading out to hospital. Just wanted to say thanks to all.  Talk to you in a few days !!

C
Title: Re: Getting ready for retrosigmoid
Post by: hendi51 on February 13, 2008, 07:48:09 am
Good luck C. My thoughts and prayers are with you.
Title: Re: Getting ready for retrosigmoid
Post by: lori67 on February 13, 2008, 10:13:07 am
Thinking good thoughts for you C!  Good luck and we can't wait to hear from you when you're home!!

Lori
Title: Re: Getting ready for retrosigmoid
Post by: cabram on February 18, 2008, 05:52:45 am
OK, I'm back !!! Suregery was Wed, I was in ICU f till friday, home on SAT. surgery took 7 hours, once they had me on the table it was found my tumor was FACIAL not ACOISTIC. Dr was ablle to gelt all of it out and I'm having no facial or hearing issues!!! I haven't slept well since sugrery but I think alot of that is thecontinued checking up in ICU.  I'll post a little bit more later today but It's over !!!!!!

C
Title: Re: Getting ready for retrosigmoid
Post by: ppearl214 on February 18, 2008, 07:27:41 am
C,

Congrats and wishes for a speedy recovery! Sounds like things have gone well for you and onward and upward to wellness!

Phyl
Title: Re: Getting ready for retrosigmoid
Post by: Esperanza on February 18, 2008, 01:11:38 pm
Just wanted to add my best wishes for a very safe and speedy recovery.   ;D

x
Title: Re: Getting ready for retrosigmoid
Post by: leapyrtwins on February 18, 2008, 01:57:42 pm
Cab -

thanks for "checking in".  Just last night I was wondering how your surgery went - I figured it was about time for you to feel well enough to update us.

Glad things went well,

Jan
Title: Re: Getting ready for retrosigmoid
Post by: jtd71465 on February 18, 2008, 05:34:58 pm
Glad all is well.


Joe-
Title: Re: Getting ready for retrosigmoid
Post by: Glenda on February 18, 2008, 06:54:37 pm
Hi Cab,
I had been checking every day to see if there was any update on you.  I am so glad it is all over and that you are doing so well! 
Kisses to your forehead as you recuperate :-*

Glenda
Title: Re: Getting ready for retrosigmoid
Post by: Kate B on February 18, 2008, 07:59:51 pm
Cab,

It is remarkable how we all keep our AN buddies on our radar screen.  It is good to hear that you are home and doing well. As the expression goes, you are a now an official "postie".
All the best,
Kate   
Title: Re: Getting ready for retrosigmoid
Post by: Static on February 18, 2008, 08:47:01 pm
Cab,
So glad things are going well for you  :)  Thanks for letting us know you were out of the hospital.  Take it easy and hibernate a few weeks.  Write more when you can.
~Karen
Title: Re: Getting ready for retrosigmoid
Post by: lori67 on February 19, 2008, 10:14:49 am
C,

Glad you're home and recovering now!  And we all know, the hospital is the last place to go if you want to sleep!  It's noisy in there even when you're deaf in one ear!!

Hope you're feeling well!
Lori
Title: Re: Getting ready for retrosigmoid
Post by: OMG16 on February 19, 2008, 01:05:06 pm
There is no place like home.  Take care of yourself and listen to what your body tells you need.  Kisses to your forehead  :-*  :-* 16
Title: Re: Getting ready for retrosigmoid
Post by: leapyrtwins on February 19, 2008, 11:57:51 pm
C,

Glad you're home and recovering now!  And we all know, the hospital is the last place to go if you want to sleep! Lori

Ain't it the truth?  ICU is the worst place for trying to get some sleep.  Seems like every time I dozed off, someone would wake me up to take my vitals or ask me how I was feeling.  One day though I did find out what a gem of a doctor I had.  He stopped in to check on me and found that I was asleep, so instead of waking me up, he actually came back to see me a few hours later when I woke up.  Doctors like that can be hard to find; I think he's a keeper  ;D

Jan

Title: Re: Getting ready for retrosigmoid
Post by: cabram on February 20, 2008, 05:17:08 am
Well it's one week today after surgey, sleeping is still a a challange, i think the meds have alot to do with that.  My head still feels as if I have the big badadge on even thought I don't. I'm hoping this will  start to go away after my 10 day followup on Monday and I come off the roids.  Other than that day by day. i do have the the strangest dreams?????
Title: Re: Getting ready for retrosigmoid
Post by: Static on February 20, 2008, 07:02:52 am
Cab, I had a tough time finding a comfortable position to sleep in too.  Because I had always slept on my right side and the surgery was on the right, I was screwed.  I had to learn to sleep on the left, so I tried propping up pillows, etc.  Honestly, I slept best in a recliner leaning towards the left with a pillow sort of to my side that I kind of held and leaned in to, if you can picture that one!  Anyway, the steroids don't really make it very easy either but when I was in the hospital and couldn't sleep because of the meds, they gave me benadryl and it helped, so maybe you might want to try something like that as long as it's okay with your doctor.  I always have strange dreams, welcome to the club  :D j/k.  I don't know if that's just because your mind may be wandering because you've been through so much or you are just having crazy dreams! Things happen, who knows  ;)  So glad you are doing well.  Keep up the good work  :)
~Karen
Title: Re: Getting ready for retrosigmoid
Post by: lori67 on February 20, 2008, 10:40:10 am
I think strategic placement of the pillows is the key!  i think I had a million of them in the bed for a while!  And I slept much better once the steroids were done.

When I was still in the hospital, they were checking my blood sugar every 30 minutes - night and day.  Finally, one of the night nurses came in and asked how i was doing - I told her I'd probably be much better if I got to sleep for more than 15 minutes at a time.  She promised to not bother me for the rest of the night and to just call her if I needed anything.  It was heaven!  And I've learned that if you're waiting for the doctor to come in - just doze off - that's when they always seem to show up.

C- hopefully you'll be having sweet dreams very soon!

Lori
Title: Re: Getting ready for retrosigmoid
Post by: sgerrard on February 20, 2008, 11:41:26 pm
Hi Cab, glad to see you back, it sounds like you have done pretty well. A facial neuroma and no facial issues after surgery must be a good thing. The steroids will give you weird dreams and keep you from sleeping well, but that should end soon. I can't help you with the pillow arrangement issue, you'll have to look to other posts for that.  :D

Now you just need a long nap, until the daffodils are blooming and the tulips are well under way...

----

And by the way, Lori, who is that pretty young girl in the picture you posted?  ;)

Steve 
Title: Re: Getting ready for retrosigmoid
Post by: leapyrtwins on February 20, 2008, 11:43:30 pm
You know, I've been meaning to tell Lori how much I like the new picture.

Very nice  ;D
Title: Re: Getting ready for retrosigmoid
Post by: Kaybo on February 21, 2008, 08:21:05 am
I actually SLAPPED my sweet hubby during one nightmare in the hospital!!!  OH MY!! but something to laugh about now...

I have daffy-o-dillys blooming in my front yard b/c our weather has been so crazy here -- I am not in the "Warm all the time" part of Texas anymore -- and now it is 21 today....so much for that!!

K
Title: Re: Getting ready for retrosigmoid
Post by: lori67 on February 21, 2008, 01:07:10 pm
Aw, thanks you guys!  I still think my dog is cuter, but I thought you might be tired of looking at her.

I have daffodils coming up too!  This is nuts!  And, I punched my husband in the head the night I had my BAHA implant done - I had taken a Lortab before bed and was having a dream I was being attacked by a bear!  Apparently, he was the bear.  Oh well, you always hurt the ones you love!

Lori
Title: Re: Getting ready for retrosigmoid
Post by: Denisex2boys on February 21, 2008, 09:32:40 pm
Hi there C!  So glad your surgery is over and that you are now healing ((((HUGS))))!