ANA Discussion Forum
Post-Treatment => Post-Treatment => Topic started by: Mimispree on September 16, 2016, 04:00:00 pm
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Hello All:
I've been away from the forum for a long time because I didn't want to share my "bad" story after having a Trigeminal nerve graft that went wrong last October 8, 2015. But Brie sent me a PM and thanks to her I took a few minutes to re-read some messages of loving support you all offered me. I thank you from the bottom of my heart. I may not have had an AN, but rather a brain stem tumor that really ate-up my facial nerve. So yes, two years after my initial surgery to debulk my tumor, I am still completely paralyzed on the right-side of my face. I have had a gold weight implanted (3/15), and then had it adjusted because it slid up right after surgery, and now it's been re-positioned so low it looks like it's poking out of my eyelid and it's scratching my cornea. BUT, when I can handle having another surgery, I will have it readjusted again. It really helps, even mine with all of its bad positioning.
I also had a Trigeminal nerve graft, and my story is not good, but even if the surgery went well I don't think I would feel like it's worth another surgery. In my case it didn't work, the surgery went wrong, it was a nightmare. It resulted in my being dizzier than before, which makes me more exhausted, unstable and unhappy. BUT, because I'm dizzy all the time I don't have any problem cutting back on eating and I've lost weight! I tell my friends to be careful asking God to help them lose weight, because you may get a brain tumor and afterwards you may be dizzy all the time and lose your appetite because you're always a bit nauseous: God helps us diet in mysterious ways...
Anyway, I just wanted to thank you all again for your love and support and I'll stay in better touch.
Love,
Mimispree