ANA Discussion Forum

Post-Treatment => Post-Treatment => Topic started by: RobinKeener on March 04, 2025, 03:43:08 pm

Title: Two months post Gamma Knife/Facial Spasms with strange feeling in head
Post by: RobinKeener on March 04, 2025, 03:43:08 pm

I’ve started having facial spasms and strange heavy feeling in my head. Sort of feels like my head is going numb. Just weird!! My Dr. doesn’t seem too concerned, but it doesn’t feel right to me.  Anyone have strange feelings in their head after GF? My tumor is only 7.3 mm. 

Thanks!

Title: Re: Two months post Gamma Knife/Facial Spasms with strange feeling in head
Post by: DanFouratt on March 04, 2025, 07:12:21 pm

Robin,

I had some heavy head and worse tinnitus 3 to 4 weeks post CK.  My doctor said it was normal and not to worry about it. It did pass and I was back to "normal" several weeks later.

Dan

Title: Re: Two months post Gamma Knife/Facial Spasms with strange feeling in head
Post by: stevehernes on April 22, 2025, 10:49:24 am

Are you doing better now? With headaches, I don't take any chances — mine are way too strong to ignore. Sometimes they hit so hard that I can’t focus on anything else. I’m planning to ask for advice from Canadian Pharmacy Partner (https://www.canadadrugsdirect.com/pharmacy-partner) soon and get myself some new medication. I know it’s important to find the right solution before things get worse. Health should always come first, and I'm ready to do whatever it takes to get this under control and feel like myself again.

Title: Re: Two months post Gamma Knife/Facial Spasms with strange feeling in head
Post by: DodgeAU on April 25, 2025, 02:41:53 am

I had hemifacial spasms which started 6 months post GK. The AN goes through several phases after GK including swelling and could be touching other facial nerves, etc. Write down all your symptoms and the frequencies and discuss with your Dr. I have been prescribed steroid for short term but felt worst rather than better. My facial spasms went away after 9 months and no other symptoms. But my hearing is gone on the AN side prior to GK so nothing to lose anymore.