ANA Discussion Forum
Archive => Archives => Topic started by: lifeisgood on March 01, 2005, 10:53:19 pm
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I was blessed to not have much loudness/ringing post surgery but have noticed over the past week that it seems louder. My surgery was last March.
I used to describe it as the sound of the ocean when you listen into a seashell or a hush sound. It now sounds like more of a static sound.
Has anyone experienced "shifts" in tinnitus and does anyone know why it maybe happening?
Can shifts in weather, pressure changes etc cause this?
:)
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I have noticed myself that some days the tinnitus is worse than others. Some days I am not bothered by it at all and some days it is like you said "listening to a shell with the ocean" and really loud too. I am not sure what makes it worse some days than others. I would like to know myself. ÂÂ
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which surgery did you have? Did it destroy your hearing, or did it preserve it??
I will lose all of my hearing...not impressed I a huge music fan....and was hoping I 'd lose the static/hum/buzz/hiss noises that are my entertainment for now.
Shadow
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Hi Shadow,
With a 1.7cm tumor you have options for three types of surgery. One is translab and in that case hearing is lost. The other two try to retain hearing with varying success rates. One is middle fossa and the other is retrosigmoid.
I had 100% going in with a tumor similar in size to yours. Mine was 1.5 cm. I had middle fossa surgery and I've retained 80% high frequency, 50% low frequency and have 84% speech discrimination. The speech discrimination score is important as sometimes hearing retained is not audible.
The other thing I was told is that the symptoms like tinnutus that you have prior to surgery most likely stay. They may be reduced, but symptom may stay.
Please check that out with your doctor. What part of the country do you live in?
Kindest regards,
Kate
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I had the translab approach b/c of the size of the tumor. So, no hearing in that ear.
You would think that I wouldn't hear anything in that ear, right? If I can try to explain what I was told by my doc about tinnitus, the brainstem and cochlear are involved with the level of tinnitus. If the nerve fibers are stimulated, you have tinnitus.
It can also be aggravated by caffeine, alcohol, and salt consumption.
Regarding losing your hearing, there is a device called the BAHA which can be implanted at the time of surgery which will give you hearing in that ear. It's much more involved than that so I would suggest that you speak with your doc, your insurance co to see if it's covered and there is also a website you can check out. www.entific.com
That's about all they could tell me about the tinnitus. As far as levels and fluctuations, no explanation except for possible aggravation by the above.
Take care,
Mary
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I have heard that caffeine and also aspirin make tinnitus worse -- the two things I take every day. sigh ...
Becky
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Kate,
I have had tinnitis practically all my life and was able to adjust to it my making "music" out of it, as silly as it sounds. But, since my AN surgery in 2003, the tinnitis has magnified many times more and nearly drives me crazy. Sometimes it is so loud that head feels like it is going explode from the noise and sometimes it even wakes me up from my sleep. Sometimes it drowns out people's voices while they are talking to me and they accuse me of not "listening". I have sounds of tea kettles whistling, train roaring, wind blowing, doors slamming, etc. I hear so many sounds and it does get rough. There are times I just sit and cry. I wish there was a way to turn the sound down or even turn it off. :'(
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Joy, me too. I have ringing in both ears now (like a tea kettle whistle). Sometimes all I can do is sit and cry.
It's not depression either, for those of us with all these vestibular, sensory, facial and other distractions. In between the coping and laughter (yes, it still happens) sometimes the distractions just take over and crying helps somehow.
My left deaf ear is always the same pitch and is usually louder than the right. Today my only hearing ear, which usually rings at a higher pitch, was loud and low. Shook me up quite a bit.
Becky
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I can relate to your stories. I have spent the majority of my life working around aircraft (helicopters), and everyone I know has some form of tinitus...pilots too! Mine is in my left ear and basically I deal with it by "making friends with it." Since I can't get rid of it, I just try to ignore it and that works the majority of the time...loke tuning out noise (or the kids) when your busy doing stuff. Some days it seems a bit higher, but fortuanately if I'm distracted it doesn't bother me much. I have read postings from the old site (I was around during the old site), where people found that reduced caffine and nicotine helped as well as some natural herbs. But, just wanted to let you know that I can relate to your tinitus stories :)
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my question is: does everyone who has surgery end up w/ tinnitis? is there any possible chance i won't have it? so far i think everyone i've come in contact w/ has had some form or another of tinnitis post-surgery...if you have had surgery and DO NOT experience this phenom..please let me know!!
thanks,
kristin
8 mm AN, Middle Fossa scheduled 4-14-05 House Ear Clinic
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I think many of us had tinnitus pre-op. The ringing in my AN ear (like a constant tea kettle whistle) was present pre-op. It remained after the surgery but is louder.
Anyone with no tinnitus pre-op? Still no tinnitus after treatment? Is there anyone whose treatment cured the tinnitus?
Becky
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I had no tinnitis pre op and have no tinnitis now. I have no hearing in my AN ear post op. I had a 3.2cm tumour removed June 2003.
Bluestar
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i did have tinnitis before my surgery. my treatment did cure the tinitis. but for my dad the surgery only made a little of it go away
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My tinitus was pre-radiosurgery (Gamma Knife)....
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I've got he soft static sound and for variety my ear tunes in to the dolphin channel. I get pops and clicks and squeeks. If only I spoke dolphin it might be fun! ;D
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I had understood only some neuros will go into the CP angle via middle fossa. Possibly if the 1.7 cm AN is located near the interior portion of the IAC and extends into the CP angle that far, many neuros would not do a mid-fossa.
C
Hi Shadow,
With a 1.7cm tumor you have options for three types of surgery. One is translab and in that case hearing is lost. The other two try to retain hearing with varying success rates. One is middle fossa and the other is retrosigmoid.
I had 100% going in with a tumor similar in size to yours. Mine was 1.5 cm. I had middle fossa surgery and I've retained 80% high frequency, 50% low frequency and have 84% speech discrimination. The speech discrimination score is important as sometimes hearing retained is not audible.
The other thing I was told is that the symptoms like tinnutus that you have prior to surgery most likely stay. They may be reduced, but symptom may stay.ÂÂ
Please check that out with your doctor. What part of the country do you live in?
Kindest regards,
Kate
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I can relate. Mine sounds more like coming home after a concert where you had really good seats...like next to the speaker. I try to ignore it and most of the time I can. Some days it's a little louder than others. But I love the dolphin comment :)
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I had rare episodes of tinnitus before surgery....usually after being in a loud environment. I had my surgery in December and still have some tinnitus....some days I hardley notice it and other days it is worse...usually just when it is really quite.....I have gotten used to it....
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i was researching tinnitis becuase i was bored and i found out that caffiene like in coffee and nicotine in cigarettes can be a cause of tinnitis or increase it, so if anyone is a coffee drinker or smoker, to decrease your tinnitis, you may want to try decreaisng your intake of caffiene and nicotine
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I noticed a post regarding BAHA Hearing aids and wanted to share my experience.
I live in Pennsylvania and here in PA they have an agency, most states probably do but most dont know.
I visited my local ENT for a checkup and hearing test. And was notified about CROS hearing aids. One is a transmitter worn on the deaf side and the other is a dual function, receiver/amplifier worn on the hearing side. These work wonderful and after having them after a year of single sided deafness... was like being reborn to have hearing from that side again.
Back to the agency..Pennsylvania has the Office of Vocational Rehabilitation.. If you are planning to return to work .. this agency will equip you in whatever manner possible to get you back to work. They paid for my exams, fittings and the CROS system. the system itself was over $1600.
So anyone looking for hearing aids of any type should considder contacting an OVR office in their state.
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Ray Grace
AN Removal via Sub-Occipital Resection
Dr. Robert Martuza, Massachusetts General
March 2004 1.2x1.7x1.9 AN
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I had 4 differnt noises in my ear before surgery. I know have 1 and am deaf in that ear. I noticed that the tinnitus seems louder when I am tired or stressed. I wear a CROStalk aid by Phonak. It has a wireless transmitter that hooks on my deaf ear and a hearing aid that fits in my good ear. When I am using that I don't hear the "static" as much.
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I also was blessed with little tinnitus. That would drive me nuts. But really, if I had to live with it, it would be a small sacrifice. I wonder, if you don't get it can it come later? the cakes