ANA Discussion Forum
Watch and Wait => For those in the 'watch and wait' status => Topic started by: sissyn on May 21, 2025, 02:46:13 pm
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The last two days my left eye has been twitching on/off for no particular reason. I have the facial tingling, like I've been shot with Novocain waiting for dental treatment. This tingling comes and goes which I'm used to, but this eye thing is not something I want to get used to. Anyone else have this issue? I see the neurosurgeon on June 6th to determine next steps.
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I have had this on and off recently in my non-AN side eye. Very annoying! However I had my annual MRI done two months ago and everything stable so it cant be the AN. Could be dry eyes and blepharitus as my daughter has the same thing going on - also eye strain from computer (you dont blink enough my optom told me when on) so am using eye drops, magnesium, warm eye compress to help moebian glands as mine are in bad shape so not enough natural oils and I clean clean my eye lids with OcuSoft at night plus wearing a good eye mask at night and it has improved. In fact it stopped a week ago and has not returned.
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Hi Sissyn,
I had facial twitches related to my AN, little tiny twitches that were not disruptive or noticeable, except to me. These were a few seconds at a time, often for a period of day. They came and went for two years of watch and wait.
I also had little twitches around my eye on the AN side, and numbness (sort of) around that side of my mouth and tongue. Same sort of frequency as above.
Surgery relieved all of them. I have the tiniest of all former twitches sometimes below that eye, but I consider it a great reminder of a successful outcome, honestly.
My Acoustic Neuroma was on the Vestibular nerve, and it was not originating on the facial nerve--but it was "bothering" the facial nerve before surgical removal. (That's my non-medical description.)
I hope your consult went well--and I hope you find relief soon.
Best,
Skier
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thank you all for validating that I'm not losing my mind. Counting down the days for a resolution whatever that may be. Thank you