ANA Discussion Forum

Post-Treatment => Post-Treatment => Topic started by: jaylogs on April 10, 2025, 06:55:20 am

Title: 15 years already?? WOW!
Post by: jaylogs on April 10, 2025, 06:55:20 am
Greetings all, it has been a minute since I have initiated a post on here. I do check out posts from time to time but alas, with my new job title I've taken on I have gotten quite busy over the years. But I digress... so yeah, 15 years. It was actually 15 years here this last December 9th!  For all those who are just now starting this wonderful journey, as you read all the various posts and weed through all the advice from the many wonderful and helpful members on this forum, one theme does stand out: Life after post treatment IS a new normal. There's no two ways about it. The level on which that new normal is varies greatly depending on your treatment, age, physical condition and a dozen other factors. But, personally I think life does adapt to whatever gets thrown your way. Cancer survivors know this, and all the other nasty lists of diseases and afflictions one can get. 

So, 15 years later, how do I feel and how am I doing? I am now 60 years old. I work out at the gym 4 to 5 days a week. My balance is pretty much back to normal, although once in a while it does sneak up on me and I find myself stumbling off to one side or another. But nothing major.  I came out of my middle fossa surgery with partial hearing loss. That has not diminished, and I have augmented it with BAHA so that helps. The tinnitus is the one and only thing that reminds me of what I have gone through. It comes and goes, right now as I write this it is fairly screaming at me, but there are other times I barely notice. So overall, that is manageable.  I am in excellent health for the most part but I can say that whatever issues I have had I can attribute to my AN journey, ie: Migraine management.  I am not sure if this was related to post AN, but a few years ago I had some sort of seizure, where I was in a restaurant eating and I just stopped and basically checked out. Catatonic. I didn't snap out of it for several hours. They called it some sort of disassociative type seizure. I have had only that one episode but I am on meds for that for the rest of my life.  I mentioned migraines, I was getting fairly bad ones so went to a neurologist and finally got that managed, no more migraines, thank goodness. 

So all in all, those were really my worse issues post AN. I don't feel compromised now in anyway, I am now in an engineering position at work so that definity has not been affected.  There is hope, light at the end of the tunnel! Continue to ask the questions, get advice. Lean on family, get the help you need. You do NOT need to be alone in the journey. I would have definitely have been for the worse if I hadn't found this wonderful forum and all the people who helped me at the time.  If you have read all the way to end, thank you.  If you are still in the early stages of AN, good luck to you. As we always said on here, whatever decision you eventually make on how to treat it, it WILL be the right one! :) If you are just post treatment, have patience.
Take care!
Jay