ANA Discussion Forum

General Category => AN Issues => Topic started by: MPF on June 20, 2016, 09:32:52 am

Title: CSF Leakage
Post by: MPF on June 20, 2016, 09:32:52 am

Hello -4 weeks post surgery with great outcomes with the exception of  still experiencing minor CSF leakage (or what they assume is although the CAT scan does not show any fluid). Have others taken a conservative approach (Flonase, antihistamines....) with success and if so, how long did it take? Has anyone tried other medications (e.g., Acetazolamide).

Thoughts most appreciated . Thank you, MPL

Title: Re: CSF Leakage
Post by: H.Savoy on July 13, 2016, 07:29:14 am

Hi, I developed a CSF leak within a day of returning from hospital in 2014.  They went back in to repair.  All seemed well (as well as it could anyway) until recently.  My left eye (affected side) still seems "stuffy" - like there's gauze or something in the socket, and when I push on my left ear (and sometimes not) I feel a drip start to develop in my left nostril.  My MRI checks out fine, and neither the neurosurgeon or ENT believe there is anything wrong.  I have not hear do fusing antihistamines to try and stop leaks, could you please give more information?  Thanks!

Title: Re: CSF Leakage
Post by: bobw2829 on July 13, 2016, 02:48:32 pm

I took Acetazolamide for weeks. Have not had any issues since. Been off Acetazolamide for at least 2 weeks now. The stuff dries you up. You have to drink lots of fluids while taking it. My CFS leak started at hospital but only consisted of a few drips out of the noise while leaning over. Not a severe case.