ANA Discussion Forum
General Category => AN Issues => Topic started by: crystallady on September 21, 2007, 06:09:52 pm
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Hi everyone,
trying to get some info or figure out whats going on. I got steriotatic radiosurgery, one time shot, on 5/22. Had an mri 3.5 months later and my AN showed signs of shrinkage and necrosis after such a short time. ;D :D I have very little sides effects since the radiation until about 3 weeks ago. Thats when my head felt like it was going to explode. The pressure was/is all over my head but worse in the facial area. I dont have a sinus infection and my oncologist said that he has had patience have swelling months later. Well, he put me on prednisone which I took for a week. After I got off it, 24 hours later the pressure was back full swing and I couldnt work. The prednisone takes the edge off but doesnt get rid of it and its much worse than it ever was. He wants me on it for 6 weeks. Has anyone experienced this or have to go back on steriods? I really hope this a short term thing.
Cindy
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Hi Cindy,
I'm in a very similar situation to yours. I'm only 5 weeks post CK though. I had sudden hearing loss in my AN ear last week; it was the third time I've had it, but the first episode since CK. I was put on 50 mg predisone for 5 days and then was supposed to taper off for 5 days. My hearing improved, but as soon as I started the taper my hearing deteriorated again. I went back to 50 mg and will check with the doc again on Monday. Even though my hearing is better the fullness and tinnitus are worse than ever. Arrghh! I take my prednisone in the morning and some advil at night which seems to help a little. I found a link on AN Archive about post-treatment steroids if you're interested: http://www.anarchive.org/steroids.htm
Looks like most were on steroids 3-7 weeks.
Good luck,
Jay