ANA Discussion Forum

Treatment Options => Radiation / Radiosurgery => Topic started by: mindyandy on October 14, 2007, 06:11:07 pm

Title: want to hear post CK stories & results
Post by: mindyandy on October 14, 2007, 06:11:07 pm

My name is Mindy. I am 29 years old and have a 1.4cm AN on my right side. My hearing is still good. I have some balance issues. I have some memory problems. I do remember things but must think for a few to remember. Strange!!! Anyways I have my consultation appointment at the Seattle Cyberknife Center in a few weeks and would like to hear from people who have had CK done & the results of how they are today.

Thank you
Mindy

Title: Re: want to hear post CK stories & results
Post by: Lorenzo on October 15, 2007, 05:31:22 am

Hi Mindy,

send me a personal message and I send you my blog address.

Lorenzo

Title: Re: want to hear post CK stories & results
Post by: Mark on October 15, 2007, 10:47:28 am

Mindy,

You can read my CK story over on the Cyberknife support web site. Direct link is

http://www.cyberknifesupport.org/mark.html

Mark

Title: Re: want to hear post CK stories & results
Post by: ppearl214 on October 15, 2007, 11:43:58 am

Hi Mindy and welcome:

I started this thread on this board a while back, to help share stories of CK with newbies by those that have already had it done, over a varied about of time.... I hope this thread helps.

http://anausa.org/forum/index.php?topic=3929.0

Again, welcome.
Phyl

Title: Re: want to hear post CK stories & results
Post by: mellowrama on October 19, 2007, 04:47:52 pm

Hi Mindy,

I had/have similair symptoms - dizzyness and balance a bit of a problem, great hearing...and a bit of numbness on my face & lips.  Had CK sept 06 and it seems to have gone well.  Still on the MRI bandwagon, and as I understand I will be for a while.  Last MRI the tumor was swollen and bigger, so symtoms are still around. 

I feel great, never had any problems with ck (except a headache the first night)... if you have it I recommend taking your own cd of music and a valium too.

I too have memory problems, and no one seems to think its connected...I've become a big list maker!  CK must be new in Seattle, I used to live there and would have probably gone there for treatment...instead I went to Barrows in phoenix.

best, melinda