ANA Discussion Forum
Post-Treatment => Balance Issues => Topic started by: 4cm in Pacific Northwest on December 11, 2007, 08:39:52 pm
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Last week I went to my follow up AN surgery assigned doctor back home in my state (ie not where I had surgery) and I asked him if there was any physio-therapy I could do that would help me to maximize my balance recovery and he said there was really nothing beyond “walking� and I probably will never make it back to my pre-surgery abilities.
HMMMPHHH…. :-\
My physiotherapy friends suggest I go to a vestibular clinic.
Today I met with my own PCP (a DO ) and he was thinking there IS more I could do to maximize balance rehabilitation 8)
He suggests I try a “balance board� (He uses this for his back injury patients- within his clinic)
Has any one tried one of these. If yes - was it helpful?
http://www.amazon.com/Carrom-Balance-Board/dp/B00003G1U0
4
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4,
I tried one at vestibular rehab and got one for home at a local sports store. It is wonderful! I also got the cheapest exercise ball I could find and I do both every day. I also do Yoga and Pilates DVDs which all help. It IS possible to have a good balance regardless of what your doctor says but you have to be very regimented with exercise and very consistent. It does work over time if you do it but rememember to start small and take baby steps forward!
Eve
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Sorry the first guy was a -----
Basically ANY balance type exercise
Yoga/dance/ballet/Tai Che/Golf/Gym etc etc (pick your favourite)
that you do often will
initally, tire you - but then improve your corrected balance over time,
might take a year - but 99% of the "old" you IS possible
in daylight and flat ground
nightime and cross country - not so easy, maybe.
Its an ongoing improvement thing
anyone tells you otherwise really has only limited experiance
of the wonderful way the brain/body corrects
Best of fortune in your recovery
any questions please ask
Best Regards
Tony
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Oh and a 1,000 pardons
- I meant the Doc wasnt quite with it !
no offence meant to eve
bit too early in the morning for me...
Sorry Eve
yours in sorrow...
Tony
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Tony,
I took no offense as I understood that the first DOC is not quite right! I 100% agree with you that if you do anything at all, the body corrects itself and whoever does not understand it, has limited experience. I am with you to encourage!
Eve
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I agree with you Tony.
4, the balance boards are great. We used things like that in PT all the time with anyone with balance issues. The ball also works. Anything that challenges your balance will help your body learn to compensate for what's missing. We've used exercises like playing catch with a ball, walking up and down hills, walking sideways up and down hills (have someone with you to hold on to just in case), putting the couch cushions on the floor and walking across them, standing on pillows.. anything that isn't quite flat or firm will work - just be safe when you do it.
If you are able to take longs walks outside, I'm sure that's helping too. You might not get back to pre-surgery good, but you can get darn close most of the time.
Some doctors like to think they have all the answers, but check with the nurses and PT's - that's who really knows what's going on! ;) No offense to any doctors out there!!
Lori
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I found another great form of vestibular therapy! Last night I had to take my 5 year old to a birthday party at a place called Pump it Up. It's a big indoor playground of all those inflatable slides and bouncy things.
Well the 5 year old was fine on those things by herself, unfortunately, i had the 20 month old with me who wanted at them, so I had to take her on. What great therapy to try to climb up an inflatable ladder in socks, holding onto a baby, while 15 five year olds are at the top jumping up and down, shaking the whole thing. Talk about your head spinning!!
I thought wow, they should have vestibular therapy here - it's only about $5 for 2 hours or something - much cheaper than a co-pay and if you fall, you can't really get hurt because there are mats all over. I mentioned my ingenious idea to my PT today and she knows the lady who owns the place - she's a PT also. I think she's missing out - maybe she could have an "AN Day" once a month or something. That would be fun therapy!
Lori
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RE
I think she's missing out - maybe she could have an "AN Day" once a month or something. That would be fun therapy!
Let me know when that happens- I'm in!
Seriously you should suggest they set one of these up at the next symposium- in the foyer of the conference center! What a hoot it would be. :D
Cheers,
4
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Yes the balance board will help. So will one of those half balance balls I think it is for pilates. I did a trampoline at therapy that helped too.
Lori do you think if you don't challenge yourself daily you start to lose your ability?
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The balance board would be great. I had vestibular therapy for two months after my surgery. I learned the term VOR. Vestibular Occular Reflex. :-) If I remember correctly, I used a balance board. I also got to stand on one foot and throw a ball at a net and catch it again. He had me bouncing on an exercise ball, first with my eyes open and then with them closed. In the beginning these things were very challenging. Now that I'm 27 months post-op, I would say that my balance is 99% of what is was before. I can even balance on the sidewalk curbs again. Just have to keep challenging yourself. My newest challenge is seeing if I can run 13.1 miles on May 3, 2007. My other running friends have already done it. I'm hoping I will too.
Jean
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Batty, i think the hope is that once you've conquered one thing, it won't be a challenge anymore. I know some things will probably always be a challenge though - but I remember my first days after surgery, just walking across the living room was a challenge. Now i'm a pro at that! Baby steps! We'll all get there some day!!
Lori
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Horse pookie on that doctor! My butt!
My favorite balance challenger is the treadmill. My house doesn't have room for one, so post-op I joined a gym and went there between headaches. My vestibular therapist trained me to work on my balance using one and taught me bunches of exercises on it. Walking slow, walking uphill, walking sideways, "targeting," head turns, walking backwards all kinds of stuff. People at the gym looked at me sort of strange, but then again, what with the boots and cutlass and all......
And it has handles! Even early on, when the world is spinning, a treadmill can be used. Don't know about a balance board. Sounds like a circus act!
Capt Deb (http://i235.photobucket.com/albums/ee60/Captdeb_photos/pirate2.gif)
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UPDATE Newsflash ;) :D ;D :)
Today I got my shiny new bike helmet (one that covers the ole craniotomy hole) and got on my mountain bike. Together, as a family, we did the flat, easy and paved part of the “Banks Vernonia Bike Trail�. Yes in 6 months I have gone from a walker, to a drunken sailor with an eye patch to one dare devil ;) midlife mountain biker that managed to keep the temporary eye weight in my pocket the whole time and did not need it until this evening… The daily walking and balance exercises I endured -have paid off. Healing has happened and I want to share this with you all… :)
(This link, below, tells you about where I cycled- today)
http://www.oregonstateparks.org/images/pdf/bv.pdf
So not only did I ride my mountain bike with NO balance problems but we counted 20 seconds where I actually rode with no hands.
My husband took a photo … That physician who told me I probably will never make it back to my pre-surgery abilities- today I proved him wrong. So Nah! :P
Thanks for all your encouragement in past months- AN family!
???
Now could someone please explain to me how to post the photo of me- showing off “look no hands� -on my bike in my shiny ;D new helmet? I have tried but I am technically stumped… nevertheless very willing to try again…
Today I chanted the lines from the Little Engine That Could … “I think I can, I think I can, I THINK I CAN!�
Trying to practice what I preach here 8) ::)… I am moving forward. :)
Cheers,
4
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4 I can't believe it. I got on the forum today to give my 'big news' and you beat me to it. :o Today I got on my bike for the first time too (and of course I wore a bike helmet) and It was so great to ride again. I admit that I didn't ride with - no hands - (but I didn't do it before I had surgery so I sure wasn't going to try now ;D ).
Hurray to us both. ..............now all we have to do is work up (down? ) to a unicycle :D .
Margaret
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Yay for riding your bike again.... i used to skate with the girls but quit prior to surgery due to
balance ... I have thought of going early and trying again but would probably get looks
showing up in bubble wrap
back to balance boards...this site has several kinds ...
http://rehabilitation-products.medical-supplies-equipment-company.com/product/PPF/param/1066_0__1_true/product_search.asp
I have used the third from top , the chango S2000 and the fit ball disc in PTs office when I
have snuck in... they don't have the free rolling action as the one you originally posted and
are more stable ... I am thinking of ordering some for home use as I can not drive to Nashville
three days a week as it was suggested I do for therapy... the 10+ hours a week on I -65 would
undo any good I was getting from therapy
gonna try to post pictures of boards just out of curiosity and see if I can do it
(http://www.medical-supplies-equipment-company.com/files/images/product/FAB117-126-118.jpg)
(http://www.medical-supplies-equipment-company.com/files/images/product/CBB100.jpg)
(http://www.medical-supplies-equipment-company.com/files/images/product/bad112.jpeg)
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Yay ... they showed up...word of caution... at PTs I stood between parallel walking bars... at
home I would stand in hall where I could put hands against wall... reason they gave for not wanting
me to work at it alone at home was falls...so in the hall and with someone home would be PT time ...
not out in middle of room watching soaps all alone with a coffee table there to whack my head on
as I go down :)
man actually told me that people get too confident and frustrated with progress and hit their head
on coffee tables... way he said it was just funny... I could see over confident but frustrated ANers
going around whacking head against furniture
The second board is my favorite ... you take ball out and have two small wooden blocks to wobble on...and
honestly they are alot like the wobble boards we made for Cub Scout day camp when we had a knights
theme and the boys stood on the boards and whacked at each other with long pieces of PVC pipe with
foam insulation wrapped around them and a pillow duct taped to each end...
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Soundy: The bottom picture, the round inflatable cushion with the down side spikes showing - I'm sitting on that right now at work, it helps those with back pain.
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they had me sit on the thing on a hard stool and lift feet off floor one then the other and
then try to lift both feet without toppling... and also place the thing on the floor and stand
on it and try not to fall off as I go through head movements and lifting and moving arms...
I hadn't thought about just sitting on it
If nothing else since surgery I have learned more about balance and how all our body parts work
together to keep us upright , than I ever wanted to know
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OK my wonderfully supportive AN family here is my "brag board photo" of me cycling with no hands - 6+ months post op at age 44.
(http://i271.photobucket.com/albums/jj159/ejfrie/100_0003.jpg)
I was able to do this “no hands" for only 20 seconds but hey I have come a long way from 6 months ago when I had to use a walker… and then when I did walk I was like a "drunken sailor in the wind " with my eye patch. Eyelid and balance works now … not sure what will happen in the ole facial palsy recovery though.
Nevertheless I was so thankful to be able to go with my precious family on a little bike trip.
HEALING DOES HAPPEN!
Keep moving forward,
4
Thanks Steve - we followed you photo insert directions
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4 that is so exciting. Tell your Guru to hurry and help as I can not wait to see the pic. You are such an inspiration to all of us.
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Looks like a great place to bike ... and looks like you are having a great time
I want to go canoing and no one will get in a boat with me ... >:(
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Soundy , I will ... that is if I can bring a fishing rod... ;)
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4,
I already told you that you look terrific! ;D
Eve
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Joef... fishing is fine ...
Does the water movement bother you when in a kayak or canoe???
Walking along the side of the Lake/big pond at Centennial park in Nashville like to
have did me in... the ripple of the water might as well been a strobe light
Used to go up and down the Elk River, Buffalo River and Duck River alot... All south central Tennessee
and loved it ... but my sons grew up and went off to be grown up and my two girls 8 and 10
want no part of it ... and my husband who almost drown when he was about 8 won't get in
the 4' deep splash pool the girls have... I am thinking a canoe on the lake at either David Crockett or
Montgomery Bell State parks would be a good starting point ...
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Oh I really want to see a photo of Joef in a kayak...
I think I will try that too - when the weather and water is warmer in Oregon.
Please post one Joef- oh fellow outdoorsy...
4
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Wow 4 - look at you!! I'm impressed! I haven't attempted my bike yet - it's all HUGE hills around here - going down them probably wouldn't be so bad, but I imagine I'd have to come back up them in order to get home.
Soundy, I'd be willing to get in a canoe with you - as long as I don't have to do all the work. :D I'm in South Nashville - near Brentwood - there must be some sort of water around here. No ocean though...we could use one of those...
Lori
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WHOOHOO 4 !!!!! You look great - & what a beautiful place you have there for a winter bike ride!!!!
So happy for you!!!!
Always good thoughts, Nancy
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Hi 4
"Only 20 seconds" without your hands!!!!! You are truly an inspiration to me. I'm having troubles just running. But you gave me hope!
Thank you!
David
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WOW 4!!!
You look great. No snow. Last night we received freezing rain, ice pellets, and 20 cm of snow. Not to mention the high winds. I forget what my grass and side walk looks like. I needed your walker to walk down the street this morning. My balance was terrible.
You go girl. We Canadian girls are more than just pretty faces ;D
Anne Marie